Adrenal Cortical Carcinoma

Hi, my name is Sstaves. I'm here because

#MightyTogether #Depression #Anxiety #AdrenalCorticalCarcinoma #AdrenalInsufficiency #AdrenalCancer

Hi my name is Kara Simone and I wanted to share my story. I got diagnosed at 4 years old with Agenesis of the Corpus Callosum after having a seizure and subsequently getting an MRI. I got diagnosed with ADHD in middle school and Generalized Anxiety Disorder in my early twenties.

If you don’t know what Agenesis of the Corpus Callosum (ACC) is already, it is complete or partial absence of the part of the brain that connects the two hemispheres. In some cases, ACC can be accompanied with other brain anomalies. It ranges in severity. I have Partial ACC and my case is mild, it can affect people in different ways.

Also, I was diagnosed with Mosaic Turner Syndrome at 16. A somewhat traumatic appointment with an endocrinologist and a geneticist around that time revealed problems with my fertility. I’m fine with it now though, even though I have my moments. Other than anxiety, ADHD, and Thyroid problems, my health is alright. I had my first bone density test in 2020, that’s an important to do for those of us with TS considering lack of some hormones can lead to bone issues.

Thank you for reading. I wanted to share my story because dealing with things that most effect my mental health and fertility has a huge impact on me and I want people to know they are worthy and not alone. #MentalHealth #Anxiety #AgenesisOfTheCorpusCallosum #TurnerSyndrome #Infertility #ADHD #GeneralizedAnxietyDisorder

So Today I had a therapy session in which I disclosed some details of me and my friend Amber ending our friendship. We have not spoken since, I would be lying if i said this was easy. I am getting better and I am praticing letting go and all that fun stuff (I.E. Meditation, Breathing,Affermations, Asking for forgivness). At Nights are probably the worst, my want to message her is high during this time. It is not like that is easy either, I have a extra acc that I made awhile ago and It has her added. I have tried to talk to her but she has just read my messages and not responded. I am guessing I this is a clear sign that I should let her go. At the same time her friend reached out to me to check in on her clearly not knowing what happend between us. Once I let him know and all was done, he seemed willing to ask her if she was ok with the idea of talking to me again. I have very little faith any of this will work and there is alot I am leaving out but I hope this has formed a general idea of the situation. However, I say all this to say that I am going to be having therapy on valentines day and I am a bit exited, is that at all weird?

My fp said something kind of hurtful to me today idk if it’s acc something hurtful but it made me feel kinda weird. I met up with him after a month of me cutting him off, he followed me a month after and I gave in. Today we went for walk on a trail and we were talking about how I cut him off and I wanted to tell him why, he is aware that I have bpd and I told him he was my fp and tried to educate him shortly after I cut him off. But today he said a part of him thought it was cap that I was his favourite person bc I cut him off so abruptly, it made me sad bc it was clear that he didn’t really pay attention when I tried to send him videos about it. I tried to explain it but it just made me feel upset and now I’m thinking about it again. Do u think I’m overthinking?!

This morning the Fibro pain has again reared its ugly head- I hate when it starts my day,instead of ending my day( tho that's not nice to be hurting at bedtime,either!). Guess it's the below freezing temperature that's got it going. Don't you( those with fibro) just hate it when the fibro takes over even Before the day starts? It over comes the arthritis,the swollen feet & lower legs,the fitful sleep from the nite,and tired mind from having to deal with it & everything else on a daily basis. Even the pretty sunrise this morning gets hit. Big Sigh. Oh well,such is life when you are used to hurting All Over from an Invisible Disease. #Fibromyalgia ,#RA ,#oa ,#PTSD ,#GAD ,#Bipolar 2,#GERD ,#Insomnia ,#high Blood Pressure,#Allergies to most Everything,#sinusitis chronic,#Teeth problems( likely from meds been on for so long,acc.to dentist),#"covering" how I really am feeling,#bad dreams that carry over into the day,#restlessness ,#So many Meds,#dry Eye Syndrome,#Dermatitis -chronic,#Headaches ,Short term memory loss left over from ECT treatments,#Fibro Brain Fog,#sad ,#Overeating when illnesses take over too much,##Poor Self-Image,#Stagnant motivation,#chronic Talking to Myself-even Out Loud,#Talking & writing too much,#worry ,#Thinking of others instead of me,#people Pleaser,#Procrastination ,#Poor money management,#Ignoring important signs & Symptoms.

I chose to have The Mighty acc to post my thought without being judge. It makes me comfortable and fell belonging to a group of people like me.

Here's an interesting interview with a mother who use cmd oil to treat her daughter's Aicardi Syndrome

https ://caneaze.com/blogs/cbd-facts-research/case-study-aicardi-syndrome

#AicardiSyndrome #Epilepsy #ACC