non

I have really been struggling with something called functional neurological disorder (FND) for almost a year now. I get non-epileptic seizures, facial spasms, selective mutism, and occasionally trouble walking and moving my legs. It makes me feel really hopeless 😩 because my doctor said there is nothing she can do about it - she just tells me to manange my stress. This disorder is also know as conversion disorder, which is a very archaeic term from the time of Freud. Back then it was mostly women afflicted by it, and they called it hysteria. Even when I was in the hospital 🏥, they wrote in my chart that I was “faking a seizure”. There is nothing fake about it - it is a very very real and scary experience. Just because there is no “known” physical cause shouldn’t make it any less valid! I also am frustrated by the fact that this disorder is called “functional”. It is anything but. It can be very distressing and incredibly disabling for the individual experiencing it. I am writing ✍️ this post to bring awareness to this issue, and the problem with the medical system where if doctors can’t find a cause of the symptoms, they say it’s all in the person’s head or accuse them of faking. These leads people who are struggling feeling upset and invalidated and leading to a distrust of doctors which could make them less likely to reach out for support in the future. This is highly damaging. Just needed to rant and ask has anyone experienced anything similar with the medical system or symptoms of FND? How do you cope? #FunctionalNeurologicalDisorder #non -epileptic seizures, #Selective mutism #mobility issues #It ’s not all in your head

I have been going to Psychiatrists,Psychologists,Mental Health Licenced Therapist's(current one also a Professor at a local college),since 1984, more on than off.ive been asked why I keep going if I'm not cured by now,why continue??? #RA ,#oa ,#Fibro ,#Neuropathy ,#GERD ,#disc ,nerve problems in neck,lower back,#Torn Labral muscle rt.hip,#non - ankylosing spondylitis ,#sjogren 's syndrome,#Reynauds ,#chronic sinusitis,#chronic Insomnia,#Chostochondritis ,#Eczema /Allergies,#Photosensitive to sun,#dog lover,#high blood pressure,#Believer in coloring therapy at home,#Bookworm ,#Schitzophrenia as 1st diagnosis in mental health illness,#Love Words,writing.,music (eclectic interests).

Hi Y’all-
I’m Sara. I’m new here but also not.
I know I haven’t had much opportunity to open up on The Mighty. That said: Simply being able to read and press the ♥️ button has been an INCREDIBLE HELP. THANK YOU FELLOW MIGHTY WARRIORS!

With that in mind- let me jump on into the deep end (I’m talking diving via springboard-nose plugs and all) of the pool.

I absolutely dig the “Favorite Quotes”
Post (?) Pardon-as I learn more Mighty jargon 😉☺️...

Today- I put a quote up in that thread. Total ‘No Holds Barred’ I could think of many a quote- and will probably add more.
But I digress-

The quote that popped into my head is from a band named ‘NoMeansNo’
The quote:
“Nonsense is better than no sense at all.“
From their ‘0+2=1’ Album.

The thing is - the quote has always stuck with me for various reasons-
Recently, however, it’s become emblazoned in my heart 💜 and MIND.

It has become even more special to me b/c My Best friend
(aka- the FAMILY I Choose) of over 25 years passed away not even 1 year ago (2019)
His birthday was March 11. He would’ve been 46 this year.
Now, Myself and Family/ FRamily alike, must get through April.
April will be 1 year of his passing.
I’m a bit all over the place.
Pinging from thought to thought- just as I did as the dancer that I once was...literally Spinning and jumping-
Only now, the landing is tougher.
The spinning doesn’t stop- even if I look at one fixed point in the distance
(as dancers are trained to do so that we don’t fall over).

Lately I’ve been more like a ‘Weeble - Wobble’. Remember those?
That succinct tag line:
“Weebles Wobble BUT they don’t fall down!”

Ok, Now I’m ‘dating myself in time’ and I can hear the echo of his (my friend’s) laughter just from me writing about Weeble Wobbles... 🤷🏻‍♀️ Oy.

With all the Chronic illnesses that have been w/me since birth + The Cancer I got through + the Cancer’s Aftermath and NOW new Neurology issues -(That list is long enough for this moment) -

Putting all that aside
I can only say: In MY personal experience- My 42 years of this crap-

I am used to being the one who survives in this Intoxicatingly Beautiful Tragic yet Wondrous Life.

I’m not complaining -ok maybe a lil bit- but it does beg the question: “Why me?”

Not exactly “Why is this happening to me?!” Although those days do happen. Y’all know! We all get them 🙃

Rather: “Why Me?”
As in “Why am I still here?”
Watching people who have had the same or similar experiences, illness or issues fade away. . . 🧚‍♂️
“Why am I still here?”
—————————
#introduction
#CheckInWithMe #MightyTogether #CPTSD #SurvivorsGuilt #SexualViolenceSurvivors #IllnessAnxietyDisorder
#non-SmallCellLungCancer #MixedConnectiveTissueDiseaseMCTD #Migraines #Goodgrief #weebleswobble #Neuropathy #ImmuneDeficiency

i feel as though I'm a pain in other peoples asses. especially my nurses and aids. I'm here to get iv antibiotic therapy and they take away my rights to make my own decisions. #Fibromyalgia #sciatica #Scoliosis #Arthritis #scizoaffecttive #Bipolar2Disorder #non alcoholic fatty liver disease #Neuropathy #Anxiety #GastroesophagealRefluxDisease #Osteopenia #Anemia #Hypokalemia #hypocalcemia #Asthma #ObstructiveSleepApneaHypopnea #Insomnia #venusstasis #Venus insufficiency with edema #Psoriasis ?

Today is one of those days. I feel like someone has pins stuck in every micro square inch of my body. #ChronicPain #UnknownDiagnosis #autoimmune #Arthritis #non-StopPain