Interstitial Cystitis

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Interstitial Cystitis
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Feeling Lonely

Do you ever feel like you're just too odd to fit anywhere? I'm single. I'm childless. I'm almost homebound. I am neurodivergent. I feel like there isn't a spot for me. I'm always trying to fit in to other's mold because there's not one for me.
It's a hard day of wishing I fit better. Wishing one of my labels was more common so I can have a safe place to be myself without having to fight for it.
I'm getting too tired to mask things. But others don't handle unfiltered me well.

Am I alone in this? What do you all do when it just feels like you're too much and not enough all at once?

#Depression #MentalHealth #DiabetesType1 #EhlersDanlosSyndrome #ChronicFatigueSyndrome #Fibromyalgia #PPPD #GastroesophagealRefluxDisease #IrritableBowelSyndromeIBS #AutonomicDysfunction #ADHD #InterstitialCystitis #Migraine #Grief

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Would y’all in the #EhlersDanlosSyndrome community say this is hyper mobile? I’m working with my doctors to get an hEDS diagnosis. I have several hyper mobile joints as well as passing the Beighton Scale. Multiple other systemic issues as well - been diagnosed with POTS, Interstitial Cystitis, IBS and more. #EDS #JointHypermobilitySyndrome 🦓🦓🦓

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I'm new here!

Hi, my name is WhinnyNinny8325. I'm here because I experience pain on a daily basis because I have a chronic illness that doctors do not give pain medications for. It has been bad for 4 years and I have spent thousands of dollars on meds, herbal supplements and doctors that has not got me anywhere. I have lost hope of ever finding anything that will help. I have pelvic pain due to Interstitial Cystitis. This condition is so complicated that it is different for everyone, different causes, different treatments to help different people, sometimes multiple treatments to help one person, etc..... I have multiple bladder issues, everything but incontinence. It has taken over my whole existence. Making it difficult to do anything, enjoy anything, or even barely function most of the time.

#MightyTogether

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Happy Diabirthday to me

I got my CWD (Children with Diabetes) award for 25 years of type 1 diabetes! Just wanted to share this milestone. It was weirdly emotional to get the medal in the mail and be recognized for one of my hardest invisible battles. 💙

And no, I did not eat too much sugar as a kid. It was a total coincidence being diagnosed on Halloween! Type 1 diabetes is an autoimmune disease. 👍
*Been asked that question soooo much* 😅

#DiabetesType1
#Fibromyalgia
#ChronicFatigue
#PolycysticOvarySyndrome
#InterstitialCystitis
#ADHD
#Depression
#Undiagnosed
#GastroesophagealRefluxDisease
#IrritableBowelSyndromeIBS
#Gastroparesis

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Fibromyalgia & Intercystial Cystitis (Photo has nothing really to do with the post, just thought it was pretty)

Does anyone have IC as an added diagnosis to Fibo? My urologist thought it was part of my auto immune issues but my rheumatologist seems to think it's more closer linked to Sjogrens.

Any thoughts would be helpful. Thank you!
#Fibromyalgia #InterstitialCystitis

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Monday Motivation ✨

How can we work on keeping our cup half full? What things on the list would be helpful for you? Let us know how you plan to keep your cup more full in the comments!
#PTSD #Addiction #MentalHealth #Anxiety #BorderlinePersonalityDisorder #BipolarDisorder #ADHD #ChronicFatigueSyndrome #Lupus #Endometriosis #Cancers #AnorexiaNervosa #Depression #MajorDepressiveDisorder #EhlersDanlosSyndrome #InterstitialCystitis

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