My Summer Sun Gear #Lupus #ChronicIllness #Photosensitive

My Summer Sun Gear #Lupus #ChronicIllness #Photosensitive
Do any of my fellow Fibro Warriors or any Lupus Mighties out there experience photosensitive lesions? #Fibromyaliga #Lupus #Photosensitive
Anyone familiar with #Fibro Rash ?
What products or solutions have you used to deal with the bright lights from driving at night? #Fibromyalgia
Now that it's winter, it's dark earlier and I can't avoid driving at night. What products or solutions have you used to cope with the bright lights that hurt the eyes? My fibro doctor says that #photosensitivity is a symptom of #Fibromyalgia, but was unable to give me any solutions. #Photosensitive #Astigmatism #Fibromyalgia
If a giant person lives nearby, visible only to you
If they're a sculptor and decide you'd be better as a vase
If they're a chef and set the oven to broil, just char the outside
If they're a tailor and need a new pin cushion
If they have a dog who likes to sit on your chest
If they have a child who doesn't use their inside voice
If they're night owls who really like to talk
If they have the lights on bright to see a little clearer
If no one can see the effects of the giant's life
If your family wonders why you don't come around much
If your friends call less and less each week
If your coworkers get frustrated at the pile of papers on your desk
You're not alone
If you walk out your front door, in any level of demeanor
If you sit at any table that isn't empty, even with one stranger
If you talk to anyone, even mutter a hello to your neighbor
If you go to any get-together, no matter how you think you look
You're not alone if you try
If you try to do even one small thing today,
Maybe two tomorrow if you're feeling better
If you try to step out into the sunlight, even with your eyes closed
Some effort into living through what no one sees
You're not alone if you're reading this,
If you're hearing or feeling this
If a giant lives near you
You're not alone
#Fibromyalgia #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #Asthma #ChronicObstructivePulmonaryDisease #Headache #Migraine #IntracranialHypertension #Insomnia #Photosensitive #Depression #Anxiety #FamilyAndFriends #Relationships #Selfesteem #SocialAnxiety #GeneralizedAnxietyDisorder #InvisibleIllness
How chronic illness affects my eyes #ChronicIllness #IrlenSyndrome #Photosensitive
My story part 1
I have suffered with #Epilepsy since I was 5 years old, but was constantly told I just need more sleep till my sister did her first aid course and had me go see my gp asking for a referral - turned out she was right. I was 13. No medicines worked. We tried countless drugs from the age of 13 onwards but it only carried on getting worse. #JuvenileMyoclonicEpilepsy also #Photosensitive -epilepsy. Then while in college I started getting a crazy #Migraine and eventually regardless of whatever I took nothing would make it go away. So I slept at home for nearly a month. Once it became better and I tried getting out of bed... BAM! Paralysed. I was rushed to hospital and after doing three wrong #LumbarPunctures they found nothing. The worlds best nerve specialist also told me I was lying. -that day, those words... that lady, I will never forget. Going back alittle - I was in hospital for over three months with this now... at the time for some reason I didn’t think anything of it and just got oncwith whatever. Towards the end, with no help from the doctors there, my dad helped me learn to walk again using their frames and crutches when he would come visit. They sent me home with the diagnosis of #Paraparesis and #Parasesis