lumbar punctures

I got a lumbar puncture yesterday and it was absolutely horrible. I knew there was a chance it would show up clear, and it did, but I’m so upset. I felt like it was so scary and painful to do, just to feel like we’ve gotten no further. I’ve had a EEG and an MRI. Both clear. I’ve been sitting here just waiting to them to figure out what’s going on and I’m starting to doubt I’m sick. Maybe I’m just crazy. Or incredibly lazy (unintentional rhyme)! I don’t know how to believe myself and I’m losing faith in my mom that she has the right diagnosis.

#ChronicDepression #losinghope #MedicalMystery #LumbarPunctures #MRI #EEG

I had a lumbar puncture on New Year’s Eve after my neurologist suspected the I may be suffering from Idiopathic Intracranial Hypertension. This was my first lumbar puncture and I never asked how long it would take to get the results. If you have, or someone you know has, had this procedure before can you tell me how long it took to receive your results? #IIH #LumbarPunctures #AutoimmuneDisease #LivingWithPOTS #Anxiety #PanicDisorder #Depression #ChronicFatigue #Labyrinthitis #ChronicEpsteinBarrVirus #GastroesophagealRefluxDisease #IrritableBowelSyndromeIBS #PeripheralNeuropathy #RaynaudsPhenomenon #ChronicVestibularMigraine

First post!! I went to the hospital for a #LumbarPunctures today. My neurologist wanted to check if my chronic headache/migraines, fatigue etc is #IdiopathicIntracranialHypertension or really bad persistent #Migraine .

The Lumbar Puncture was unsuccessful. The doctor kept hitting vertebrae, causing pain and twitches down my left side. After about 8 attempts he decided to call it, and has requested another procedure under X-ray guide. This then means another 3-4 week wait. Now I can barely move on top of awful head pain etc.

How do you cope when you didn’t think pain could get any worse?

One thing I hate more than my chronic stomach pain is my post lumbar puncture headache.

I have suffered with #Epilepsy since I was 5 years old, but was constantly told I just need more sleep till my sister did her first aid course and had me go see my gp asking for a referral - turned out she was right. I was 13. No medicines worked. We tried countless drugs from the age of 13 onwards but it only carried on getting worse. #JuvenileMyoclonicEpilepsy also #Photosensitive -epilepsy. Then while in college I started getting a crazy #Migraine and eventually regardless of whatever I took nothing would make it go away. So I slept at home for nearly a month. Once it became better and I tried getting out of bed... BAM! Paralysed. I was rushed to hospital and after doing three wrong #LumbarPunctures they found nothing. The worlds best nerve specialist also told me I was lying. -that day, those words... that lady, I will never forget. Going back alittle - I was in hospital for over three months with this now... at the time for some reason I didn’t think anything of it and just got oncwith whatever. Towards the end, with no help from the doctors there, my dad helped me learn to walk again using their frames and crutches when he would come visit. They sent me home with the diagnosis of #Paraparesis and #Parasesis