I'm new here!
Hi, my name is Wildorchid757. I'm here because I have Ehlers-Danlos Syndrome and was diagnosed 4 yrs ago. I have not accepted it yet.
Hi, my name is Wildorchid757. I'm here because I have Ehlers-Danlos Syndrome and was diagnosed 4 yrs ago. I have not accepted it yet.
Hey everyone, I have been thinking about starting a YouTube channel, mainly to make videos about hacks and tips to living with a Chronic illnesses, but also thinking about doing some vlogging as well To show what it’s really like to be chronically I’ll , would anyone be interested in watching? Or have any video ideas? Would really like to start it but I am scared that no one will watch haha, any thoughts are welcome😊😊 #EhlersDanlosSyndrome #ArnoldChiariMalformation #Syringomyelia #Gastroparesis #ChronicVestibularMigraine #Dysautonomia #AutonomicDysfunction #Anxiety #Spoonie #Vlog #spoonielife #PelvicOrganProlapse #ChronicPain #Hope
Hi, my name is randib. I'm here because I live with chronic pain.
#MightyTogether #Depression #Fibromyalgia #RheumatoidArthritis #AutismSpectrumDisorder #Arthritis #PelvicOrganProlapse
Hi, I’m new here, I’m Samantha from RareResilience where I share my journey with chronic and rare conditions, my fight for survival & justice and I also advocate for others in similar circumstances. I’m a senior psychotherapist and Psychology major, with additional training in healthcare, SEN, functional medicine & nutrition.
I’m here to meet likeminded people, to share my writing & journaling & to connect … connection is what we all need I think 💖💪🏼
#MightyTogether #ehlers-DanlosSyndrome #Dysautonomia #Dystonia #PelvicOrganProlapse #TetheredSpinalCordSyndrome #Scoliosis #PTSD #complexpost-traumaticStressDisorder #Anxiety #Grief #RareDisease
Hi, my name is sarbear3333. and I've been diagnosed with these and many more
#MightyTogether #ManicEpisodes #BipolarDisorder #BorderlinePersonalityDisorder #Depression #Anxiety #ADHD #IntermittentExplosiveDisorder #Addiction #PanicAttack #IronDeficiencyAnemia #congenitalheartdefect/Disease #MentalHealth #ChronicDailyHeadache #NicotineDependence #SituationalDepression #OpioidUseDisorder #obsessive-CompulsivePersonalityDisorder #SocialAnxiety #SeparationAnxietyDisorder #GeneralizedAnxietyDisorder #Arthritis #PulmonaryArterialHypertension #CervicalCancer #SleepTerrors #sleep-WakeDisorders #Bronchiectasis #Recovery #complexpost-traumaticStressDisorder #DegenerativeDiscDisease #Disability #FemaleOrgasmicDisorder #SuicidalThoughts #PanicDisorder #Arrhythmia #PTSD #Migraine #Scoliosis #Hypersomnia #PostpartumDepression #CocaineDependence #Asthma #ParanoidPersonalityDisorder #RheumatoidArthritis #AcuteStressDisorder #polycysticovarysyndrome(PCOS) #Fibromyalgia #BriefPsychoticDisorder #hair-pullingDisorder # #PelvicOrganProlapse #Relationships
Hi, my name is alis0nlaura. I’m new to The Mighty and look forward to sharing my story.
If you have had surgical repair of
#hernia #PelvicOrganProlapse #Prolapse #sui #Incontinence #UrinaryIncontinence #BladderIncontinence
months, or years ago.. and you haven’t been well, it may be related to the #medicaldevice #implant #mesh #tape #sling #Patch #tvt #tvto that was used.
Complications include:
For years, my dr was convinced that my hoof beats were horses. Here I am, diagnosed with these hashtags, wondering what if I had given up? What if I had taken those anxiety pills she pushed on me? What if I had settled for a lame diagnosis with questionable science? What if I had just listened to my dr and got acupuncture? Where would I be? Where would my family be?
It’s not enough for a dr to be dismissive - what if I had given up on myself?
Tenacity may have kept me alive. I’m hoping it’s enough to continue to keep me alive. There is no more room for giving up. Now I fight for my life, I fight for my space in this corner of the world. I dare a dr to question it now.