Neurological

Does ANYONE have ANY IDEA what I can do to ease RLS symptoms? It's the worst in my arms/torso as opposed to my legs. I take magnesium, iron, B12, K2, D3...plus some of my prescription meds are supposed to ease the symptoms. I do need to get a bit more high intensity exercise, I'll admit that...but I'm having trouble with even fully falling asleep because I can't stop moving :(

#RLS #RestlessLegsSyndrome #Neurological #Sleep #CheckInWithMe

…otherwise known as the MS Hug.
Has anyone else experienced this - or know of anyone who has? I can’t find any other cause for it online besides MS and I apparently don’t have that.
My neurologist didn’t say anything when I told her about it. Thanks, Zel
#Neurological symptoms

Once upon a time

Running through this fire, bravely

There was a girl

#mslikesymptoms #MS #MultipleSclerosis #Neurological #undiagnosedsymptoms #haiku

I sit here typing this, while I search desperately for ANY, sort of #healthcarecoverage , In #alberta or, #WhereIsCanadianHealthCareForTheChronicallyill ?

This is day 4 in a row of being able to make it into work! Hopefully this is the week I can make it in all 5 days. Fridays are usually easy for me to push through, especially when I'm going to visit my partner over the weekend. Mostly cuz I know if I can't make it to work, then travelling on the coach bus isn't going to be a good idea either. So, barring any sudden severe symptoms, if I make it through today, I can make it through tomorrow.

Not that today is easy. I slept less than 4 hrs last night. I woke up achey and stiff. I'm using my cane for the first time in weeks, because my bad hip is being fussy. My fricken face muscles feel weak and heavy so talking, smiling, or even just opening my eyes is tiring. I'm resting my eyes frequently, in between tasks. On top of it all, this inflammation in my neck/right should just REFUSES to subside. This goal of mine shall not be easily achieved.

How is everyone else doing today? Are you also pushing through something, or working towards a goal? Are you letting yourself rest and respecting your limits today? Who else is just HOPING to be able to get in a full work week, like me?
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#ChronicPain #Neurological #Work #goals

I was looking back at some social.media posts from a year ago. This time, in 2019, I was shovelling the driveway on my own. AND the neighbor's driveway. I had a hip injury, some back pain and circulation problems but I was active. I had a full life. I could work full time. Even up to a couple months before my diagnosis I had a full, life. Migraines and body aches were common true... I still went for walks regularly. I was still pretty strong.
Since July of 2019 it feels like it's just all been downhill. I've gone from being in a moderate amount of pain while still functioning pretty well, to having to work part time, and still having to call in sick once a week.
I don't know what's wrong with me. This is more than Fibro. But I don't know what it is. None of this makes sense.
I can't help but think that I somehow must have caused this. I must have done something wrong. How else could I have deteriorated so quickly?? I'm trying to follow all my doctor's advice to the letter. I eat even healthier now than I did a year ago. And I feel like I'm getting worse.
My brain scan is in May... What if that's too late? What if there's something seriously wrong and what if it's something that can't be reversed? What if all the brain scan tells us is that nothing can be done?
I wish I knew what I've done wrong. If I knew, maybe I could fix it....
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#Undiagnosed #Neurological #Vertigo #Worried

Initially put down to potential tri-geminal neuralgia, and following countless tests & referrals, my symptoms of facial pain, neck & shoulder pain and then loss of mobility in my arm & lower leg, #Syringomyelia was labelled as a cause. Marvellous, I thought. We have a diagnosis. Treatment and a solution is bound to follow. More fool me.

Eight years on, the medical services diminish (poor, struggling NHS) and this condition progressively worsens. I know it doesn't respond to opiods because it is a #Neurological condition (as I'm told by eminent consultants) but try telling that to the billion synapses that rip through my brain with their narrative of agony like an neural electrical storm of hellish proportions.

Tonight's flare up was as epic as it was unpredictable. Breathing techniques. Tick. Mindfulness strategies. Tick. Meds. Tick. Tentative walking to distract the hypersensitive nerve endings. Tick. Oh! I'm beyond it all now.

A syringo flare up feels like a red hot poker being shoved into your spinal cord with elephantine force straight into your neck which then splinters across your shoulders and down your arms in slick, whiplash style. The hands curl up in zombie-like response and that poker cracks across the ankles in a firework lash just to ensure that any pain-free areas are exposed to the raging burning sensations that the rest of the body are consumed by. Speech is impossible.

If there was a passing lorry, I'd nip under it. Not that I could nip. I can barely breathe.

D says, "Shall I call the doctor? An ambulance? This one looks mighty."

"No point," I just about manage to respond. I couldn't bear the long wait of an on-call, over-burdened GP call-back, only to be told, "There is nothing more we can do," like last time.

I couldn't bear waiting in A & E whilst trying not to writhe in agony, then having to recount the complicated medical history, only to be told, "There's nothing we can do," like last time. Even a quick shot of gas and air (why can't we have this on prescription?) or one dose of orimorph couldn't compensate with the hell of driving to a hospital, queuing, explaining to a tired, perplexed junior doctor about the mish-mash, and quite frankly, wierd condition my body presents.

Instead, I'll try and tough it out. I'll suffer the excruciating agony and await the eventual calm. One can hope.

I have multiple chronic conditions the current combo I’m struggling to deal with is atonic bladder vs functional neurological disorder... managing my self catheterising and when necessary tampon without my neuro symptoms making me make mistakes like.... ending up with two tampons in instead of just self catheterising and other funny but also worrying things like that which when it’s personal care, and risk of infection high how the hell do I get my brain to do things in the right order right place etc etc without the support of anyone?
#Cantcope