Interstitial Cystitis

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Where to go from here. #ADHD #Fibromyalgia #InterstitialCystitis #Migraines #Disability #Agoraphobia

I don’t know where to go from here.

Not only do I have multiple conditions that have caused me to be on disability, I have 3 kids, and been trying to get a medical billing job part time at home, but I cannot get my own space. We can’t move, we can’t add on, I can’t get a office shed.

How can we get ahead in life? I’m so tired of trying to push forward that I’m just about to give up trying, let the bills go to collections and disappear.

I also can’t find any friends who are willing to hang out online since I can’t go anywhere outside of my house.

I just need to know I’m not alone here.

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Where is Hope? She is so quiet today.

At 6 it was sexual abuse
At 12 it was type 1 diabetes
At 14 it was IBS
At 16 it was PCOS
At 17 they took my gallbladder
At 18 It was Anxiety/Depression
At 20 It became agoraphobia with panic
At 21 Chronic pain began
At 23 it was Migraines
At 24 it was GERD and reflux
At 25 it was kidney stones
At 27 It was fibromyalgia
At 29 it was CFS
At 31 it was balance/vertigo issues
At 32 it was IC
At 34 it became PPPD

I turned 36 two weeks ago and spent it in the ER and still don't know what happened.

Today I am depressed, discouraged, and desperate for some hope.

I'm Christian and I have been praying for answers.

So I thought I'd lay my burdens here and see if you Mighty Warriors have anything to share with me.

I wish you all the best in your own battles as well.

#DiabetesType1
#PolycysticOvarySyndrome
#IrritableBowelSyndromeIBS
#Anxiety
#Agoraphobia
#Depression
#GastroesophagealRefluxDisease
#ChronicPain
#ChronicFatigueSyndrome
#Fibromyalgia
#InterstitialCystitis
#PersistentPosturalPerceptualDizziness
#Migraine

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Hip Impingement

For years and years I’ve had problems with my joints, but the worst ones have always been my hips, knees, shoulders and fingers. Last year I was going to sit with my legs crossed, and as I did so I felt something hard in my right hip grind and I actually screamed. The pain literally blinded me for a good 10 seconds. After straightening my leg slowly, it eased up. But any time I turned my leg or lifted it, that same pain came back with a vengeance.

Naturally, I went to my GP and she and a colleague had me moving my leg in different ways and angles, which really really hurt, and said it was definitely an arthritic pain. They gave me some kick-ass anti inflammatory meds primarily used for arthritis (Meloxicam), and said they’d send me for an urgent x-ray of my pelvis.

A few days later I had the x-ray, even though the technician kept making me move my leg in different angles again.

And a week after that, my doctor called me with the results. Apparently I have something called a hip impingement? There’s a deformity in the ball of the joint that fits into the socket of my pelvis. Like an extra lip of bone. And over the years it’s been grinding in the socket so much it’s worn it down, and now I have arthritis. She said my left hip has a similar deformity but nowhere near as bad.

So, I’ve got to try and take it easy. I’m still going for very slow and short walks to get me out of the house. But it’s so damn frustrating that I have to slow down! And I know if I go against what she suggested, I’m going to seriously pay for it. Ugh.

So, I’ve done a lot of reading in the last few weeks. Yesterday I picked up A Court of Thorns And Roses (ACOTAR), and this morning I was sat in my mum’s room just quietly reading… Until Loki jumped up and stared at me. 😂 I don’t think he approves of me reading instead of giving him cuddles. He’s such a jelly-belly!

Anyway… I hope you’re all doing okay and having a good year so far. 🌺

#ChronicPain #chronicillnesswarrior #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #EDS #hipimpingement #Arthritis #ArthriticPain #InterstitialCystitis #LiverDisease #BPD #ComplexPTSD #Depression #Anxiety #resting #Reading

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Accepting My Conditions

I am new(ish) to The Mighty, and been recently working with my therapist on accepting my health conditions. Why is this so difficult to do so? #MentalHealth #Agoraphobia #Anxiety #Fibromyalgia #InterstitialCystitis #Migraines #degenerativediscs

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The mystery of illness……

I will never understand how it is possible to be considered by my doctor to be sooo healthy and yet I am horribly sick at the same time!!! Chronic illness sucks!
Anyone else struggling with understanding this concept?

#Fibromyalgia #ChronicFatigue #Endometriosis #InterstitialCystitis #DegenerativeDiscDisease #Migraine

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Interstitial cystitis major flares

I just had an appointment with my urologist and had a dmso instilation which I’m going try for the next six weeks but we also talked of surgery and was wondering if anyone had a hydrodistention surgery and what your thoughts or experiences were regarding it

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I’m new here!

Hi, my name is Jessica Cossin.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ADHD #crohn'sDisease #InterstitialCystitis #EatingDisorder #Insomnia Are some of the diagnoses I have received, most were made in my early 20's. Whenever I've had to get a new doctor, I want to collect all of my medical records, and one of those moving dollies that you use for heavy furniture; then stack all the files on it, and wheel it in with me, just for the effect. Also, to show that I've been through a lot, I won't stand for any of the bull that they may want to pull, so don't even try. I'm going to advocate for myself. I've obviously been chewed up & pooped out a few times by the medical industry. I've picked up on a few key things. 🙄 I have 4 kids, my 3rd has Down Syndrome @ 5 months she required open heart surgery. All of her hospital stays, surgeries, doctors, etc. have given me quite the experience with the medical industry as well. But, I have no idea how to get any services to help myself or my daughter, both of us are legally disabled. My husband is a truck driver, gone for 6 weeks, home for maybe 48 hrs. It's just me, no help. I'm a wreck. I've surpassed my mental point of no return . When husband comes home all he does is yell/snap at me that everything is a mess, not done the way he wanted it done, or he says, I just sleep all day. I honestly wish I could! I need to go, I've known that for awhile gg, but I can't afford any lawyers, nor to get a new place to live. The winters here are about 8 months & brutal. Heat is expensive, I am exhausted thinking about it.

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Hi! I'm new here. Just need a place to tell my story, and perhaps get some necessary help.

This morning I woke up with the migraine again, this is now day 6, off and on, but mostly on. I go through phases like this, where it seems I cannot escape the pain, then they might suddenly improve drastically, down to once or twice a week, and back again. The right side of my forehead feels like my skull is going to explode right off, or my brain is going to come through my temple, and the back of my neck, at the very point where it connects to the skull feels like I'm being stabbed with an icepick. This is the same pain as always, it rarely varies, and causes nausea, extreme light sensitivity and pressure behind the eyes like they want to just pop right out of there, and the dreaded panic attacks. No medicine the neurologist has tried helps to prevent them, but thankfully, the triptans prescribed do give me temporary relief. I've had multiple CT scans, MRI scans, X-rays, and blood tests. The only thing that showed up is rather severe arthritis in my neck. I also suffer from rather extreme allergies, meniere's disease, interstitial cystitis (under control), and asthma. I believe it is likely that I have mast cell activation syndrome, but have not as of yet found a doctor who is able to assess me, here on the outskirts of Atlanta. That pretty much covers the physical. The mental impacts of all of this can be quite a bundle as well, as I'm sure you folks understand. Today is a rough day, but I'll get through it. Thanks for listening.

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