Lyme Disease

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Learning to change my mindset to change my perception

Hi, I’m very new to the group. I do need help in conquering my mind/mindset. Presently, I am going through antibiotic IV infusions twice a week for late stage Lyme. This is my second round of treatment. I’ve had twelve out of 24 treatments thus far. The Lyme is in my nervous system, connective tissues and joints. I’m experiencing tremors, speech difficulties, memory issues, nerve pain and sleep issues. And those are just the top five! I’m waiting for a neurology appointment to determine if those symptoms are all from the neuro Lyme or if it has triggered essential tremors or possibly Parkinson’s. During these treatments and given that it is flu/Covid/germ of the week season, I don’t get out much or at all, unless I’m going to the doctor. Here in Ohio, to say its “gloomy” this time of year is an understatement. My husband and I are typically active people. We love being on the water (we live on a lake). I have a dog, Jetta, that I adore. I feel so guilty for not being able to go hiking with her right now. Shes only 3 years old and she sleeps most of the day because, well, so do I. So, for the next five weeks my life will be on hold. In my mindset right now, I feel stuck, frustrated, angry, sad and defeated. I want to change this mindset. And I don’t mean just being positive. I mean to have a proactive mindset. I want to thrive while I’m healing. I am blessed in so many ways and I want to share my gifts of time, teaching and caring. I’ve been fighting this disease for eight years. I have been forced to give up a lot of things I loved that defined me. My volunteer work, running, working with animals, most of my social life, etc. Talk about “going through the change”? Oh yeah, I’m going through THAT, too! I’m sure you’re wondering about my poor husband at this point. He’s my best friend. He and Jetta go to every treatment with me. We are together 24/7 and couldn’t imagine it being any other way. Don’t get me wrong, we have our issues. This is all taking a toll on us both. If I’m down, he’s down. Which is another reason to change my mindset. We are both feeling stuck. Literally. Because we have plans to sell our house and move out of state. Where?? We have no idea. We were supposed to be traveling now and looking for our next chapter. And instead, here we are. I do have some ideas that may help. I’m really good at coming up with a plan. It’s my execution and follow through that gets shakey. No pun intended. 🤣 Oh, and did I mention that I have two adult sons who have epilepsy?? Yeah, so that keeps life interesting. Reoccurring life and death trauma. Boy, that never gets old! I was in remission last April. After a terrifying summer with my oldest sons seizures, I relapsed hard. Thats when the tremors and Neuro symptoms started. You know, as I proofread this, seeing it in black and white, it’s a wonder I’m functioning as well as I am. So there’s that. 🤷🏼‍♀️ #LymeDisease #Depression #Anxiety #mindset

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I'm new here!

Hi, my name is Shazzzilla13.
I am incredibly lonely in this battle for well being. I want to get help and if possible, help others because I am often lonely and riddled with anxiety.
#MightyTogether #Fibromyalgia #Anxiety #PTSD #Migraine #LymeDisease #MyalgicEncephalomyelitis

27 reactions 15 comments
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I’m new here!

Hi, my name is ZetaWolf55. I have late stage Lyme disease that has now attacked my brain and nervous system. I have some symptoms of Parkinson’s and I’m waiting for my first appointment with a neurologist. I have two adult sons that have epilepsy. My husband and a couple of close friends are my support team. They are wonderful to me. My dog is my gift from my Higher Power. I am blessed in many ways and I’m grateful for all of it. I’m also human, which means, I’m sad, mad, confused, frustrated, goofy, enlightened, depressed, lonely, introverted, enraged and scared. I’m a warrior who’s fighting the inner demons in complete darkness. And my armor and sword are becoming very heavy.

#MightyTogether

7 reactions 6 comments
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Lyme disease

Suffering with chronic Lyme disease over ten years and can’t get help because Cigna won’t cover praying help comes soon about to lose my mind

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Has anyone tried lamotrigine?

Has anyone tried lamotrigine for their sensory processing disorder, autism, ADHD or other neurodiversity?
Did it work? Did you like it? Were there side effects? Would you recommend the medication?
Thank you!
#SensoryProcessingDisorder
#Autism
#Neurodiversity
#ADHD
#ADHDInGirls
#EhlersDanlosSyndrome
#Migraine
#PosturalOrthostaticTachycardiaSyndrome
#LymeDisease
#MastCellActivationDisorder
#MentalHealth
#Grief
#SuicidalThoughts

12 reactions 7 comments