Adrenal Insufficiency

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    FREE Conference on Adrenal Insufficiency and Cushing's Disease

    During our conference in Portland Oregon March 30 - April 1st we will have endocrinologists speaking on Cushing's, Primary AI, Secondary/Tertiary AI, and more. There will also be experts covering topics such as:


    IEP/504/Health Plans

    Health & Nutrition

    Advocacy and Legislation

    Any endocrine, thyroid, or growth hormone issues

    Working with a chronic condition

    Creating Community

    Learn more and register

    #AddisonsDisease #AdrenalInsufficiency #PituitaryTumors #Panhypopituitarism #SeptoopticDysplasia #Adrenoleukodystrophy #CongenitalAdrenalHyperplasia

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    Flying into the new year like…

    What can I say but that I have two very impressive puppies that appear to hover rather than walk or run! Cuteness aside, I’ve been very lucky the past few days to have some increased energy since I switched from adrenal support to pregnenolone, which allowed me to make the most of the other half’s remaining days off work, so that I was able to rally and go walking with him and the dogs.

    Nothing makes me happier than going for these walks, because for a moment in time, every other worry is suspended and I just get to be me—and it’s a glorious thing to just be.

    #Dogs #ForTheLoveOfDogs #MightyPets #ChronicFatigue #AdrenalInsufficiency #AdrenalFatigue

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    Who’s in Chill Mode?

    Hey Mighties! Just poppin in to see how my favorite people are doing. Are you chillin or what? I’m taking some chill out time before our Friday Self-Esteem Workshop. They have been going really well. If you haven’t attended one and could use some confidence boosting tips, we’d love to have you. On another note, my skin is being absolutely annoying and makeup has never really been my thing. Might be time to re-think that.
    Anyhoot, here’s smiling at you Mighty. Wishing you a well weekend!
    #MightyTogether #CheckInWithMe #MentalHealth #PTSD #Anxiety #Depression #ChronicIllness #ChronicPain #HidradenitisSuppurativa #PeripheralNeuropathy #HypothyroidismUnderactiveThyroidDisease #AdrenalInsufficiency #Eczema


    Super Excited!

    Hey Hey Hey Today is the Day Mighties. So nice to share this space with such a supportive community. I’m very excited to be meeting with you in a couple of hours. For anyone who may be having a not so good day, I totally get it. Sending you comforting vibes! See y’all soon! #CheckInWithMe #MentalHealth #MightyTogether #Anxiety #Depression #PTSD #HIVAIDS #PeripheralNeuropathy #HidradenitisSuppurativa #AdrenalInsufficiency


    Good Afternoon my Fellow Mighties #Husbands #Wives #Depression #Anxiety #maritalissues #ChronicIllness #Lonliness #AdrenalInsufficiency

    Hi there everyone! What’s everyone doing for Labor Day? Hopefully you all are having a great weekend and are feeling good! Me? Nope! Haha expected tho! I think I caught a summer cold! Heads stuffed and have zero energy …. But feeling better than yesterday! Husband left to go down to pick up our 23 yr old son (he s moving home after college then taking a yr off to get his shit together” (which he s not even attempted to do!) Im walking on eggshells as to see what this new chapter will bring to this already chaotic household! Husband won’t back me up on issues “Son you need to appt for jobs , son you need to help a little around the house “ you get what I mean….. it s all on my shoulders to be the “bad guy” ….. been feeling ok lately …. But afraid all the stress of this will throw me into another downhill spiral (whether it be mentally or physically- I do not want to go into adrenal crisis again!!) well …. That’s all I got for today my people!! Thanks for letting me vent a bit !! Im sure within a week I’ll be back to vent some more! Haha have a great weekend!!


    Here we go again …..

    Good evening everyone….. sorry I haven’t been in here posting lately…. Health has been a shitshow lately and to be quite honest I’m just freaking tired… tired of all of it . Now I know ! That’s not very positive not very encouraging and not very uplifting. And for that I’m sorry!!! Headed into yet another adrenal crisis last nite …. All the while there husband is too tired from his golf nite to make sure I’m ok…. A couple questions “did you take your med s?” And after almost passing out and taking my bp “whats it reading?” Then back to snoring he goes …. So I guess tonites question is how do you all “deal with it” ? How long do you tell yourself “zig it s on”? Like I said I’m freaking g tired …. Sick and tired of being sick and tired! #husbandsUGH #AdrenalInsufficiency #tired #ChronicDepression #ChronicPain #AdrenalInsufficiency #Hormones


    I’m new here!

    Hi, my name is CynthiaKersh. I'm here because I'm struggling and need support. mostly prayers

    #MightyTogether #Anxiety #Depression #cptsd #Grief #Suicide #mcas #adrenalinsufficiency


    Low cortisol and Endocrinologists

    I’m posting this to see if I can get some helpful feedback. I’m trying to advocate for the best options to live my best possible life with adrenal insufficiency.

    I switched endocrinologists about two years ago because the one I’d been seeing for almost 10 years had me taking 7.5 of prednisone at bedtime. I was often miserable on this schedule and each time the prescription was refilled I got a lecture for having taken extra. Still my complaints about not feeling well fell on deaf ears. (I now understand we stayed with that endocrinologist far too long.) Once I started seeing the new endocrinologist she immediately switched me to hydrocortisone during the day. It was a DIFFICULT switch and my body kept trying to crisis during the night. At some point during the transition my dose was up to 60+mg of hydrocortisone. Sometimes it felt like I was narrowly avoiding hospitalization still.
    I was also started on Fludrocortisone, but so far can only tolerate half of a .1 tablet every other day or my blood pressure gets way too high.
    For the last year I’ve been regularly meeting with a physicians assistantthrough the endocrinologist office and she’s been trying to help me work on a plan to taper my maintenance dose to something more sustainable. I’m currently taking 15mg @ 5:00 am, 10mg at noon , 10mg @ 6:00 pm. I’ve probably been on this particular schedule for a month or more and I’m starting to feel pretty crummy mid morning and late afternoon especially. I had labs drawn and my 9am cortisol was 1.6, and my ACTH was 158. The physicians assistant has recommended taking 5mg. from my 6PM dose and adding it at 9:00am. I am struggling to see how that will help me? I know this post is kind of long. I’m trying to decide what my next best advocacy step is? Thanks! #addisons #AdrenalInsufficiency


    Spring Fever/Real Life Envy

    I've been having a bad case of "real life" envy with our sunny, warm early days of Spring. Spring is here. I'm seeing people's activities on these first sunny, warm days - starting work on projects, Spring break trip plans . . . Honestly, it breaks my heart. Not because of others, but because nothing changes for me. It doesn't matter what Season it is. It's all the same inside. There's nothing in my future except more decline. I've managed a short sit out on the deck on our sunny days when the wind isn't so brisk. I enjoy the sun, but two things make it wistful for me. First, just feeling so weak and ill I can barely sit there so it's just a tiny consolation not to have let the opportunity to get outside for a few minutes totally escape me. Second, it's always longing for more. I want to feel well and be able to enjoy Spring and do things that people do in Spring. I love Spring, but it doesn't love me. I stay sick with seasonal allergies all Spring even with meds and mask wearing. Then by mid June, if not before, it will be too hot for me. So I want some Spring enjoyment now. #ChronicFatigue #mitochondrialdisease #AdrenalInsufficiency