Lyme Disease

Here it goes y’all. I have been feeling so defeated and down lately. My husband switched our insurance with his work from their hmo to a crazy hmn (I have never heard of this type) and no one is covered. I lost the ability to see my complex care internal medicine doctor who took care of *everything* for me.

So in an attempt to find resources to help all of my laundry list of illnesses, I started with a rheumatologist who supposedly helps my mixed connective tissue disease according to Dr. Google.

Spoiler, he did not and basically told me I need to find a functional medicine doctor who prescribes traditional medicines and takes my insurance, a neurologist, a endocrinologist and a new primary care doctor “to start”, his words not mine. Also I have to continue with the new heart doctor who also is referring me to a dysautonomia specialist because it is above his comfort level of treatment he said. He can try but he’d feel better sending me down town. I can no longer drive fyi.

All of this with my new crazy insurance who does not cover even a box of tissues for these stress tears that they’re causing. My husband promised he’d help try and coordinate all of these new crazy doctors I need but this was nearly two weeks ago and nothing has happened. I’ve been trying to dig and dig for a functional medicine doctor who treats whole body and not “gut health” only type things or box o’ vitamins. It’s just so gimmicky. #Depression #Fibromyalgia #Dysautonomia #AutoimmuneThyroidDisease #MentalHealth #LymeDisease #Anxiety #MixedConnectiveTissueDiseaseMCTD

Hi, my name is hlord84. I'm here because I have been looking for peers to connect with. I have been diagnosed with so many things and cannot leave the house most days. I live with my husband and dogs but feel so alone after having been an extremely active, social person in my before life. My therapist suggested I search for support groups and I found this app. I hope to meet some wonderful people and make some connections that can help me feel not so alone out here.

#MightyTogether #Anxiety #Depression #PTSD #Migraine #Fibromyalgia #LymeDisease

Hi, my name is Dylan Rothbein. I'm here because I'm always looking for support and I care about community and disability. I'm currently a rabbinical student and a musician and filmmaker. I have been and activist and disability studies scholar for 10 years. I have a BA in history and an MBA in music business.
#MightyTogether #BipolarDisorder #Migraine #LymeDisease #CerebralPalsy #EhlersDanlosSyndrome #Epilepsy #PTSD #Dyslexia #Blindness

Hi, my name is Rawya.

#MightyTogether #Grief #ADHD #Anxiety #Depression #LymeDisease

Hi, my name is megan_elysse. I'm here because 20+yrs. of Neurological Lyme disease + mold sensitivity + anhedonia + everything below is making me not want to be alive anymore. What is one supposed to do when suffering that much?

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #Grief #EatingDisorder #OCD

Hi, my name is cdeevers. Hi, I’m Carolyn! I’m a writer, memoirist, and longtime advocate for people navigating hard things—chronic illness, trauma, and complicated relationships.
My own health journey has been anything but straightforward. After decades of misdiagnoses, I finally began piecing together answers about my conditions and how they connected to prolonged stress and trauma. Those experiences shaped not just my health, but also my writing.
I write personal essays, a blog, memoirs, and articles about resilience, faith, and the hidden costs of living through crisis—like my book-in-progress, Knock Knock, Neighbor Tales. My work combines raw honesty, a dash of humor, and a deep belief that our stories can help others feel less alone.
If you’ve ever felt unseen in your health journey or overwhelmed by what life has thrown at you, you’re in the right place. I’d love to connect, share, and learn from one another here.

#MightyTogether #PTSD #LymeDisease #NeuropathyHereditary #MastCellActivationDisorder

Hi, my name is wholenesss, moving towards this is my goal. I'm here because I have wished for community to talk about health issues with, just found out about this site... normal interactions don't feel appropriate and I do not currently have anyone to talk to about the health crisises I went through. I tend to be really private but I am realizing this has a down side I do not share enough or have support. I had lyme disease as a kid, never felt debilitated, but got bite a number of times, we were living a hot spot for ticks. Both my parents have health issues on their sides of the family that may also be contributing to my weakness, pains, but I struggle in a number of ways, though it is the recent years after high emotional stress and the time of perimenopause, that got pushed into menopause that has really shown me I have a number of vulnerabilities. Looking for conversations, kinship, resources info., foundations etc. Thank you#MightyTogether

Hi, my name is sophplus5. I'm here because I have EDS, POTS, MCAS, Lyme disease and have been in extreme constant pain for 2 1/2 years. Withdrew from high school because of the pain, nausea and dizziness. Finding support / friends would help the isolation

#MightyTogether #EhlersDanlosSyndrome #ChronicPain

I have a psychiatrist and therapist, but since getting Lyme disease years ago POTS and lupus, my health is slowly fading and I hate the person I’ve become. Unreliable, sick all the time, unable to work like I once did traveling the globe. I am on citalopram and lamotrigine with clonazepam for panic attacks. I am scared to death every morning of failing or another health issue taking me out. I’m too sick to function otherwise hating myself. I’m not getting anywhere with therapy and wonder who has books or tips on how to better my mindset and accept my limitations and LIVE.