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My undiagnosed illness symptoms
Here are my symptoms at the moment:
Weight gain
- Previously I was always on the thin end of the spectrum now on the overweight boundary
- Have been passively been trying to loose weight for 18 months (usually I barely have to try to loose weight)
- Average exercise 30-60mins/ day
- I look pregnant
- None of my clothes fit anymore
Brain fog
-Can’t concentrate
- Poor memory
- Feels sludgy, no smooth thoughts
- Almost constant headache
Frequent illness/ infections
- Getting ill once a month with a cold/ flu something like that
- Have developed nasal polyps as a result
- Recovery slow avg 2-3 weeks which means I’m ill 50-70% of the time
Absolutely exhausted
- Could sleep for England Sometimes struggle to get to sleep
- Can easily sleep well over 12hrs but up to 24hrs at a time
- Difficult to get up in the morning, everything heavy
Loss of libido
- 3-4x per week down to 1x per month
Nipple discharge
- Started in January 2022
- Can be clear, milky or clear with yellow in it
- Often spontaneous after a shower
Numbness and tingling in hands and fingers
- Palm of right hand feels like ice is being rammed into it. Almost feels like the nerve is exposed and cold but it doesnt hurt and there’s not anything I can find that helps
- Left hand pinky and ring finger often go numb
- Often comes in waves where it will be almost constant for a few days or weeks then subsides for a bit
Temperature sensitivities
- Often too hot or too cold and struggle to get to the right temperature without swinging too far the other way
Loose, clicking joints
- My ankles are always giving way and often hurt for days after a particularly bad roll
- Many joints click when I move and I sound like a 1 man band, in particular my knees
- The arch of my right foot clicks but I don’t think there’s any joint or anything there to click?
Skin changes
- Lots of bruises that I don’t know where they came from
- Spots particularly on chest also more acne on my face than I had during teenage years
- Fragile skin that tears if I take a plaster off
- Purpura and pietache
- Stretch marks on my sides and thighs
Bowel changes
- Swing between constipation and almost loose/ diarrhea
Hair thinning
Slow healing of wounds
Recent additions
- Longer, heavier periods (14 days and bleeding through onto clothes started 6-9 months ago)
- Twitchy muscle thing
- Can feel blood in my legs
- Intermittently feels like I have a UTI for a few hrs then it goes away
- Bone in my lower leg hurts (both sides)
Test results
- Normal pituitary MRI
- Nasal polyps found on MRI
- Normal ovaries (NOT PCOS)
- mild anemia which worsened with heavier periods
- Normal WBC even when ill
- High IgA and IgM with normal IgG and recent EBV infection
- Negative ANA
- intermittently elevated liver enzymes, negative liver antibodies
- Negative HIV
- TSH mid of normal range, T4 on lower end but normal
- CRP normal, ESR borderline
- high Phosphate swings between high and low but usually low and rarely normal
- Intermittently but usually high estrogen, DHEAS, testosterone, cortisol, LH
- Low good cholesterol (slightly), all other cholesterols are normal
- Normal vit D, platelets, urea, electrolytes, albium, calcium, HbA1C, B12
If anyone has any suggestions of things to look into that'd be really helpful.
#Undiagnosed #chronic #ChronicIllness #chronicallyill #searchingforanswers #Gaslighting #Answers #Diagnosis #Testresults #symptoms
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