Demyelinating Neuropathies

Hello, I’m new here and I’m dealing with some really rough relationship issues that I feel have a lot to do with my health. Where do people discuss these challenges on The Mighty? I will admit that tim struggling with the relationship and it’s a 10 year relationship and we love each other very deeply yeah I feel like my medical condition. Makes it too scary or risky for someone to take a chance to be with me based on the numerous systems have been affected by my systemic connected tissue and auto immune disorder. The person I was dating for 10 years that we’re about to be engaged is a physician had a kidney transplant and I think understood too well how much risk I’ve had recently with several near death medical crisis according to my present medical history, my trajectory is not going upward at all. In fact, my immune system has attack more organs systems and now I’m not a surgical candidate, major spinal deformity or hammertoe/bone spur injury.
Im still here. My bf broke up w me. We were supposed to get engaged shortly. Hard week. I think it’s too late I missed my chance. I was in a to me and my kids which took me 15 yr marriage that was destructive to me and my kids. It took me ten years to get a divorce. I’m still dealing with the fallout from that. Dating# #mixedconectivetissuedisease #PrimaryImmunodeficiency #DemyelinatingNeuropathies #MultipleSclerosis #CrohnsDisease #AutoimmuneDisorder
#Epilepsy #Arthritis #DegenerativeDiscDisease #ChronicFatigueSyndrome #Arthritis #DiffuseIdiopathicSkeletalHyperostosis #seronegativearthritis #Scleroderma #Endometriosis #Gastroparesis #ChronicVestibularMigraine #Migraine

Holà, I'm Sara, 26 years old, living in Paris with quite a well-stocked medical résumé. Between Ehlers-Danlos syndrome, a pseudo Raynaud's syndrome, Arnold's neuralgia, and maybe a bit of arthritis thrown in for good measure, let's just say my body loves complexity. Oh, and I'm still waiting on a diagnosis for a nerve demyelinating disease—if I ever manage to get a full diagnosis, I might as well write a medical textbook!
#MightyTogether #EhlersDanlosSyndrome #DemyelinatingNeuropathies #RaynaudsPhenomenon #Arthritis

Hi, my name is EmpressLNC. I'm here because my chronic illness and mental health journey has been lonely and I am in need of an authentic community. I want an improved quality of life and no longer wish to set aside my dreams instead achieve them while accepting my daily challenges. I desire to learn to love myself in spite of the trauma I’ve endured and my chronic health challenges. I want to thrive not simply survive.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #Grief #EatingDisorder #ChronicIllness #DemyelinatingNeuropathies #complexpost-traumaticStressDisorder

Hi, my name is nikiahodgdon. I want to find answers!

#MightyTogether #Migraine #Depression #Anxiety #DemyelinatingNeuropathies

Hi, my name is MummyTut82. I've been diagnosed with so many illnesses diseases that at age 40 and Mum of 3 darling children, I have lost all quality of life and I'm scared of myself honestly.. For I can't keep just 'existing' like this and I know it is destroying my children's hearts watching me so sick ... it breaks me more every minute coz I honestly believe they shouldn't have to see Mummy this way anymore it isn't fair on them... #icantdothis😮‍💨 #heartbroken💔 #idontwanttoleavemybabies😪 #itisjustfartoomuchtohandle💔

#MightyTogether #PTSD #Fibromyalgia #Anxiety #Depression #ADHD #OCD #Grief #Leukemia #FunctionalMovementDisorder #DiabetesType2 #Cancer #RheumatoidArthritis #OpticNeuritis #NeurocardiogenicSyncope #DemyelinatingNeuropathies #CeliacDisease #InappropriateSinusTachycardia #congenitalheartdefect/Disease #BirthDefect #IronDeficiencyAnemia #Arthritis #ArteriovenousMalformation #SuicidalThoughts #chronicactiveepstein-BarrVirus #ChronicIllness #polycysticovarysyndrome(PCOS) #Hyperparathyroidism #ThyroidCancer #Cardiomyopathy #CardiovascularDisease #CongenitalVascularCavernousMalformations

Hi, my name is HarryJames. I'm here because I’ ve been living with EDS all of my live and didn’t know it. I’m make, and it’s only gotten bad in my sixties. I’ve finally found receptive doctors, but good information is even harder to find.

#MightyTogether #Depression #Migraine #Arthritis #meniere'sDisease #DemyelinatingNeuropathies

Hi, my name is RavencrestPWCrew. I'm here because

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ADHD #OCD #Grief #UterineFibroids #Stroke #MixedConnectiveTissueDiseaseMCTD #PanicDisorder #ArousalDisorder #Psoriasis #Arthritis #PulmonaryArterialHypertension #ChronicIllness #ChronicInflammatoryResponseSyndrome #Lupus #RheumatoidArthritis #DancingEyesDancingFeetSyndrome #AdenoidCysticCarcinoma #Allergist #CentralSensitizationSyndrome #DentateCerebellarAtaxia #IdiopathicPulmonaryFibrosis #RetroperitonealFibrosis #DegenerativeDiscDisease #AnkylosingSpondylitis #SleepWakeDisorders #MentalHealth #SwallowingDisorders #DemyelinatingNeuropathies #NeurofibromatosisType2 #ChronicDailyHeadache #HereditaryBreastAndOvarianCancer #Cancer #BloodCancer #ColonCancer #MiniStroke #Coma #CommunicationDisorders #ObsessiveCompulsivePersonalityDisorder

Hi, my name is azielnik01. I've been diagnosed with DEMYLENATING POLYNEUROPATHY

#MightyTogether #DemyelinatingNeuropathies

Hi, my name is freedspirit. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #DiabetesType2 #DemyelinatingNeuropathies

Hi, my name is Ty1_. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether

#Anxiety

#Depression

#Fibromyalgia

#UterineFibroids

#Dysautonomia

#ParaneoplasticSyndromes

#DemyelinatingNeuropathies