Lyme Disease

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Paralyzing anxiety and self loathing

I have a psychiatrist and therapist, but since getting Lyme disease years ago POTS and lupus, my health is slowly fading and I hate the person I’ve become. Unreliable, sick all the time, unable to work like I once did traveling the globe. I am on citalopram and lamotrigine with clonazepam for panic attacks. I am scared to death every morning of failing or another health issue taking me out. I’m too sick to function otherwise hating myself. I’m not getting anywhere with therapy and wonder who has books or tips on how to better my mindset and accept my limitations and LIVE.

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SOT and Lyme

Hey everyone! I just got diagnosed with Lyme after suffering with Fibromyalgia for 6 years and my doctor gave me information about SOT treatment. He said it’s fairly new and it does cost a decent amount of money since we’d be working through a company in Greece, so I was wondering if anyone here has had the treatment and if you’ve seen results? Or if you know about anyone else having success? Thanks! #LymeDisease #ChronicIllness

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I’m new here!

Hi, my name is shadyjl. I’m looking for alternative medicine or supplements to treat Lyme disease other than antibiotics

#MightyTogether #LymeDisease

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An In-Depth Look At What “Self-Love” Looks Like, How It’s Different Than “Self-Care”, And A Reminder That Self-Love Is At The Top Level Of Everything

There is More talk about Self-Care than the Most Critical Key to Happiness and Great Relationships of all types——-“SELF-LOVE”.

With this in-depth look at what Self-Love looks like-for your own personal growth, I would like you to take an honest look inwards and determine if you Practice Self-Love.
If you’re not, or if you’re not doing all of the bullet points given below, don’t worry— “Each morning, we are born again. What we do today is what matters most.”

As always, let’s have a great conversation about this topic below 👇 in the comments where you can use this space for your own place in your mental wellness journey. Not your mental illness journey— I am here as a friend to guide you through to the other side as much as possible—yes, that is where I stand, and the magic only happens if you let me—so how about more group members join in for your sake.

The Mighty friends that have opened themselves up to this opportunity are telling me and showing me that they are really starting to get it, and they are taking bigger, new, determined steps in their lives.

"Self-Love" refers to a deeper internal state of accepting and valuing yourself unconditionally, while "self-care" focuses on taking practical actions to maintain your physical and mental wellbeing, like getting enough sleep, eating healthy, and engaging in activities you enjoy; essentially, self-love is the mindset that drives you to practice self-care. Self-Love is the mindset too that heals the pain and keeps you in the light, Determined to keep pushing away any darkness and to stop doubting yourself.

Key points to remember:
* Self-love:
* A feeling of intrinsic worth and acceptance, regardless of circumstances
* Becoming your own best friend - treating yourself with the same respect and understanding you would give a close friend.
* Be the love you never received.
* Includes embracing your flaws
* Foundation for setting healthy boundaries and prioritizing your needs
* learn to say no when needed and clearly explain why
* Don’t seek Anyone’s validation
* Positive self-talk: Use encouraging language to speak to yourself, focusing on your strengths and accomplishments.
* Pay attention to your thoughts and feelings, recognizing negative self-talk and actively replacing it with positive affirmations/relabel upsetting thoughts
* Say something nice to yourself in the mirror — looking into your eyes & smile at yourself & say “I love you”and your name. (Yes, I actually stop myself to do this & it’s Wonderful)
* cultivate self-compassion
* Encourage Yourself
* Talk to someone you trust who *Has The Capacity To Listen*-and, Another Big Key Here is that ***Being vulnerable - completely honest and thorough- about what you’re going through with someone else is a major form of self-love because you’re taking the time to dig deep, regardless of how uncomfortable it is, And, on top of that, you’re showing yourself that you want to work out whatever’s going on with you***
* avoid comparing yourself to others
* practice gratitude
* Seek out opportunities for growth
* Creating a safe zone all your own is an act of self-love because it gives you a designated area where you can focus on your needs and emotions instead of other people’s. The key here is creating a space that feels good and peaceful when life is neither of those things.
#MentalHealth #Mindfulness #Selflove #Selfcare #Selfharm #SuicideAttemptSurvivors #SuicidalIdeation #SuicidalThoughts #Suicide #Trauma #MajorDepressiveDisorder #PersistentDepressiveDisorder #Depression #Anxiety #GeneralizedAnxietyDisorder #Agoraphobia #BingeEatingDisorder #EatingDisorders #EatingDisorder #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #LymeDisease #ComplexPosttraumaticStressDisorder #PostTraumaticStressDisorder #PTSDSupportAndRecovery #PTSD #BipolarDisorder #BipolarDepression #AutonomicDysfunction #AuditoryProcessingDisorder #Deafness #ADHDInGirls #ADHD #AspergersSyndrome #AutismSpectrumDisorder #Addiction #CerebralPalsy #IntellectualDisability #Disability #Blindness #BorderlinePersonalityDisorder #BorderlinePersonalityDisorderBPD #Fibromyalgia #ChronicPain #Migraine #IfYouFeelHopeless #BrainInjury #MotorDisorders #MultipleSclerosis #RheumatoidArthritis #Arthritis #Grief #Loneliness #AnorexiaNervosa #Relationships #SocialAnxiety #FamilyAndFriends #Caregiving #CrohnsDisease #CysticFibrosis #AlopeciaAreata #Cancers #EhlersDanlosSyndrome #ParkinsonsDisease #PosturalOrthostaticTachycardiaSyndrome #POTS #Stroke #Diabetes #SelfharmRecovery #RareDisease #DownSyndrome #AddisonsDisease #IrritableBowelSyndromeIBS #ObsessiveCompulsiveDisorder #ObsessiveCompulsiveandRelatedDisorders #ObsessiveCompulsivePersonalityDisorder #DissociativeIdentityDisorder

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I’m new here!

Hi, my name is adel. I've been diagnosed with Lyme Disease and want to connect with a community that understands this new journey I am on.

#MightyTogether #LymeDisease

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Cloak Not Mine

Silver strands of stress, woven

Creases of grief interrupt skin

Burdened by pain, I wear unease

I'm wrapped in a cloak of this disease

-

The weight, the worry, the weariness

The fog, the ache, the loss, the less

Not one article can I set aside

All I can do is strive to hide

-

Layers revealed and judged, I dread

Deemed unfit by what I cannot shed

Under it all, I lie and wait

Praying I won't suffocate

#MightyPoets #LymeDisease #ChronicFatigue

(edited)
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Support CARE for People with Chronic and Invisible Illnesses

Dear Fellow Lymies,

As someone who has personally struggled with being misdiagnosed and dismissed by doctors, I know how isolating and frustrating it can be. I’m sure many of you can relate to feeling unheard in your own health journey. That’s why I joined CARE for People with Chronic and Invisible Illnesses (CARE), an organization that is doing incredible work to support those of us facing these challenges.

After YEARS of not being taken seriously despite experiencing very real symptoms, I decided to take matters into my own hands and found a Lyme-literate doctor (LLMD) who finally diagnosed my mystery symptoms as Lyme, and alternative treatments that truly made a difference in my life. This experience opened my eyes to just how essential it is to have an organization like CARE — one that acts as a voice for those suffering in silence and provides valuable resources for individuals navigating chronic illnesses, including Lyme disease and co-infections.

Today, CARE is working on some truly impactful initiatives that I believe will change lives. We’re developing educational resources, offering guidance for families and healthcare professionals, and planning courses to empower people with evidence-based strategies for managing their health. Our long-term goal is to create a work environment where people with chronic illness can thrive without compromising their well-being.

We’re currently launching a fundraiser to help us achieve these ambitious goals. If you are in a position to give, I invite you to join our community of supporters through a donation. We are deeply grateful for any amount you can contribute, and all donations are tax-deductible to the fullest extent of the law. To learn more about our campaign and make a donation, please click on the following link: chuffed.org/project/117697-care-about-invisible-illness

I truly appreciate any support you can offer, whether it’s through a donation, sharing this message, or joining us in our mission to support those living with chronic and invisible illnesses.

Thank you so much for your generosity and belief in this cause. Your support means the world to me and to everyone who benefits from CARE’s work.

With heartfelt gratitude,

Lauren

Help Improve Life for People with Serious Chronic Illness

“I was more or less bed bound for a couple of years, (...)and meanwhile the doctors were telling me there was nothing wrong with me. So I was under pressure from employers, family and everyone else to stop imagining that I was ill, and to get out of bed and get on with my life.”1
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Dear Fellow Lymies,

As someone who has personally struggled with being misdiagnosed and dismissed by doctors, I know how isolating and frustrating it can be. I’m sure many of you can relate to feeling unheard in your own health journey. That’s why I joined CARE for People with Chronic and Invisible Illnesses (CARE), an organization that is doing incredible work to support those of us facing these challenges.

After years of not being taken seriously and sharing the very real symptoms I had (which were later figured out to be Lyme), I decided to take matters into my own hands and found a Lyme-literate doctor (LLMD) who diagnosed me and alternative treatments that truly made a difference in my life. This experience opened my eyes to just how essential it is to have an organization like CARE — one that acts as a voice for those suffering in silence and provides valuable resources for individuals navigating chronic illnesses, including Lyme disease and co-infections.

Today, CARE is working on some truly impactful initiatives that I believe will change lives. We’re developing educational resources, offering guidance for families and healthcare professionals, and planning courses to empower people with evidence-based strategies for managing their health. Our long-term goal is to create a work environment where people with chronic illness can thrive without compromising their well-being.

We’re currently launching a fundraiser to help us achieve these ambitious goals. If you are in a position to give, I invite you to join our community of supporters through a donation. We are deeply grateful for any amount you can contribute, and all donations are tax-deductible to the fullest extent of the law. To learn more about our campaign and make a donation, please click on the following link: chuffed.org/project/117697-care-about-invisible-illness

I truly appreciate any support you can offer, whether it’s through a donation, sharing this message, or joining us in our mission to support those living with chronic and invisible illnesses.

Thank you so much for your generosity and belief in this cause. Your support means the world to me and to everyone who benefits from CARE’s work.

With heartfelt gratitude,

Lauren

Help Improve Life for People with Serious Chronic Illness

“I was more or less bed bound for a couple of years, (...)and meanwhile the doctors were telling me there was nothing wrong with me. So I was under pressure from employers, family and everyone else to stop imagining that I was ill, and to get out of bed and get on with my life.”1