warriors

The problem with having severe mental illness and trauma, or really any disability for that matter...

If you don't act "disabled enough" in public, people assume you're fine and should be functioning just like everyone else... If you're able to hold a conversation, or go to a social event, or work a job, or go to the grocery store, or clean your house, even part of the time, people assume you're absolutely fine and faking/exaggerating your symptoms. Even if I can do the task once and fail the next ten times, people think because I did it once I'm 100% fine.

But if you act "too disabled" people think you're "crazy" and a burden and want nothing to do with you. If you're suicidal, out of control, crying, self-harming, having flashbacks, getting angry for "no reason", canceling plans, unable to work, can't keep up with responsibilities, can't go out in public, can't clean, or can't socialize, people get tired of you, ignore you, get mad at you, blame you for your symptoms, and don't want to be around you.

This also applies to physical and intellectual disabilities and chronic illness. For example, being able to walk. If a person in a wheelchair walks once in a while, they aren't "cured" or faking it or not trying hard enough, they're still disabled! Disabilities don't present in the same way every day. Some days I can go to an appointment and then clean for six hours and be absolutely fine, and some days, like today, simply opening an incorrect bill will trigger a severe and disabling meltdown for several hours. We have good days and bad days. We are trying harder than you can imagine. Please understand and be patient with us.

Nobody is faking their trauma or disability. Nobody is exaggerating their symptoms. Nobody is pretending as an excuse to avoid responsibility. We are doing the best we can. We need compassion and understanding from those around us. We're trying so hard. Every day is hard for us and we're doing our best. Please try to understand.

Please feel free to share your thoughts and/or experiences with us. We are here to support one another and lift each other up.

Thank you all!

#MultipleHealthChallenges #invisableillness #Depression #Anxiety #youarenotalone #mighty contributor #warriors #Fybromyalgia #Gastroparesis @moshe222mhc

Very painful. I've tried everything
from #botox to #interstimImplant #
Insomnia #westicktogether
#InterstitialCystitis #warriors

Im up to battle my pains alone…I can take a few pain killers and others… but that would take away my days and leave me asleep for a few days too. I don’t want to sleep my life away…don’t like to not be able to function and feel sleepy all the time too. To all my fellow night warriors-let us not grow weary and cheer each other on because no one else knows of these battles we deal with but us! Fighting!! I hope some of you warriors are able to sleep tonight at least… #warriors #FamilialHemiplegicMigraine #IBSD #ChronicPain #Fibromyalgia #Neuropathy #BackPain #insomia #AtrialFibrillationAndStroke #ChronicMigraines #chronic

Wanting to know if anyone gets these. Orginally I use to get these muscle spasms that I think are in my arms or legs. Now in my #hands as well
They are extremely #painful and tend to happen when I am extremely tired, hadn’t slept or needing sleep.

Now they seem to be happening more frequently and violently. I may be on the couch watching tv and all of a sudden my body will violently #Jerk . I may be holding my cell phone and it flies out of my hands (this happens often).

After it happens I’m wide awake because it is extremely painful.
It reminds me of like when you #fall #asleep and you dream that you fall. You wake up because your #body jerks but it is normally not painful.

It’s not the same as when you get a #Muscle spasm in your #back or #legs it’s more like the #whole #body #spasms . Does anyone understand what I’m talking about??? Or get this feeling? Thank you #Gentlehugs #warriors