spinalinjury

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Sharing My Health Issues

Hi, my name is Aaron. I'm here because I have some health issues that I want to share in-case anyone else can relate. I have a spinal condition where my vertebrae in my spine shifts if I bend a lot, and bending a lot is how I got the injury in the first-place where my spine shifted overnight in January of 2022 and it took a year to heal as much as it was going to. Because of the incident I have to sit in incredibly specific chairs that are short with a straight back and this has even prevented me from going on vacations because I can't walk a long distance or sit in chairs that will cause my vertebrae to feel uncomfortable. Prior to this happening back in 2016 I had injured my neck by headbanging (the dance) to heavy metal, it gave me whiplash. I have not done it since. Due to this health issue, I have to read books on bookstands and not hold anything for too long a period of time or my neck will start hurting. I also have a sensitivity to screens or rather a sensitivity to light when I look directly at it, no matter how faint. It is for this reason that I have to use older monitors that have CCFL backlighting and not LED backlighting, because fluorescent, or CCFL backlighting is much easier on my eyes. Unfortunately there are no new CCFL monitors being produced so I am using an old monitor from 2006 currently, and I also use an older phone that has an LCD screen. Along with all of these issues, I have dealt with having Autism Spectrum Disorder all my life which had made me a social outcast even before any of this happened. Lastly, I have been living in isolation since my spinal injury in 2022 it has been difficult trying to find people to talk to about these issues. I was attending college prior to the spinal shift but I haven't been able to go back yet.

#MightyTogether #AutismSpectrumDisorder #Depression #spine #spinalinjury #lightsensitivity ##screens Screens

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I'm new here!

HI, my name is Quandary88. I'm here because I'm just trying to accept that I will always be sick and how to still live every day to it's fullest. Ten years ago, at age 29, my life changed completely, due to spinal cord injury, brain bleeds, seizures & then more illnesses along the way. It's taken this long for me to let go of what I could do/did and understand that my abilities, opportunities, and future will never be what I planned and hoped for. I'm interested in hearingother stories, struggles, achievements, etc. I'm not sure if I have much to offer to others right now, but I'd also like to help if I can. Thank you!

#MightyTogether #Depression #Migraine #PTSD #OCD #Grief #Epilepsy #BrainInjury #BrainAneurysm #ChronicPain #spinalinjury

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We want people to feel less alone.

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
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#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

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#brothers #youthcaregivers #Love

Happy Holidays y’all! My greatest joy is sitting around the table laughing with our family despite all we have been through. Often #darkhumor but lots of laugh after living with and through: #Cancer #spinalinjury #mental illnesses #chronic illness #SeizureDisorder #SuicideLoss and more. Joy and appreciate in the small things is pretty magical. I wish y’all love and health this day.

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People suck

why in the hell do people say they will do sbit to help you but then when you need them to they fucking up and vanish like a fart in the wind? "Oh dude, you should've asked." I DID. I FUCKING ASKED MANY TIMES AND NO ONE HAS EVER COME THROUGH FOR ME SO WHY THE FUCK SHOULD I EVEN BOTHER ANY MORE? I'm so sick of this shit. I'm sick of my disabilities making me a fucking burden to my friends and loved ones. I'm done. #Depression #Anxiety #DropFoot #FootDrop #spinalinjury #SpinalStenosis

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How do you deal with your pain?

No, really... how?

My neuralgia left over from breaking my back is flaring up badly and I dont know how to stop it.

It hurts so much, it comes and goes in waves but it really intense. I'm on a waiting list for the pain clinic but until then I have to survive with it.

I dont know how.

Please. Any helpful suggestions are appreciated. #ChronicPain #neuralgia #Nerve and joint pain #spinalinjury #laminectomy #discectomy

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Tips for Cervical Radiculopathy #neckpain #CervicalRadiculopathy #spinalinjury #severepain

I’ve been having some really bad days with cervical radiculopathy. It’s been so bad I can barely move. Not much seems to help. I’m going to physical therapy but i want to find out what to do at home for these very bad days.

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How's your mindful eating going?

It's not :(
I've had a SIBO flare and my IBD is out of control. My GP is working hard to help me but I have no appetite and feel nauseous and weak.
I'm trying to build myself up for neurosurgery in May and this is not helping my mental frame of mind.
Please cut me a break universe. Exhausted.
#52SmallThings #IBD #CeliacDisease #Disability #spinalinjury #sibo #Migraine #ChronicPain

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