Interstitial Cystitis

There is no worse feeling then people being mad at you for being sick.

#Endometriosis #Depression #MentalHealth #InterstitialCystitis

Hi, my name is WhinnyNinny8325. I'm here because I experience pain on a daily basis because I have a chronic illness that doctors do not give pain medications for. It has been bad for 4 years and I have spent thousands of dollars on meds, herbal supplements and doctors that has not got me anywhere. I have lost hope of ever finding anything that will help. I have pelvic pain due to Interstitial Cystitis. This condition is so complicated that it is different for everyone, different causes, different treatments to help different people, sometimes multiple treatments to help one person, etc..... I have multiple bladder issues, everything but incontinence. It has taken over my whole existence. Making it difficult to do anything, enjoy anything, or even barely function most of the time.

#MightyTogether

Hi, my name is Kwinkles. I'm here because I have had enough sitting in silence and want to find a community of support.

#MightyTogether #Fibromyalgia #BipolarDisorder #PTSD #ADHD #hashimoto 'sThyroiditis#PosturalOrthostaticTachycardiaSyndrome #Anxiety #Depression #Migraine #InterstitialCystitis

Hi there,

I am new here a single parent and have Diabetes type 2
Severe fatty enlarged liver
Psoriatic arthritis
Ehlers Danlos Syndrome
Chronic pain
Complex regional pain Syndrome right arm
Mild pots syndrome
Fibromyalgia
Interstitial cystitis
C5/c6 disc replacement
Endometriosis
Hemiplegic migraines
Anxiety
Depression
Medical PTSD
Complex PTSD

I'm really looking for anyone who can relate to being so unwell and parenting. My partner also has BPD and is putting me through hell I'm thinking of leaving him. So I'm really struggling in my own and so isolated and lonely 🪷🪷

I had toxic megacolon that required emergency open surgery total colectomy w ileostomy. I found out that the j pouch surgeries to reconnect my colon need to be open invasive surgery cutting open a large scar from abdomen to pubic bone from the colectomy. The colectomy and ileostomy was the most painful experience, the surgery was over 12 hrs w complications during and after. I can’t imagine reopening this scar and all the scar tissue around it 3 more times. I’ve had 8 spinal reconstruction surgeries in 10yrs w titanium screws, plates & rods including replacing my tailbone - those surgeries hurt less than the colectomy. Has anyone had j pouch after colectomy? I’m worried about pouchitis and other infections bec I have a primary immunodeficiency disorder? I read ppl have 8-12 bowel movts after surgery? How long does recovery take? Is the pouch connected and working after first surgery? Is life every normal w a pouch?
#CrohnsDisease #DegenerativeDiscDisease #Colectomy #Ileostomy #jpouchsurgery
#Pouchectomy
#colorectalsurgery #Scoliosis #PrimaryImmunodeficiency #InterstitialCystitis #demyelinatonsyndrome #demyelineatingsyndrome