Lyme Disease

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Lyme Disease
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  • About Lyme Disease
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    What's New in Lyme Disease
    Community Voices

    Autism and Mental Illness

    I'm on this group for my 15 yr old son with high functioning asd. He developed symptoms of auditory hallucinations, increased anxiety, and manic/depressive episodes in November. He was in the hospital three times since December after having Lyme disease, which was treated with abx, and two of those times was in a psychiatric facility. I would like to know how many of you with asd here also have diagnoses of bipolar or schizophrenia? I want to know how common it is. Also, have any of you had Lyme and found that you had lingering mental health issues even after treatment? #ASD #ASDmentalhealth #Anxiety #Depression #Schizophrenia #BipolarDisorder #warriormom

    6 people are talking about this
    Community Voices
    Community Voices
    Community Voices

    Please consider joining my new group: Chronic Lyme Disease.

    I want to shed awareness on this very common infection, up to 500,000 infections PER YEAR. Unfortunately, that number is still on the low end as many people are not diagnosed properly due to unreliable testing! Please do not rule out Lyme disease as a source for your health conditions, as this is a treatable condition!

    Chronic Lyme Disease

    Community Voices
    Community Voices

    Have you ever been bit by a tick, flea, or mosquito?

    A huge and detrimental misconception of Lyme Disease is that you can only get it from a tick. FALSE. You can get the infection from any insect that bites and transmits blood!

    1 person is talking about this
    Community Voices

    So much stuff!!!

    I have been having a really hard time and it’s been a reallly long year for my family.
    About me I have Fibro, RA, IC/BPS, sciatica AS, DDD, SpinalFusion spinalstenosis etc..

    I have my oldest brother who had a stroke this year. We have always spoken and never had and any issues ( unlike my other siblings that’s another post).

    When I was younger my brother more than once sexually assaulted me.
    I don’t know if it actually considered that
    I was sexually assaulted by my father when I was a child and raped at 15 by an older man.

    My brother who is 20 years older than me tried to kiss me on more than one occasion this was when I was in elementary school. He I found out a few years ago was also along with my brothers and my sister were sexually assaulted by my father as well.

    So the situation is idkw but after he had his stroke I just couldn’t speak to him.
    I did only speak to him because of my mother. I did tell my mother when I was younger and I can only say she made excuses for him and begged me not to not talk to him.

    I love my mother very much and we have a very good relationship except for this issue. So I haven’t spoken to him since his stroke and I feel extremely guilty for it.
    He has been trying to get in contact with me but I have thwarted contact.

    My husband knows and of course he says I should not feel guilty and doesn’t understand why I had been talking to him all these years.
    I don’t know if I should say something to my mom who is 85. I don’t think it would do anything but upset her or cause and arguement. Or bother saying anything to my brother. Which idkw I feel bad saying anything which doesn’t make sense.
    I know I should have gone to therapy years ago but does anyone have any suggestions how I should proceed in the interim ?

    #SexualAbuseSurvivors #SexualAssault #SexualAbuse #SexualAssaultSurvivors #ChildhoodSexualAbuse #SexualTrauma #SexualAssaultAwarenessMonth #RheumatoidArthritis #Fibromyalgia #Fibro #InterstitialCystitis #sciatica #DDD #AnkylosingSpondylitis #painfulbladdersyndrome #LymeDisease #ChronicIlless #ChronicLymeDisease #LymeWarrior #Spoonie #PituitaryTumors #PituitaryTumor #SpinalFusion #gastric sleeve surgery #Anxiety #CPTSD #PTSD #PTSD

    8 people are talking about this
    Community Voices

    Social media

    I am considering making an Instagram account dedicated to Lyme disease awareness, living life with Lyme disease, and being a nurse with a chronic illness...

    I haven’t been on Instagram in years, but maybe it’s time to start up again.

    Do you guys have Instagram? Do you follow anyone in the health, fitness, or chronic illness world? What do you like about their content?

    Thanks for sharing with me!

    8 people are talking about this
    Community Voices

    8 Treatment Hacks for People With Migraine and ME/CFS

    One of my worst symptoms having ME/Lyme disease has been horrific migraines; everything from aching in the temples and burning pain in the base of my skull to throbbing in the crown of my head that made me black out when I stood up. It’s been a long journey of experimenting with different treatments, which was made all the more challenging by the fact that migraines attributed to ME do not respond to normal migraine medication. I’m eager to share some ways I’ve found relief from migraines with CFS/ME, in the hope that it might help someone reading this. 1) Sleep/Rest. Sometimes simply sleeping it off is what is needed. 2) Meditation and Relaxation. If you are unable to fall asleep, meditation and visualization or any relaxation techniques that promote complete mental rest can work just as well, if not better. Research secondary suffering, where your pain is exacerbated by your emotional distress; calming this can release tension in your head. 3) Movement. It sometimes seems like my head is congested, and going for a slow walk or doing some gentle stretching that helps circulate the blood and lymph around the body can help a lot. Drinking lots of water and other detox methods may help too. 4) Epsom Salts. The magnesium in Epsom salts transcends the blood-brain barrier and has an immediate anesthetic effect that I find as good as any painkiller. A hot bath also stimulates circulation. 5) Acupressure Cushion and Mat I use Shakti Mat but Prana Mat is another good brand. These are useful tools in helping release tension from the head by stimulating certain acupressure points as well as circulation. 6) The Perrin Technique The Perrin Technique is a lymphatic drainage technique developed by Dr. Raymond Perrin. I’ve been doing this treatment with an osteopath and it’s been a game changer; my migraines are now much less frequent and severe. The treatment involves craniosacral therapy and self-massage. If you can’t afford or are not near a Perrin practitioner, you can still try the self-massage for free, just follow this YouTube video. 7) Bender Ball My osteopath suggested that I use a semi-deflated Pilates ball, which relieves the tension from your neck and lets your head float weightlessly. This also helps release tension and encourages blood flow. 8) Painkillers and/or Migraine Medications. Yes, there is a place for pharmaceuticals here, but I would always use them as a last resort after exhausting all other options. Good luck; hope this helps!