chronicillnesswarrior

For years and years I’ve had problems with my joints, but the worst ones have always been my hips, knees, shoulders and fingers. Last year I was going to sit with my legs crossed, and as I did so I felt something hard in my right hip grind and I actually screamed. The pain literally blinded me for a good 10 seconds. After straightening my leg slowly, it eased up. But any time I turned my leg or lifted it, that same pain came back with a vengeance.

Naturally, I went to my GP and she and a colleague had me moving my leg in different ways and angles, which really really hurt, and said it was definitely an arthritic pain. They gave me some kick-ass anti inflammatory meds primarily used for arthritis (Meloxicam), and said they’d send me for an urgent x-ray of my pelvis.

A few days later I had the x-ray, even though the technician kept making me move my leg in different angles again.

And a week after that, my doctor called me with the results. Apparently I have something called a hip impingement? There’s a deformity in the ball of the joint that fits into the socket of my pelvis. Like an extra lip of bone. And over the years it’s been grinding in the socket so much it’s worn it down, and now I have arthritis. She said my left hip has a similar deformity but nowhere near as bad.

So, I’ve got to try and take it easy. I’m still going for very slow and short walks to get me out of the house. But it’s so damn frustrating that I have to slow down! And I know if I go against what she suggested, I’m going to seriously pay for it. Ugh.

So, I’ve done a lot of reading in the last few weeks. Yesterday I picked up A Court of Thorns And Roses (ACOTAR), and this morning I was sat in my mum’s room just quietly reading… Until Loki jumped up and stared at me. 😂 I don’t think he approves of me reading instead of giving him cuddles. He’s such a jelly-belly!

Anyway… I hope you’re all doing okay and having a good year so far. 🌺

#ChronicPain #chronicillnesswarrior #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #EDS #hipimpingement #Arthritis #ArthriticPain #InterstitialCystitis #LiverDisease #BPD #ComplexPTSD #Depression #Anxiety #resting #Reading

Disabled and chronically ill folks do not enjoy being forced to give up the things they love to spend their days in bed. #ChronicIllness #chronicillnessawareness #chronicillnesswarrior #chronicillnesslife #chronicillnesscommunity #ChronicPain #chronicpainawareness #Chronicpainsucks #chronicpainlife #ChronicPainRelief #chronicmigraine #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Fibromyalgia #fibrofighter #fibrowarrior #fibroflare #Flareup #flareupssuck #bedbound #housebound #AmbulatoryWheelchairUser

After weeks and weeks of leg and hip pain and some blood tests, yesterday my GP diagnosed me with Arthritis that’s associated with my joint hypermobility (Ehler’s Danlos Syndrome) I’ve just gotta have an x-ray of my pelvis to make sure the bone hasn’t been damaged from the constant grinding feeling in my hip joint when I move my leg, etc.

I’ve been prescribed some kick ass anti-inflammatory medication called Meloxicam and it’s really helping! I managed to tidy my room up and get a nice hot shower (which definitely helped my back and hip). So, now I’m gonna maybe make a cup of hot chocolate and relax while playing WoW.

(Yes, I’m aware my hair looks awful - I’m trying to grow it out so I’m back to my natural colour).

I wish you all a very Happy New Year! 🥳

#chronicillnesswarrior #ChronicPain #POTS #PosturalOrthostaticTachycardiaSyndrome #EDS #EhlersDanlosSyndrome #LiverDisease #NAFLD #BorderlinePersonalityDisorder #BPD #InterstitialCystitis #ic #Diabetes #Migraines #Arthritis #Jointpain #NewYearsEve #Happynewyear

Last night I really struggled to get some sleep. On Friday, while walking from a shop to a taxi, I lifted my left leg to take a step and I felt a twinge in my lower back. Then, when I went to lift my right leg to do the same, I nearly crumpled to the floor as an intense cramp went through the entire of my lower back. I managed to hobble my way to the taxi and got myself home.

I’ve been using heat pads and an anti-inflammatory gel and it’s given very little relief, but I persevered. Then, last night at around midnight I had a POTS episode whilst I was on my way to the bathroom before bed. I fainted and hit the floor hard, according to my mum. I’m just glad I wasn’t conscious when I hit the floor because I can only imagine the pain I would’ve felt.

After the episode, I really struggled to get up, get to the bathroom and get to bed. But I managed it. I took extra painkillers but I just could not get comfortable. I tried lying on my side with a pillow between my knees, I tried lying on my back with a cushion under the curve of my spine. Nothing was working. Eventually, I gave up and pulled out my laptop to do some more notes on my novel.

As usual, Loki was sticking to my side. Like he normally does when I’m unwell or in pain. He came up for lots of cuddles and fusses. Until he settled behind my fan, and slowly crawled up until his head was peeking at me from behind the screen. He looked so cute, I had to take a photo. My little mascot. Somehow… He always makes me feel better. And I feel like he really does love me back.

Anyway, I spent the night just tapping away on my laptop, listening to quiet music while I made my notes and tweaks. I just wanted to show you all how much of a good boy he is. Don’t worry - he was given lots of treats and belly rubs.

#chronicillnesswarrior #ChronicPain #POTS #AutonomicDysfunction #EhlersDanlosSyndrome #EDS #PosturalOrthostaticTachycardiaSyndrome #Jointpain #Fainting #BackPain #cramps #Pain #InterstitialCystitis #BPD #NAFLD #LiverDisease #FattyLiverDisease #Diabetes #Migraines #Cats #Animals #TherapyPet #TherapyAnimal #therapycat

As I said, you all loved my beautiful Loki the other day. Today, he’s been curling up around my feet cus my blanket was too warm for him. I’m feeling much better today - the antibiotics have done their job, as have the heavy painkillers.

Thank you all for wishing me well. I hope you all have a fantastic and easy week ahead of you!

#chronicillnesswarrior #POTS #EDS #NAFLD #LiverDisease #Diabetes #Migraines #InterstitialCystitis #ic #bladderdisease #BladderPain #ChronicPain #Kidneyinfection

So, I’m in the middle of an Interstitial Cystitis flare and possible kidney infection and I’ve been in so much pain with it and I’ve been utterly miserable. Mostly just curled up on my bed with a heat pad on my bladder area.

Loki has been the sweetest kitten/cat. Whenever I’m unwell he does tend to stay close to me. But earlier while I was half laying down, he just shuffled up to me, and laid right across my lower belly, nuzzling me and every so gently padding at my belly. He has completely melted my heart. He’s been doing it all morning. If I get up to get a drink or use the bathroom, he sits and waits and then when I’m back, he comes back and lies across my belly. 🥹

I love him so much.

#chronicillnesswarrior #ChronicPain #InterstitialCystitis #BladderPain #POTS #EDS #NAFLD #LiverDisease #Diabetes #Migraines #BPD #Depression #Anxiety