pain killers

Hey, everyone. I hope you’re doing as well as you can be, given the circumstances.

So, yeah, I’m scared. And very nervous.

I take 60mg Dihydrocodeine four times a day - I have been for about two years now. It’s the best painkiller I’ve been on (and I’ve been on a lot). However, sometimes when I have a bladder/urine infection, or a flare up of my Interstial Cystitis, I get pretty extreme cramps. Like my whole bladder locks out. And I often end up peeing myself a little because I can’t control it. Because of this, my GP and I made an agreement - she would prescribe me SIX diazepam tablets a month. No more, no less. Quite often, those diazepam tablets were a lifesaver. They allow me to leave the house without the fear of cramping and then wetting myself in public.

BUT… My GP has told me that she will no longer be prescribing me diazepam. She has said that new research has shown that in people who take opiates and diazepam there is a significant risk of respiratory failure.

I understand her reasoning… But I’m terrified. If I properly wet myself in public, I don’t think I’ll ever leave the house again. That diazepam greatly improves my quality of life. It allows me to perform daily activities without my bladder spasms getting in the way… And she’s taken it away from me… What do I do now?

Thank you for taking the time to read this.

.#ChronicPain #chronicillnesswarrior #BladderPain #BladderIssues #InterstitalCysltitis #Pain #PainKillers #scared #Worried

Pain. Most of us have it. I imagine everyone in their lives have some form of pain. I have many physical health issues and a few mental ones to add to them.
When pain is bad enough that I have to scrabble around to find some form of relief. Usual painkillers, done. Top up paracetamol, done. Top up codeine, done. And still, my leg is spasming enough that it feels like it's valiantly attempting to squeeze the pain out, thus making it worse.
What do I do?
What can I tell myself?
Sometimes the 'painkillers' don't kill the pain they just sit there ignoring the agony and being a bit useless.
All I can do is rest. Sleep won't happen and relaxation has decided to leave for the evening. Tomorrow may be better, or it may be worse. I don't know.
I will rest. Let myself just be with all my aches and pains and hope that tomorrow is better.
Just remember that tomorrow might always see an improvement even if it's the tiniest thing in the world.
I am celebrating my sisters birthday tomorrow, fish and chips and a good, trashy film just to annoy her OH. I will smile and be my chatty and rather odd self and all the while that pain will be my companion. The companion that sometimes gives me sleep or allows the medication to work and sometimes keeps me up writing this into the Mighty message system.
I am going to try and sleep. You all should too. Rest is good for the companion even if it grumbles about it.
Goodnight folks. #EDSHT #Pain #PainManagement #PainKillers #MyalgicEncephalomyelitis #Fibromyalgia

#ChronicPain #PainKillers

I have intense pain between my left shoulder blade and my spine. Like there’s a block of wood shoved in there. Can’t take painkillers for another hour and 15mins. Can’t do stretches properly that normally help as I’ve had a hand op (best way to describe it) two weeks ago and can’t touch that hand without it hurting the injury. Can’t have a bath due to this either. Tried foam roller, cbd oil, massage, heat cream, hot water bottle, ibuprofen. Can’t tolerate ice. Any ideas or advice anyone? Partner needs to sleep due to work (in the nhs so extra guilt) and I’m keeping him up which I feel awful for. Will try anything. #Pain #Sleep #Painsomnia #HypermobileTypeEDS #HEDS #Hypermobility #Shoulder #help #Advice #PainKillers

So I tried to unscrew a lightbulb on Sunday and it broke in my hand. Went to a&e and they tried everything but couldn’t get one bit of glass out. Have an appointment in the morning to see plastics dept. to get it out (they didn’t say how but I feel it’s gonna suck). Finally got to sleep on two tramadol only for my (lovely, now feeling guilty) partner to roll onto my hand in his sleep. Now wide awake and in pain but can’t take another for 2.0.0.5 hours. I am not in a good mood. #EhlersDanlosSyndrome #Anxiety #Hospitals #Glass #Injury #hands #Pain #HypermobileTypeEDS #HEDS #tramadol #PainKillers #Sleep #Insomnia #PlasticSurgery

Woke up this morning and realised I fell asleep last night without taking bedtime pain medication. So now on top of the usual pain that the medication doesn’t eliminate, I also feel lots heavier, and like someone’s pulling cheese wire between my joints and vertebrae.

I can’t get to a comfortable temperature either, and though I’m usually too hot, this constant changing that keeps meaning I have to move is not helping.

I’d go back to sleep if the incessant drilling where they’re building a house down the street wasn’t drilling into my mind.

I rarely forget medication, I have habits and reminders and it’s not something that happens often, but man I wish it was fool-proof! I had wanted to do something today maybe, but looks unlikely now...

#ChronicPain #Medication #PainKillers #painmeds

I am so tired of being in pain.

These past 2 weeks have been the worst I’ve had in a while. My mother keeps begging me to go to the hospital for some relief, but honestly I’m too afraid to go. I’m afraid that they’re going to label me a drug seeker and push me aside.
Damn this “opioid crisis”! I’m so angry at what it’s doing to people like me who really need pain control.