Left appointment dazed and confused
I had a recent appointment with my chronic pain clinic team, Doctor, physiotherapist(Patrick), pharmacist and nurse. I had 2 minutes to fill out 2 pages of pain scale papers to rate my pain over the last week. I don’t feel comfortable with pain scales as my pain changes so much through any given day. The doctor was late and was in and out several times during the meeting so Patrick (physio guy) asked the questions and made the decisions. I told them my newest med hydromorph contin helps with 2 things, I can fall asleep at night with less pain and even though I wake up in pain through the night I can get back to sleep. Other than that I get out of bed in terrible pain all over and can barely walk from the pain in my feet. After that the early part of the day is the easiest then by early afternoon the pain all over starts to get really bad. I said the hydromorph contin doesn’t work in the afternoon. I only get a bit of relief if I take a Percocet and I can only take 2 a day for breakthrough pain so when they wear off and it’s quickly the pain gets bad fast and continually gets worse until I get into bed.
Patrick said it sounds like I’m doing better. Did I hear right? I said I’m not. I’m back to where I was when I started there 6 months ago. I told him it feels like my body is getting used to the hydromorph really fast and not having the intended effect. He said I just told him I was doing better. I said I still suffer most of the day. I’m not getting the relief they think I should be getting. He ignored all that and told me I’m doing better than I think I am so we’ll keep my meds the same. I wish I could hook wires from my body to his so he could feel my pain.
The doctor comes back so I quickly ask for a perscription for clonazapam with an increased dose because I’ve had to increase the Dexedrine I take for chronic fatigue and the clonazapam really helps with the side effects. He asks why I don’t ask my family doctor. Family doctor says only chronic pain clinic can do it. I get my perscription then I ask for a script for arthritis compression gloves.He doesn’t know what they are. I had to explain that to him too then he was gone again before I could say anything else.
The nurse says Can you go now we have another appointment. Odd way to finish an appointment. I didn’t have a chance to go over my notes. I go to the waiting room to wait for my perscriptions and realize I forgot to ask the doctor to put R after clonazapam. I ask the receptionist to please ask the doctor to add it on and apologize.She is very annoyed but asks him. He says there’s no difference without the R. I told him that didn’t work for me. He’s annoyed and waves his hand and says whatever. Not very professional. Family doctor says only chronic pain clinic can write stronger perscriptions but it’s a PT making the decisions.
Are we doomed to live in pain because of a disfunctional health care system. Do I even bother to go back there?