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    A Funny Meme

    HAHA! 😆

    Sometimes you need to laugh. Especially when it comes to mental health and working. It sounds strange to some, but there are times where you have to focus on the things that really are truthful.

    Such as the photo above, a good laugh about a concept like someone telling you to have fun at work. Sometimes work can be fun, but sometimes it really is not. But! That's OK. Everything happens for a reason.

    You will have #Gooddays and #Baddays but that is alright. Everyday can be just a day, and eventually whatever it is you're experiencing that day will pass. It's often times sad, but other times happy. But regardless of whatever emotion you're experiencing.. eventually things will boil down to just "I am OK"

    So laugh today.
    Cry if you need to.

    Just Be You.


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    It’s been a hard week, but that’s okay

    It’s been a hard week, in a number of ways. For starters, my headaches have kicked up in intensity, and my lack of sleep caught up with me all at once and sleep has become my full time job. This image really spoke to me when I saw it on Pinterest a little while ago. “Grieving the person I should be…” because this isn’t how I thought being eighteen would go. Grieving is a process and as I work through that process, I can let go more and more of that other version of myself that never came to be. Because this is who I am, not that other, healthier, persona I’ve created in my head. They never existed, and she never will. I think part of the grieving process is accepting who I am now, even if it’s not where I want to be. That still means I can have hard days, and today is definitely one of them. But it makes those hard days just a little bit easier.

    #IIH #IdiopathicIntracranialHypertension #grieving #Grief #Quotes #Headache #BadDay #Baddays #CheckInWithMe #chronic #ChronicIllness #chronicallyillteen #chronicallyill

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    Better Days To Come !!!

    Just Stay Positive When it’s Good and it’s Bad !!!!! #Baddays #StayPositive #PTSD #MentalHealth

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    "Times of Trouble" with lyrics - Temple of the Dog- #Depression #SuicidePrevention #Baddays #hardtimes

    A good song to listen to it you are feeling hopeless. And feeling so down that hope is(seems) unattainable. Just ride the wave- get thru it.

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    My strength on the hardest of days

    Oh my boy, he may be a very naughty boy sometimes. But the love, care and support this pup offers me is unconditional. I'd be lost without him.

    #dog #Company #strength #On #Baddays #chronic #illness #m .e #MyalgicEncephalomyelitis #Support


    Ugh. Today is one of THOSE days

    My sleep has been worse than usual because of all the political stuff plus i had a steroid injection in my shoulder.

    I can usually only sllep 45 -90 min @ a time due to Narcolepsy & a brain injury.

    We get together with immediate family (parents, husband, brother, sil & my super cute 5 yo neice and the new baby).

    We do this Sat & Sun.

    Mom asked for us to start anternating weekends to cook (i used to LOVE cooking but really havent in about 10 years).

    Anyway yesterday was my turn. (Only once a month).

    I made something easy. I started slicing and dicing in spurts over a 2 day period & i did online grocery delivery from Amazon fresh.

    I still had troubl with sleep but managed 7 hrs of 12 in bed.

    I just got up and feel like i have the worst flu ever (i dont this is just my new norm..but its the best other can relate to).

    I have hEDS (ehler-danlos hyper mobility) and it attendant GI and disautonomia (hEDS feels a lot like Fibromyalgia & dysautonomia is a disregulated autonomic system where anything your CNS controls can go hawire). Was misdiagnosed with fibro and CFS/ME for awhile as tjose can mimic what i have...infact i could still have them..)

    I just took a breakthrough narcotic (on top of my standard dose).

    Now i have to get a shower & do my hair (which has actually been a creative project for 1 non-imaginary hobby other than reading).

    Time to take nausea meds & pull out the tall directors chair I use when standing is just too much.

    I also haven't been wearingvmy quell device (it is kind of a super TENS minus the contractions that go around calf & helps block pain signals from nerves all over...FDA just made them retract that claim after 4 yrs on market & they can only claim knee but I -and many others- really did get all over benefit from it. I was able to not go up on narcotics and my BTP med usage dropped as did my avg daily pain. They gave a 60 trial with a guarantee it would work withing 30 days. Ceffaly /Cephaly? is like tgat for migrains and Trigeminal pain. I would totally try is if my 20 migrains hadn't converted to migraine w/o headach, TG.

    Anyway. My husband has asked that i stop complaining about whatever is going on with me so i really dont have a friendly ear. When he complains to me about pulling his back doing whatever I kinda just want to flip him off these days but dont want the spoons & trnsion that will cause. It really sucks.

    So drinking some non cafinated tea & waiting for nausea and pain meds to kick in.

    I dont produce enough antibodies either CVID immune deficiency, so in the days of COVID waking up like this is extra scare cause COVID + me = bad outcome.

    Just needed a place that would undrrstand. Did a lot of support boards (moderated one pre tBI) on Narcolepsy & it helped & helping people helped so I'm trying again with this spooniy board.

    Feel free to as ?'s about stuff in profile or comment

    Thanks for the ear
    #Ehlers -danlos #disautonomia #ImmuneDeficiency
    #Pain condition #Baddays