life-limiting illness

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Scampy McScampFace’s Scamp Life

Confidence is the preference for Scampy McScampface, a habitual voyeur of what is known as—Scamp Life!

After Scamp has been rudely awakened he gets some exercise (in the country). At around 2pm, upon their return, Scamp and Little Brofur have their treats. Then, with full bellies they have their naps. So far, so good, cause I like to nap around then too. It gives me an enermous sense of well-being, know what I mean?


A certain Scamp decides anywhere between 2-3pm onwards that he is feeling more awake; ergo it must dinner time—which unfortunately for him; is 4pm sharp. Thus begins “The Dance of The Scampy McScampface”… only far less sugar plum fairy like, and a bit more hippo 🦛

Scamp starts off his dance in first position; which is to vigorously wag his tail at me while making engaging huffy noises. Second position involves rubbing himself up against my legs that go hand-in-hand with snorts and borks; ad libbed at his descretion. My job is to be a Tender participant in this elaborate jouer à joue which is the Duke’s ritualist way of conveying “I am awake; therefore I eat” (incidentally he is also a big fan of the pork life 😋)

It all culminates in a pas de burrées of sorts with him launching himself into my lap, then looking up at me with his Scampy McScampFace full hope, of which I managed to catch a non Blur-ry picture today.

I’m also pleased to confirm that Scampy McScampFace ate his dinner so he’s far less of a Beetlebum… for the next few hours at least 😆

#Dogs #MightyPets #DistractMe #Laugh #funny #Fun #LifelimitingIllness #ChasingLife #TheDisabledLife #WhatWeLoveMostAboutLife #scamplife #MightyMusic #Music #Blur #Sleep #SleepDisorders #Insomnia

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Grit, Determination, and Sharpie Markers

Yesterday I was recovered from the Horrible Cat Vomit Storm of October 2021 and did well with my new checklist, but without the enthusiasm of Day One. Today I woke up so sore everything hurt, which was exhausting. I still got about half of my checklist items finished. All I cared about was getting rid of the pain. It was a 6 for me—so distracting it was hard to think. Plus my brother stressed me out by dropping clues that he plans to go looking abroad for his fake online boyfriend who I already proved is a scammer. He doesn’t care.

So anyway, yeah. That really cranks up my depression/anxiety/fibromyalgia discomforts. And there’s even more stress that I just swallow daily, so my nest makes a lot of very compelling arguments for why that’s where I should be. I definitely self-medicate with apathy.

But my wanting to break the apathy habit is also for me and my well-being, demmit. I have made my nest the center of my life now for three years!! I have been healing from trauma, sure, but I need more than this for myself. I have more that I want to do, so I am struggling through whatever it takes to reclaim my life—for ME! I don’t want to lose the ability to choose someday.

I just have to keep trying as hard as it takes to make this Apathy Toolkit work better than helping me be productive only every other day. The Daily Checklist needs adjustments. Honestly, trying to shower every single day feels a bit out of reach for me right now. Heh. Just trying to keep it real for the good of the group. I figure that if I force myself to be honest for you then I’ll know I’m not just fooling myself.

I revived an old habit of writing notes to myself in sharpie on my bathroom mirror (It easily comes off with rubbing alcohol or other non-abrasive solvent cleaner.) The picture I posted of it had to be on an angle so you could see the words. First a big red heart that my face appears inside when I stand in front of the sink. Near the bottom it says, “Don’t let apathy own you.” At the top is this: “Have you… -Brushed your teeth -Brushed your hair -Washed your face …today?”

Tell me about your apathy.

#apathy #Depression #lowenergy #Productivity #Success #crash #Fibromyalgia #ChronicDepression #Anxiety #tired #Caffeine #lighttherapy #DepressionSymptoms #DepressionNaps #MajorDepression #SeasonalDepression #Lazy #notlazy #nope #Emptiness #FibroFog #LifeLessons #LifelimitingIllness #getthingsdone #toolkit #apathetic #BipolarDisorder

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Avoiding Avoidance

OK, another week went by. This time my efforts to get things accomplished on my To Do list were much more successful in spite of my cat’s most compelling recommendation to cover my eyes and nap. I like to think that creatures napping (especially warm fuzzy ones) emit a kind of powerful pheromone that makes anyone who is exposed want to curl up and sleep near them. I call them “sleepomones” and I battle them daily. When you look at Hobbes in the picture you can sense the difficulty with resisting him. This isn’t science, by any means, but it amuses me and gives me a “foe” I can manage. 😃 (1. Avoid cues to nap if you have things to do.)

This week I feel like I did resist the sleepomones and the lull of apathy and am pleased with the results. I got a lot of cleaning done, was consistent with my self-care practices each day, and invested a lot of energy in my family members (my three grown children and my brother.) I discovered, however, that I overspent my limited energy on them. That’s ok! I love them and my children made good use of my energy for positive things in their lives. (2. It’s OK to overspend your energy on something positive, but don’t let it keep derailing your progress .)

My brother is more of a bucket with a hole in it that I can never fill. He has numerous mental and physical health problems that easily overwhelm him and me. So I had to draw healthier boundaries to protect myself from being completely drained by him. How? I stopped trying to help him every time we talk (daily) and just focused on loving and appreciating him. He has trouble understanding many basic things about… nearly everything. He hates it when people tell him what to do though. Instead of attempting to convince him what behavior to change, I started saying things like, “I am pretty sure that is not the way to manage your medication when you don’t think it’s working. Your doctor or any pharmacist can help you with that.” Then I drop it unless he asks me directly for more information. (3. Identify areas in your life that are always drain your energy and strategize to protect yourself from it.)

I have more to say, but need to go empty the dishwasher and make lunch. 👍

#apathy #Depression #ChronicDepression #DepressionNaps #Anxiety #Fibromyalgia #FibroFog #LifeLessons #LifelimitingIllness #getthingsdone

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Have to remember this

Life is tough right now, but I really have some amazing people in my life that I don't know what i would do without lately! #ChronicIllness #Deafness #Asthma #LifelimitingIllness


Help. My parents want to force me going over my limits! #help #GettingHelp #Parents #LifelimitingIllness #limits #JuvenileIdiopathicArthritis #Pain

My parents and I recently had a pretty heavy discussion about me not doing enough exercise. They think I should just go through the pain and it will get better and I could do more without being exhausted or in unbearable pain. I know that it won't and I also know that I already do more than I should every day to just live a nearly normal life. But it doesn't matter what I say, they think they are always right. Now I convinced them to discuss it with my therapist, kinda because I don't want to face my parents alone.
Nobody needs to tell me that exercising with a chronic disease is good. I know that, I hear it everyday. But I also now that I can't take it for long to ignore my limitations. I will just pass out at one point. It will be too much pain and exhaustion.
I really need your help. You can just comment things from your experience, from others or what you read or heard about this topic (pls no "exercise is good" comments) and I would be pretty thankful. The best would be links (articles or videos) that could help. I just need more things (coming from others) that I can say to my parents because apparently it doesn't matter what I say. #ChronicHealthConditions #Exercise #Pain condition #arguments

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Mental Wellbeing

I am on a #Mission to help people achieve their #greatness smash what #Mentalillnessfeelslike because that feeling is your greatest lesson.

Trust me

Why not have a listen to my podcast and let me help you break that #LifelimitingIllness

it not #lifelimiting its #ligeaffirming

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Complicated life #Selfesteem

One fact of life about me is that I do not drive. I rely on my husband to get me where I need to be. I used to drive but that was not until
I got into a car accident. Every since then I have adapted to have car anxiety. I’ve accepted a car free lifestyle. Because too many car wrecks happens and it seems that they are the highest caused of death. It makes me depressed to not have the ability to get behind the wheel again. Especially when I live in a small town with not that many transportation options. I’d love to live in a car free friendly city like Chicago or New York Where pedestrians taking the bus is the norm. Sigh... but I can’t afford to relocate. #LifelimitingIllness #sad #DepressionAndMentalHealth

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The feels

Constantly feeling discontent, empty, restless, hopeless, anxious, unmotivated, aimless, tired and sick of being sick... I don’t want to just exist. I want to live my best life! Can’t see the light at the end of the tunnel. Been too long.

#Depression #Anxiety #LifelimitingIllness


letting go of my prior self. #NotDoneYet #LifelimitingIllness

I know I cannot let this go on any longer. I am sure it’s not good for my health. I’ve thought I had come to terms with my illnesses many times. This circle of sadness needs to be put to bed and not brought out any longer. I need to be stronger, keep going, fight and no longer look back.

But I doubt it will happen. I’m sure all of us have something we just can’t let go; unfortunately for me it’s my prior self.
Just another part of this chronic illness life.