cluster migraines

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Im suzy im 48 and just reading what we all go through on here helps me to understand that its all real no matter hat people say here you a understand

#Fibromyalgia #ClusterMigraines #Stress #Anxiety #stressincontenance #brittleastma


Seeing this site for first time, hoping to find help after years of prescript meds; healthy eating. I've had Migraine for 3 days, w/out relief.


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Shopping I'm out out #CheckInWithMe #DistractMe #Anxiety

Hello Mighty Family n Friends

I'm out out eek

I've finally left the confines of my home and little community of the park, and been out for a coffee and Sandwich with my Neighbour/friend.

Had a look around the eclectic(probablyspelt wrong)/antique store it's huge. There's so much space . No problem with social distancing here.
My friend has a space here she sell a few Teddys and Jewellery bags etc.

This was the last place I Went before lockdown. Seems very appropriate it's the first real place I went to coming out of my Shielding too.

Strange thing is, I wasn't anxious at all going out with my friend at all. She has been waiting a few weeks since July 6 to take me out. But because I 'popped' my hip out of place last month we've had to wait till I could walk more comfortably with my stick.

I was fine, that is till I walked back in my front door.

BOOM anxiety kicks in.

Why does it do that.

Anyways how are you today?
What's you day been like !!!

Love light n big hugs Tj
🥰🤩😎😍😘😏😳🤪🤯🤤🙄🤗🙏🐕💩💚💞Oh yay they poo'd on the floor in protest of being left . Even though I left music on. Either that or they didn't like the music channel I put on!! 😅🤨😤😬😷🧐🙉🙊🙈

#RareDisease #TrigeminalNeuralgia #GlossopharyngealNeuralgia #ClusterMigraines #ClusterHeadaches #Hope #Love #Selfcare #Bekindtoyourself #MightyTogether #NeverAlone #ActsOfKindness #neighbours #52SmallThings #Depression #RacingThoughts

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It's Saturday #Goodmorning

Hello There Mighty Family

My sink is full of dirty dishes again
I do wish I lived with someone again so they could do the dishes.
It is always my turn!!???!!!
I really should have thought this one through properly before my youngest child and I went our separate ways. Mmm.
I so hate washing up 😅

How are you guys today.
Do you hate doing chores too?
What is your worse chore to do?
Is it the dishes or something else?

I got a phone call yesterday from my doctors office asking me to go in for a blood pressure check up next week. So after 3 months in lockdown. Eek. I have to go out and drive my car. At least I'll be the only one at the drs office . Temperature check and wearing a mask.
So my anxiety is oh sky high ha ha.
But as of last week I am allowed out once a day for exercise but haven't worked up the courage to go out. So now I have to go drive my car to give it a run good around First.
So it doesnt conch out on the way to the drs.

I know a lot of people will feel like me after a long time in lockdown. The first time going out. Scary stuff. Full on anxiety.
Oh well
Love n hugs Tj
😳🥶😱❤😷😍😁😀🙃🤞🤞🤞🤦‍♀️🙃 #Doctors #BloodPressure #dishes #TrigeminalNeuralgia #GlossopharyngealNeuralgia #ClusterMigraines #RareDisease #Family #Lovenhugs #Bekind #Anxiety #PanicDisorder #Kindness #NeverAlone #MightyTogether

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Morning All #sundaygiggles #Giggles #laughterisgoodmedicine

Good Morning Mighty Family

Thought I'd start the day with a nice giggle

How are you all?

I've been suffering with my face a bit, so been holed up in my bed with my pups or on my sofa with my TV remote. 😁 plus it was VE day anniversary so I watched the celebrations and the veterans on the TV. Listened to all the old songs by Vera who is now 103 . Wow.
So I had a nice few chilled de-stressed days.

Sometimes it's just What your body needs.
No virus news

A rest A sofa day A pups day
Oh and I made cupcakes
And yesterday bread too.
My neighbour kindly cut my grass and the bread was for her and the cupcakes for her daughter.

So what has your weekend been like, been up to anything or have you been chilling like me?
Have you been helping out any of your neighbours like mine have?

I'm so grateful that I have such kind neighbours 🙏❤🤝

Much love Tj

#TrigeminalNeuralgia #GlossopharyngealNeuralgia #ClusterMigraines #Bekind #checkonyourneighbours #Lovenhugs #morning #Selflove #Anxiety #PanicAttack #ChronicIlless #Kindness #FatherThighs #GigglesAllRound


Does anyone else have a #reaction to #PrednisoneTaper where their face breaks out all red and hot like they have sunburn?

Whenever I get #sick which is a lot, I get a #PrednisoneTaper to help me get better and when I am having a #ClusterMigraines headaches, they give me a #PrednisoneTaper as well so now I am having more of a #reaction to it than I used to and my face is #breakingout causing me to look like I have massive sunburn on it. Does anyone else experience symptoms from it?