StayPositive

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    Staying positive

    Staying positive can be so hard when you know you have a degenerative disease like muscular dystrophy. Some days it's really hard to just get through the day. I try hard to be grateful for all the things I can still do, I'm spite of my current limitations. I'm taking this adventure one day at a time and always remembering that today is a good day to have a good day.

    #StayPositive #MuscularDystrophy

    Community Voices
    Community Voices

    Better Days To Come !!!

    <p>Better Days To Come !!!</p>
    3 people are talking about this
    Community Voices

    I’m making a change for the better. I’m learning to recognise impulsive behaviour and how to keep my temper and mood swings in check.

    <p>I’m making a change for the better. I’m learning to recognise impulsive behaviour and how to keep my temper and mood swings in check.</p>
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    Community Voices

    I'm very glad for this community

    To start with, my uncle has this rare kind of disease that made him unable to walk, and he could hardly move. He's about 26 years diagnosed of this type of disease already. Specifically, me, my grandmother, and my brother is the only one who helps him in everyday activity (eating, going to bathroom etc.), I just wanted to share my experience helping my uncle cope up with this disease. And miraculously, my uncle still stays positive, has presence of mind, can still even joke around(!), and basically all the knowledge he learnt from his past years he could still remember vividly. He's actually much good communicator than me! even tho he's just bedridden, he can tell you long stories and has a lot of knowledge about his passion, like cooking. So I'm telling you guys, even tho my uncle has this rare kind of disease, he's still so capable because his mindset is as healthy as ever you wouldn't expect. And I call it miracle from God💯

    #StayPositive
    #StayStrong
    #MultipleSclerosis

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    Staying Positive

    What do you do to stay positive when something is bothering you? Maybe you’re experiencing depression or anxiety. Share some of the things you do to stay positive. Let’s help each other out 😀 #DistractMe #StayPositive #CopingTips

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    Anyone relate?? Sometimes we need to say it like it is

    Whether you’ve been sick your entire life or have been recently diagnosed, your day to day no doubt overwhelms you. The fact is, no one is immune to sickness. And some people get the short end of the stick when it comes to health. Yea, that’d be me. I guess I’m not sure why I’m writing this, but in a way I feel it’s therapeutic. Often times we store all our thoughts and emotions in our head. We fear letting them out will harm us, or make us weak. We fear people may judge us and never understand what we are dealing with.
    Here’s the thing, being sick is lonely. You feel sad more than happy, and long for the good old days as they say. One of the hardest parts of my journey was acceptance. I was in denial for such a long time, thinking my life would go on as “normal”. This thought process just caused me more harm than good. For me, I felt like everyday was a battle with my emotions. I had such grief if I wasn’t able to accomplish something that was so easy before. I was confused and upset.
    #chronic #ChronicIllness #Spoonie #Fibromyalgia #Endometriosis #PolycysticOvarySyndrome #Lupus #IrritableBowelSyndromeIBS #Pain #StayPositive

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    Community Voices

    Something new

    <p>Something new</p>
    5 people are talking about this
    Community Voices

    How to be a mum when you can barely function, totally just surviving.
    How do you manage? #chronic

    <p>How to be a mum when you can barely function, totally just surviving.<br>How do you manage? <a class="tm-topic-link ugc-topic" title="chronic" href="/topic/chronic/" data-id="5b906d9f1d5bfb00980b2488" data-name="chronic" aria-label="hashtag chronic">#chronic</a> </p>
    4 people are talking about this