spoonielife

#ChronicPain #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #ChronicIllness #CVID #CommonVariableImmuneDeficiency #RareDisease #RareDiseaseMonth #InvisibleIllness #piawareness #zebrastrong #Spoonie #spooniesupport #spoonielife #disabilityawareness #Sarcoidosis #PulmonarySarc #NeuroSarc #Anxiety #PTSD

It’s all-consuming & never ending! Rarely do we ever medicate to a point of no pain. We are stigmatized & ostracized from society. It’s debilitating! #ChronicPain #Spoonie #spoonielife #Disability #Arthritis #Sarcoidosis #CPTSD #PTSD

#ChronicIllness #DisabilityInclusion #Spoonie #spooniesupport #spoonielife

We’re talking humor and laughter as coping strategy! Ridiculousness and absurdity ensued while recording this episode and laugh out loud Brain Fog truly happened which we decided to not edit out. Come Listen and Laugh with us!
00:05 am EST release 😄👏🏻.

(At this time, we have no episode transcripts but hopefully soon there will be. Please Be patient as we are doing this on our time and not getting paid for it.)
anchor.fm/creative-copes
#ChronicHeadaches #ChronicIllness #ChronicMigraines #ChronicPain #Fibromyalgia #Agoraphobia #Anxiety #MyalgicEncephalomyelitis #Spoonie #spoonielife #CrohnsDisease #Endometriosis #RaynaudsPhenomenon #Dysautonomia #Vertigo #ChronicOrthostaticIntolerance #Podcast #creativecopes #ChronicFatigue #Migraine

I’m sick of trying to navigate a Healthcare system that doesn’t give a shit about me. ⚛️ ##Ableism #ChronicIllness #Disability #disabilityawareness #DisabilityInclusion #DisabilityRights #Spoonie #spooniesupport #spoonielife #zebrastrong

Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
Mita’s Story

#chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
.
.
#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

I am limited.
This is my reality.
I only have so much energy to go around and I need to pick and choose what to spend it on. Always having to keep in mind that I cannot overdraw my account. I need to balance my ‘checkbook’, if you will, to make sure I don’t go down to zero either, because then I might not have enough for the next day.
(Obviously I am not perfect at Pacing as I find myself doing too much on occasions as I get impatient with my limitations. Overall, I’d say I do pretty well with it.)

So what do I choose to spend it on? Well, some mundane tasks need to be done like laundry or light cleaning, so I spread it out over a few days. I work within my boundaries which I have somewhat figured out by trial and error. This is part of Pacing.
Now, I am a very lucky Gal to have a super supportive husband and three kids that help me with some of the heavier chores, just would like to point that out.

When the Mundane Pragmatic stuff have been taken care of I choose to spend my energy on stuff that fills my heart and soul with contentment. Whether they’d be Creative Coping Strategies like painting, drawing, forest bathing, expressive writing or listening/making music (now the latter depends fully on headache pain levels but within my capacity, music will always have a part in my life) or just being with my family in the moment.
I also am a half of a duo who talk about exactly this in podcast we have named Creative Copes- A labor of love for ourselves and hopefully an aid to others.

This is what I spend my energy on.
Things that matter to me; that settles body and mind and makes my heart pumping blood.
I am not all knowing and cannot be Worldly Great: I am clearly not meant to be a main figure in changing the world lol.
But I can do Small things in a Great Way, for myself and others, and hopefully someone can pick up what I am putting down and feel more inspired to get up every morning and meet the day head on. Love and light ❤️
.
#pacing #CopingTips #MECFS #Fibromyalgia #ChronicHeadaches #ChronicIllness #Spoonie #spoonielife #MyalgicEncephalomyelitis #Anxiety #Agoraphobia #ChronicPain #dynamicdisability #ChronicPain #Pain #Acceptance #Grief #TheMighty

We are two friends wanting to swap ideas on creative coping skills with like minded people! We host a podcast called Creative Copes about this very subject with new topics every week. Maybe some of you can give us ideas what to talk about in upcoming episodes?
#ChronicIllness #dynamicdisability #CrohnsDisease #PTSD #Anxiety #Agoraphobia #PanicDisorder #MentalHealth #MyalgicEncephalomyelitis #Fibromyalgia #OccipitalNeuralgia #chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #Endometriosis #mentalhealthadvocates #chronicillnessadvocates #Spoonie #spooniesupport #spoonielife #copingskills #copingstrategies #creativecopes #creativecopespodcast #creativecoping #Podcast