Adrenal Cortical Carcinoma

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Adrenal Cortical Carcinoma
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    Community Voices

    I am going to therapy on valentines day #MentalHealth

    So Today I had a therapy session in which I disclosed some details of me and my friend Amber ending our friendship. We have not spoken since, I would be lying if i said this was easy. I am getting better and I am praticing letting go and all that fun stuff (I.E. Meditation, Breathing,Affermations, Asking for forgivness). At Nights are probably the worst, my want to message her is high during this time. It is not like that is easy either, I have a extra acc that I made awhile ago and It has her added. I have tried to talk to her but she has just read my messages and not responded. I am guessing I this is a clear sign that I should let her go. At the same time her friend reached out to me to check in on her clearly not knowing what happend between us. Once I let him know and all was done, he seemed willing to ask her if she was ok with the idea of talking to me again. I have very little faith any of this will work and there is alot I am leaving out but I hope this has formed a general idea of the situation. However, I say all this to say that I am going to be having therapy on valentines day and I am a bit exited, is that at all weird?

    5 people are talking about this
    Community Voices

    Bpd fp

    My fp said something kind of hurtful to me today idk if it’s acc something hurtful but it made me feel kinda weird. I met up with him after a month of me cutting him off, he followed me a month after and I gave in. Today we went for walk on a trail and we were talking about how I cut him off and I wanted to tell him why, he is aware that I have bpd and I told him he was my fp and tried to educate him shortly after I cut him off. But today he said a part of him thought it was cap that I was his favourite person bc I cut him off so abruptly, it made me sad bc it was clear that he didn’t really pay attention when I tried to send him videos about it. I tried to explain it but it just made me feel upset and now I’m thinking about it again. Do u think I’m overthinking?!

    3 people are talking about this
    Community Voices

    This morning the Fibro pain has again reared its ugly head- I hate when it starts my day,instead of ending my day( tho that's not nice to be hurting at bedtime,either!). Guess it's the below freezing temperature that's got it going. Don't you( those with fibro) just hate it when the fibro takes over even Before the day starts? It over comes the arthritis,the swollen feet & lower legs,the fitful sleep from the nite,and tired mind from having to deal with it & everything else on a daily basis. Even the pretty sunrise this morning gets hit. Big Sigh. Oh well,such is life when you are used to hurting All Over from an Invisible Disease. #Fibromyalgia ,#RA ,#oa ,#PTSD ,#GAD ,#Bipolar 2,#GERD ,#Insomnia ,#high Blood Pressure,#Allergies to most Everything,#sinusitis chronic,#Teeth problems( likely from meds been on for so long,acc.to dentist),#"covering" how I really am feeling,#bad dreams that carry over into the day,#restlessness ,#So many Meds,#dry Eye Syndrome,#Dermatitis -chronic,#Headaches ,Short term memory loss left over from ECT treatments,#Fibro Brain Fog,#sad ,#Overeating when illnesses take over too much,##Poor Self-Image,#Stagnant motivation,#chronic Talking to Myself-even Out Loud,#Talking & writing too much,#worry ,#Thinking of others instead of me,#people Pleaser,#Procrastination ,#Poor money management,#Ignoring important signs & Symptoms.

    12 people are talking about this
    Kelsey Batson

    How Living With Cancer Can Change Your Life and Dreams

    There is comfort to be found in so many things when you are a human. However, the expanse of those things seems to shrink when you are a cancer patient. And yet we go on. The comfort of a big travel-themed dream. The comfort of familiarity in skiing the same slope that you have skied since childhood — although you know it ends in a cliff drop. The comfort in asking for small favors. These are all very much human, and become very much out of our reach when we are sick for a month, two months, three years and finally over seven. And yet we go on. From our big dreams, we have to release them slightly from the immediate to say “hopefully one day” rather than going through with our plans to walk the Camino de Santiago de Compostela, one that we had been planning on for over a decade with a close friend. We say “oh, maybe next week” when thinking about a potential walk or hike or bike ride with a partner. Anything to keep that hope of adventure alive without telling ourselves that reality is, in fact, stronger than our dreams or wishes. And yet we go on. Our running, something in which we found so much comfort with the repetition of steps, the breaths that rushed in and out as if unbidden and instead because they were supposed to – that comfort is replaced by a familiar book or many-times played record and the thought that “I will get back to running someday, when things get better…” And yet we go on. We still maintain the words of “someday” and “this too shall pass,” smiling through gritted teeth because we know that we will likely have to wait many more months to fulfill our dreams and do not wish to settle for less. Luckily, some of that comfort does come to us easily, when we can get lost in the words on a page or a slow walk along a familiar road. The routine of treatment or the familiar “I am here if you need me, just call” said so many times by friends who are sometimes well-intentioned but still unaware. Our adventures are replaced, you see, by both the comfort that is required in order to adapt, and by patience required by that comfort. And yet we go on. Our “new normal” replaces our everyday. We begin to accept, because we have to, that we will never have children, never climb K2 (which likely would never have happened regardless, let’s stop kidding ourselves), and may never again visit the tops of peaks with our skis, faces primed for the wind and turned towards the sky to take in the feeling that we were, once, on top of the world. With great loss comes even greater acceptance, although the process is slow and terrible. We still go on. We begin to notice the joys in the little things: the laughter of a child in a park, the floppy ears of a new puppy, the delicious new food or drink, the continuous growing in love. We remember our dreams as “some-days” and look forward to our tomorrows, whatever they might hold. We feel loss, yes, all of the time. But we also feel grateful to feel at all. And when we dream, we are right back on that mountain, wind whipping our faces as we turn and fly down, invincible. We always go on.

    Community Voices

    I’m so tired of myself and these mood swings ruining shit

    <p>I’m so tired of myself and these mood swings ruining shit</p>
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    3 Ways You Can ‘See’ Someone Has Experienced Trauma

    Post-traumatic stress disorder (PTSD) and complex PTSD from emotional and psychological trauma are often considered invisible conditions. The invisible nature of these conditions can lead to being overlooked or under-considered when survivors visit general doctors and specialists who lag behind in trauma-informed practices. In addition to the effects of trauma itself, survivors are often stigmatized by those who mistakenly believe symptoms are “all in their head.” Thanks to the work of researchers and professionals, however, great strides have been made in helping the public understand the physiology and neurobiology of trauma. Experts such as California’s Surgeon General Dr. Nadine Burke Harris and psychiatrist Dr. Bessel van der Kolk, among others, have linked the physical symptoms of emotional and psychological trauma. When a survivor has been carrying the weight of an invisible illness, like PTSD or complex PTSD, it can be a great relief to discover there are tangible, measurable effects of trauma in the body. When survivors and their care teams are able to “see” the issue, it can often lead to more effective solutions for treatment. Here are some ways you can “see” the effects of trauma : 1. In the Eyes Cardiff University and Swansee University researchers recently released a study that looked at the pupils in the eyes of trauma survivors, which can be measured when shown images of stimuli. The pupils of trauma survivors showed an increased response when looking at both threatening and non-threatening images. In general, trauma survivors tend to take in more sensory information than the average population, which can often lead to a whole host of other issues, including overwhelm and fatigue. There is also a link between high-sensitivity and trauma. 2. In the Brain Brain scans can reveal a number of insights as physical “proof” of trauma. In trauma survivors, it’s common for experts to observe a number of brain changes in several areas of the brain. An overactive amygdala, which controls the fight-flight response, means a survivor can be in a state of constant hypervigilance. A weakened prefrontal cortex (PFC) makes it difficult to concentrate, and an underactive anterior cingulate cortex (ACC) means emotional regulation is more difficult. 3. In the Body In addition to psychological symptoms, including depression and anxiety, there are a number of physical ailments linked to trauma as well. Chronic fatigue, fibromyalgia, other autoimmune diseases, migraine, high blood pressure, night terrors, stomach ulcers, irritable bowel syndrome, and polycystic ovary syndrome (PCOS) seem to occur more often in trauma survivors. Trauma is one potential trigger of fibromyalgia, for example. It’s believed almost half of all men with combat-related PTSD also meet the criteria for fibromyalgia, a chronic illness that puts your nervous system into a hypervigilant state, causing chronic pain, fatigue and other symptoms. In addition, 64% of nearly 14,000 people diagnosed with fibromyalgia reported they experienced trauma as a child in a survey conducted by The Mighty. Treating Physical Trauma Symptoms While not all health issues are trauma-related, it is worth a deeper look at the root causes of these symptoms if you have a history of trauma. If you suspect trauma is an underlying cause of your physical ailments, it’s important to find health care professionals who are well-informed on the latest research on trauma-informed care. Depending on where you live and your level of access to health care, you may need to search outside of your immediate area to find the right doctors or direct your health care team to further information to support you. The Adverse Childhood Experiences (ACEs) Study is a great place to start, and “The Body Keeps the Score” by Bessel van der Kolk is also an excellent resource to understand the connection between emotional trauma and physical pain. Final Thoughts Finding the right support for trauma recovery can be a harrowing experience on top of an already challenging condition. Trauma survivors often need a host of medical doctors, psychiatrists and therapists working in tandem to find the right solutions. Other “alternative” therapies, such as diet changes, massage, yoga, acupuncture or tai chi, may also be of benefit. It can require a lot of patience and trial and error to find what works, but relief is possible. Often, the first step lies in acknowledging that the trauma is measurable and real.

    Community Voices

    to express my unstableness

    I chose to have The Mighty acc to post my thought without being judge. It makes me comfortable and fell belonging to a group of people like me.

    Community Voices

    Child Loss: Why I Want Another Child After Losing One

    I lost my daughter Braylee on December 6, 2015. I had her when I was 18 years old. She was diagnosed with agenesis of the corpus callosum (ACC). ACC is a rare congenital disorder in which there is a complete or partial absence of the corpus callosum, the area connecting the two hemispheres in the brain. Hers was completely missing. Doctors told us she wouldn’t be able to reach “normal” milestones or have a normal lifespan. I didn’t want to believe it. She had to have a trachea put in at a year and a half old. I never heard her voice again, but she always had a special way of talking to me. December 6, 2015 was the last time I held my baby, and I remember every minute of it like it was yesterday, just like I remember holding her for the first time. She would have been 3 on February 23. I loved being a mom, especially her mom. Being a mom was the only thing I absolutely loved doing. Being a mom was the only thing I was ever good at in my eyes. She passed away two months ago, and now I want another baby. I’m sure some people might disagree with it, but here are my reasons why I want to try for another one. 1. There is a 2 to 3 percent chance the new baby will have the same condition my daughter did. Yes, I’m terrified of something happening. No, I won’t love the baby any less. We didn’t expect Braylee to have the condition she did, but we didn’t love her any less, and we tried our hardest at everything we could. 2. No, the new baby will not replace my daughter. Nothing will ever replace her. She was my first child, and we went through hell and back together. We will always have a special bond, and she will always have a special place in my heart. 3. Yes, I am still grieving over the loss of Braylee, and there might be a slight chance I do want another baby to help fill the emptiness. I had her when I was 18; I didn’t go to college parties and what not like other people my age often did. Now that I am 21, I still have yet to go to the bar since she has passed, like other people my age often do. The thing is, when you have a child, you do grown-up stuff and family-oriented things. So that is what we did, and we still do that to this day. When your mind is set like that for three years, it’s hard to break the habit. We already missed out on a lot, and I’m not going to change it now. Missing out on those things was worth it. 4. We’re a family. Braylee will not be forgotten. Her brother or sister will know about her. They will know they have a big sister up in heaven looking down on them. I will talk about her and her condition and how strong she was to them as they get older. They will be proud to say they have a big sister even though she isn’t here. She will always be in our hearts and with us wherever we go. Pictures will still be all over our house of us together, and I will try my best to make her included in family pictures. This is our life. This is our family. If this is what we want to do, please support us. Just know, I will not be replacing her. We want to be happy again. We want to live our lives as happily as possible. After losing her, there has been emptiness there. The stress and depression has taken over us. In my heart, I believe this is a way to heal.