Interstitial Cystitis

Join the Conversation on
Interstitial Cystitis
7.1K people
0 stories
532 posts
About Interstitial Cystitis
Explore Our Newsletters
What's New in Interstitial Cystitis
All
Stories
Posts
Videos
Latest
Trending
Post

Hitting a wall.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
#Fibromyalgia
# Migraine
#IBS
#InterstitialCystitis
#ChronicPain
#EhlersDanlos
#c -PTSD
#Autism
#Anxiety
#Depression
##BrainFog

21 reactions 9 comments
Post

Where to go from here. #ADHD #Fibromyalgia #InterstitialCystitis #Migraines #Disability #Agoraphobia

I don’t know where to go from here.

Not only do I have multiple conditions that have caused me to be on disability, I have 3 kids, and been trying to get a medical billing job part time at home, but I cannot get my own space. We can’t move, we can’t add on, I can’t get a office shed.

How can we get ahead in life? I’m so tired of trying to push forward that I’m just about to give up trying, let the bills go to collections and disappear.

I also can’t find any friends who are willing to hang out online since I can’t go anywhere outside of my house.

I just need to know I’m not alone here.

14 reactions 3 comments
Post
See full photo

Where is Hope? She is so quiet today.

At 6 it was sexual abuse
At 12 it was type 1 diabetes
At 14 it was IBS
At 16 it was PCOS
At 17 they took my gallbladder
At 18 It was Anxiety/Depression
At 20 It became agoraphobia with panic
At 21 Chronic pain began
At 23 it was Migraines
At 24 it was GERD and reflux
At 25 it was kidney stones
At 27 It was fibromyalgia
At 29 it was CFS
At 31 it was balance/vertigo issues
At 32 it was IC
At 34 it became PPPD

I turned 36 two weeks ago and spent it in the ER and still don't know what happened.

Today I am depressed, discouraged, and desperate for some hope.

I'm Christian and I have been praying for answers.

So I thought I'd lay my burdens here and see if you Mighty Warriors have anything to share with me.

I wish you all the best in your own battles as well.

#DiabetesType1
#PolycysticOvarySyndrome
#IrritableBowelSyndromeIBS
#Anxiety
#Agoraphobia
#Depression
#GastroesophagealRefluxDisease
#ChronicPain
#ChronicFatigueSyndrome
#Fibromyalgia
#InterstitialCystitis
#PersistentPosturalPerceptualDizziness
#Migraine

72 reactions 19 comments
Post
See full photo

Hip Impingement

For years and years I’ve had problems with my joints, but the worst ones have always been my hips, knees, shoulders and fingers. Last year I was going to sit with my legs crossed, and as I did so I felt something hard in my right hip grind and I actually screamed. The pain literally blinded me for a good 10 seconds. After straightening my leg slowly, it eased up. But any time I turned my leg or lifted it, that same pain came back with a vengeance.

Naturally, I went to my GP and she and a colleague had me moving my leg in different ways and angles, which really really hurt, and said it was definitely an arthritic pain. They gave me some kick-ass anti inflammatory meds primarily used for arthritis (Meloxicam), and said they’d send me for an urgent x-ray of my pelvis.

A few days later I had the x-ray, even though the technician kept making me move my leg in different angles again.

And a week after that, my doctor called me with the results. Apparently I have something called a hip impingement? There’s a deformity in the ball of the joint that fits into the socket of my pelvis. Like an extra lip of bone. And over the years it’s been grinding in the socket so much it’s worn it down, and now I have arthritis. She said my left hip has a similar deformity but nowhere near as bad.

So, I’ve got to try and take it easy. I’m still going for very slow and short walks to get me out of the house. But it’s so damn frustrating that I have to slow down! And I know if I go against what she suggested, I’m going to seriously pay for it. Ugh.

So, I’ve done a lot of reading in the last few weeks. Yesterday I picked up A Court of Thorns And Roses (ACOTAR), and this morning I was sat in my mum’s room just quietly reading… Until Loki jumped up and stared at me. 😂 I don’t think he approves of me reading instead of giving him cuddles. He’s such a jelly-belly!

Anyway… I hope you’re all doing okay and having a good year so far. 🌺

#ChronicPain #chronicillnesswarrior #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #EDS #hipimpingement #Arthritis #ArthriticPain #InterstitialCystitis #LiverDisease #BPD #ComplexPTSD #Depression #Anxiety #resting #Reading

32 reactions 14 comments
Post
See full photo

Accepting My Conditions

I am new(ish) to The Mighty, and been recently working with my therapist on accepting my health conditions. Why is this so difficult to do so? #MentalHealth #Agoraphobia #Anxiety #Fibromyalgia #InterstitialCystitis #Migraines #degenerativediscs

47 reactions 12 comments
Post

The mystery of illness……

I will never understand how it is possible to be considered by my doctor to be sooo healthy and yet I am horribly sick at the same time!!! Chronic illness sucks!
Anyone else struggling with understanding this concept?

#Fibromyalgia #ChronicFatigue #Endometriosis #InterstitialCystitis #DegenerativeDiscDisease #Migraine

49 reactions 30 comments
Post

Interstitial cystitis major flares

I just had an appointment with my urologist and had a dmso instilation which I’m going try for the next six weeks but we also talked of surgery and was wondering if anyone had a hydrodistention surgery and what your thoughts or experiences were regarding it

Post

I’m new here!

Hi, my name is Jessica Cossin.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ADHD #crohn'sDisease #InterstitialCystitis #EatingDisorder #Insomnia Are some of the diagnoses I have received, most were made in my early 20's. Whenever I've had to get a new doctor, I want to collect all of my medical records, and one of those moving dollies that you use for heavy furniture; then stack all the files on it, and wheel it in with me, just for the effect. Also, to show that I've been through a lot, I won't stand for any of the bull that they may want to pull, so don't even try. I'm going to advocate for myself. I've obviously been chewed up & pooped out a few times by the medical industry. I've picked up on a few key things. 🙄 I have 4 kids, my 3rd has Down Syndrome @ 5 months she required open heart surgery. All of her hospital stays, surgeries, doctors, etc. have given me quite the experience with the medical industry as well. But, I have no idea how to get any services to help myself or my daughter, both of us are legally disabled. My husband is a truck driver, gone for 6 weeks, home for maybe 48 hrs. It's just me, no help. I'm a wreck. I've surpassed my mental point of no return . When husband comes home all he does is yell/snap at me that everything is a mess, not done the way he wanted it done, or he says, I just sleep all day. I honestly wish I could! I need to go, I've known that for awhile gg, but I can't afford any lawyers, nor to get a new place to live. The winters here are about 8 months & brutal. Heat is expensive, I am exhausted thinking about it.

(edited)
2 reactions