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    Sending everyone virtual hugs

    Last week we did a needs check in and the winner of the poll was a hug. So this week I decided to send everyone a virtual hug from me to you if you would like one. I know it isn't quite the same as an actual hug, but wrap your arms around yourself and hold it for at least 20 seconds while thinking about something that makes you happy. Hopefully that'll be just the dose of oxytocin you need to start your weekend off right.

    #virtualhugs #CPTSD #Care #selfcare

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    For this Labor Day, shining light on the quiet strength, sacrifice and compassion of family caregivers, millions of them

    They never get a day off, they never get recognition. Sending love to these angels on earth.

    Excerpts from "The Quiet Cost of Family Caregiving," by Paula Span of the New York Times, Sept. 4, 2022:

    At first, Dana Guthrie thought she could help care for her parents, whose health had begun to decline, and still hold onto her job administering a busy dental practice in Plant City, Fla.

    “It was a great-paying job and I didn’t want to lose it,” Ms. Guthrie, 59, recalled recently. So she tried shifting to a four-day schedule, working evenings to keep up with the office demands, and she began spending a few nights a week at her parents’ home instead of her own nearby.

    Ultimately, though, her mother’s liver disease progressed and her father was diagnosed with dementia. The family learned that the cost of hiring home aides for two ailing 82-year-olds exceeded even a middle-class retirement income and savings. “They really needed me,” Ms. Guthrie said. In 2016, she left her job “and moved in full time.”

    An estimated 22 to 26 million American adults currently provide care for family members or friends, most of them older people, who need help with daily activities; more than half of those caregivers have jobs. “There’s no doubt that juggling the two can be very difficult,” said Douglas Wolf, a demographer and gerontologist at Syracuse University.

    Caregivers who are employed often reduce their work hours or leave the workplace altogether, research has shown.…

    Male caregivers tend to "leave the labor force and they don’t come back,” [economist and researcher Dr. Yulya] Truskinovsky said.…

    In contrast, women caregivers leave the work force more abruptly and are more likely to return — after just two years, on average — “but at lower wages or fewer hours,” Dr. Truskinovsky said.

    The pandemic amplified the conflict between employment and caregiving, Dr. Truskinovsky and colleagues found in another study. “Caregiving arrangements are very fragile,” she noted. While families often patch together paid and unpaid care, “it’s unstable, and if one thing falls through, your whole arrangement falls apart.”…

    Caregivers facing disrupted arrangements were more likely to be furloughed or lose their jobs; they also showed far higher rates of depression, anxiety and loneliness than either non-caregivers or caregivers who did not experience disruptions….

    Paid family leave… might help workers providing care for the elderly as well. When California adopted paid leave, which took effect in 2004, residency rates at nursing homes declined by about 11 percent, Dr. Wolf of Syracuse and his co-author Kanika Arora found.

    Although the study could not establish the reason, Dr. Wolf speculated that “the change in the law induced people to stay on the job, but they took enough time off to keep their parents out of a nursing home.” The authors’ more recent work shows that paid sick leave also helps increase family caregiving.…

    After Ms. Guthrie’s parents died, she relocated to Radcliff, Ky., where her sister lives. She found positions at dental practices there but has never matched the compatibility or the salary of the job she left in Florida.

    Currently unemployed, Ms. Guthrie has been interviewing for jobs and wondering whether she will ever be able to retire, although she doesn’t regret the sacrifices she made to care for her parents.

    “We were a close-knit family and I would do it again,” she said. “But I took a beating, emotionally and financially, and I haven’t really been able to recover.”

    [Supports for family caregivers were blocked in the US Senate by 50 Republicans and 2 Democrats (Manchin-West Virginia and Sinema-Arizona.)] #Caregiving #MultipleSclerosis #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Care giving #Disability #Support #myMSstory #myMSstory

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    Growing Pains

    Back in the day,

    We used to play outside till dawn

    Now, we're just another government pawn

    Back in the day,

    We used to live, laugh & grow

    Now, we are forced to work our asses off bro

    What is this shit? (mind my language)

    Death is a trap to try and get us to submit?

    As kids, we couldn't wait to be adults

    Now, I reflect and I am like that was truly nuts!

    The days when we could cry and be comforted

    Childhood turned to adulthood and those days plummeted

    Now, we're struggling to make ends meet, Who would have thought, childhood was only a treat

    But it's life,

    So put away that knife

    It is what it is -

    God is good, all is his

    Better days are ahead

    So, go and continue to chase that bread!

    #Life #resilience #NeverGiveUp #Suicide #SuicideAwareness #Selfharm #selfharmawareness #strength #courage #bravery #Independence #freedom #freedomwriters #useyourwords #expression #expressyourself #creativity #Deep #deepthinkers #bold #Spirituality #Meditation #Spiritual #calm #Zen #gowiththeflow #liveinthepresent #loa #TheSecret #manifest #manifestation #Positivity #PositiveVibes #GoodVibes #vibes #Energy #YouCanDoIt #Believe #Hope #Care #Empathy #compassion

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    When childhood abuse leaves you mentally ill, & society throws you away.

    The more I work with the mentally ill - abused when children #Bipolar , #BPD , #Depression , and more, as a #councillor and one who has these illnesses too, due to obscene #Childhood trauma, of which I’m on the mend thank goodness.
    I’m no longer surprised at the horrifying abuse my clients have been subjected to when they were children, leaving them with mental illnesses, Rather, I’m sickened, with a deep sense of fury , lost on how utterly cruel, and evil their parents or family members who perpetrated the abuse are.
    The abuse I suffered for years as a small child, leaving me with borderpolar, which I’ve spent years recovering from, I’m no longer angry about, it doesn’t affect me anymore, but I do still have borderpolar
    My years of studying, & working on myself, helped me. I learned that healing comes when we let go, and move forward, and this helps my clients.
    My point is a serious concern, about HOW is its possible, to prioritise things like #black LIVES MATTER, or #fighting CANCER, or #the WAR ON DRUGS etc, which DO matter, and ARE important subjects, needing attention, , but where’s the headlines, the hype, #help , #Care or #concern for children ( now adults) - who've been #brutally abused? And the circumstances have left them #mentally ILL as a result? And who are mostly #Homeless , #addicts to numb the pain. Who society has thrown away?

    It’s not OKAY! The priorities surrounding #mental ILLNESS, don’t exist. Rather, they’re #PUNISHED AGAIN, #vilified , #abused and more,

    It’s overdue, long overdue, to make headlines, hold fundraising events, highlight and educate people on #mental ILLNESS, and DO SOMETHING real to help, , to do your part in the desperately needed love and care, who’ve #suffered HORRENDOUSLY, leaving them sick and thrown away.

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    You Push Me Away…

    It’s Mother’s Day. I feel alienated, blocked from communicating with my oldest daughter. Basically, she’s completely shutting me out. I don’t know what happened, or what I did..Maybe nothing? Maybe something? She’s also not communicating with her Dad. Her husband said that she is suffering from a bad Bile Reflux, it has been making her ill to her stomach for months. It’s making her weak, and it has made her suffer weight loss.(-I knew this. I just hope her doctors can do something before she losses more weight. She’s in a NED currently, so that’s great.)
    I just saw a social media post where my daughters are together on a trip to Pittsburg. Ummm, she can’t be that sick to not respond to a text, a want for a phone call, or just a responsive:“hey Mom..”? It’s like my child has ghosted me. I’ve had several people that I was close to in the past, try to push me away, because of their Cancers. I’ve seen it. Is it because they think you can’t possibly know what they are going through? Is it because they want to spare you the pain of their demise, but are actually causing their loved ones a great deal of emotional pain and anguish, by pushing themselves away, by distancing completely.? #MothersDay #BreastCancer #itscomplicated #Grief #Whattodo #Family #PTSD #Havemyownissues #Care #Depression

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    Newbie

    Hi, I'm Jennifer 37yrs old from Nicholasville, Kentucky (USA).

    I've been battling this pain since I was 28 years old, I had real bad knee pain, so, I seen several doctors only to end up seeing a Rheumatologist, and them running blood work, and my RA levels were elevated.

    When she came in the room and talked with me, they weren't elevated enough at that time for her to say, I have RA, but, she said, I would definitely get it later on, she wasn't joking or lying, I laughed at her, and said, no way.

    Well 2wks ago tomorrow, I went to the doctor, just for a regular check up, and yes, he diagnosed with RA and OA, he gave me a choice to see a Rheumatologist and be put on meds, well, I turned him down, and said, I would fight it, as long as possible by myself, so, he said ok, do me a favor, call me if u need me, and surround yourself with supportive people.

    That is why I'm here, for support and encouragement, this is getting the best of me, and I've been through a lot in my life.

    This REALLY hurts.

    Thank u all for having a group like this here.

    #Support
    #Care
    #RheumatoidArthritis
    #Osteoarthritis
    #Friendship

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    Are these groups very active, or am I to much, wishing I had others to talk to.

    2nd time around and it still doesn't seem like a Support Group.

    ***Not looking for fakes, since I've came
    back, majority of messages and
    people wanting to talk have been
    fake.***

    ***So much for Support, Care, and
    Encouragement***

    Don't recommend Counsoling, or do I need Counsoling, makes me so mad.

    All I need is people like u who understand, care, etc

    #Upallnight
    #ChronicIllness
    #ChronicPain
    #Burden
    #DebbieDowner
    #CheckInWithMe
    #Nosupport
    #sad
    #Care
    #Support
    #spoonielife