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John
 • 
@themightyjohn
Multiple Sclerosis Connections 6mo
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Care Can't Wait — Because keeping folks in their own homes is healthier & cheaper

Disability advocate Bob Kafka talks to the expert, Nicole Jorwic, coordinator of the Care Can't Wait Coalition. Nicole gives you a crash course about the movement and the latest news. For seniors, children, people with disabilities, and parents — care can't wait.

www.ksfr.org/show/barrier-free-futures-show/2024-04-27/04-27...

#CareCantWait #HomeCare #childcare #Caregiving #MultipleSclerosis #ChronicIllness #newlydiagnosed #Disability

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Flamingo red road with people of different backgrounds, cultures and genders some old and some young. People with disabilities and able-bodied people, caregivers and family members. Some of people have mobility devices walkers, white canes, wheelchairs, and canes. There are people all around each with a speech bubble describing the caregiver crisis. Some of them say “pay a living wage”, “caregiver crisis is human rights issue”, “grandma wants to stay home but there are no caregivers”, “PCA shortage” and much more. There is green grass also, green and yellow grass. A human heart in middle of four canvases. Two hands overcast a city that are black brown and white and a hand comes in from the left of the bottom canvas. There is mention of this crisis being in hospitals, nursing homes, developmental centers, and in relation to community waivers. There is a court house representing the Supreme Court. An Ohio map reminds Ohioians to follow the Olmstead decision. Speech bubbles explain what imagined care might be like. The bottom lower corner has more about the crisis in nursing homes and the challenges of the pandemic, including visiting restrictions and staffing shortages. A cemetery is depicted and at the bottom, there are advocates/protestors with signs that read “our homes not nursing homes!”, “pay homeware workers a living wage!”, and also some providers and family members sharing their thoughts.
Flamingo red road with people of different backgrounds, cultures and genders some old and some young. People with disabilities and able-bodied people, caregivers and family members. Some of people have mobility devices walkers, white canes, wheelchairs, and canes. There are people all around each with a speech bubble describing the caregiver crisis. Some of them say “pay a living wage”, “caregiver crisis is human rights issue”, “grandma wants to stay home but there are no caregivers”, “PCA shortage” and much more. There is green grass also, green and yellow grass. A human heart in middle of four canvases. Two hands overcast a city that are black brown and white and a hand comes in from the left of the bottom canvas. There is mention of this crisis being in hospitals, nursing homes, developmental centers, and in relation to community waivers. There is a court house representing the Supreme Court. An Ohio map reminds Ohioians to follow the Olmstead decision. Speech bubbles explain what imagined care might be like. The bottom lower corner has more about the crisis in nursing homes and the challenges of the pandemic, including visiting restrictions and staffing shortages. A cemetery is depicted and at the bottom, there are advocates/protestors with signs that read “our homes not nursing homes!”, “pay homeware workers a living wage!”, and also some providers and family members sharing their thoughts.
Alicia Hopkins
 • 
Disability
2y

The Ohio Caregiver Crisis and the Hoops That Block Access to Care

In 2018, I wrote an article about the caregiver crisis in Ohio. Since then, it has gotten to an all-time extreme! It will get much worse. Ohio just created more hoops for independent providers by adding additional licensure and surety bond requirements in their latest Ohio budget bill. • The Mighty’s Caregiving Toolkit Providers must [...]
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LUVmyCAT
 • 
@luvmycat
mighties 3y
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#hi #Hello #goodevening #hardday #inneed #Injury #injured #needhelp #HomeCare

Hi there, friends🙋 #mighties #mightywarriors ....my knee went out last Friday (a week ago) & my Homecare Company has abandoned me. I usually have a Helper assist me food with shopping, carrying groceries, running errands, etc. ....last Friday,with my Helper, I bought too much ,I guess. My knee went out carrying too much weighty groceries up my 3 flights of stairs. & I haven't had anyone to get me where I can purchase a cane & knee brace. I am afraid to leave the apartment more than ever, now. And refuse to without assistance. Until I get a cane & knee brace.

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Grannie G.
 • 
@gantclaudette65
Depression 4y

No rest for the weary

Another night no sleep. I’ve been in bed for days. No shower in two weeks. Hair is still half done. No self care at all. My partner and caregiver has died...I don’t miss him but I’m so lonely. The fear of death is looming overwhelmingly, but I’m not ready. My tears won’t stop but I can’t let my grandson see them. I laugh through the hurt for my grandson’s sake. The recent diagnosis of CHF doesn’t help. Drink more water says one dr...drink less fluids says another. Dishes in the sink but I haven’t cooked in more than a week. Floors needs sweeping and mopping. Did I feed and water my furry and feathered babies? Why do they have to suffer? In my prison with no bars I sit day after day “what day is it”? I’m not hoarding, I just need more storage. My body aches from the 100lb weight gain “side effects of the medications!” Take a walk, get some fresh air. I can’t, I’m scared! Anxiety and corona?! No energy! From the bed to the toilet, from the toilet to the bed. Sit at the table for a minute, eat a sandwich, something quick, minimal effort. Mad dash back to bed. When, why, how! I need help! Please don’t leave me to my own devices. Why don’t they hear me? I’m screaming inside.

#Depression
#BipolarDisorder
#Anxiety
#CongestiveHeartFailure
#Obesity
#self care
#HomeCare

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Frodi
 • 
@therealist
AlzheimersDisease 4y

Taking care of an Alzheimers patient

Today has really been a rough day.
I work in in home care for the elderly and many of them have Alzheimers or Dementia. You kind off get used to it after a while but some days are just really hard.
I have a patient that has been doing very well these last few weeks. He remembered me and my name and knew why I was there. Today he was completely lost and scared. In his mind I was a stranger, an intruder that came to help him with things that he thought he could do himself.
In January this year he moved from his lifelong home to a small apartment in the same neighbourhood. Today he was really confused and angry that he was alone in some strange place and thought that I was locking him in there. He wanted me to go get his mom so she could explain to me that he lived with his parents. He is 86 years old.
It was completely heartbreaking for me to see that things could get so bad in one day. That a friend, a person that I care for and meet every day was so lost and scared. And the hardest part of all is to pretend that what he is saying is true. To calm him down by saying that I will contact his mom and let him think that there is nothing strange about him not knowing me.

Today was rough. But the only thing that is important is to keep calm, keep going and just hope for the best. ##AlzheimersDisease ##alzheimers ##Dementia #HealthCare #coping #HomeCare #Rough #Workplace ##Work #Pretending

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Sylvia Colt-Lacayo's struggle to get personal care attendant services to attend Stanford University highlights long-standing problems with the California IHSS program.
Sylvia Colt-Lacayo's struggle to get personal care attendant services to attend Stanford University highlights long-standing problems with the California IHSS program.
Karin Willison
 • 
Disability
5y

Disabled Stanford Student Isn’t Alone in Her Battle for Home Care Services

A new school year is starting, and once again a promising young university student with a disability is in the news. At a time when she should be excited about choosing her first classes, moving into the dorm and making new friends, Sylvia Colt-Lacayo is worrying she won’t even be able to finish her freshman [...]
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EVV, image illustrating privacy invasion through electronic visit verification and Sandata Technologies.
EVV, image illustrating privacy invasion through electronic visit verification and Sandata Technologies.
Alicia Hopkins
 • 
Disability
5y

How Electronic Visit Verification Is Harming People With Disabilities

Imagine feeling like you have a monitor strapped to your ankle because you need to use Medicaid services to care for your medically fragile child. Imagine being forced to keep a device in your home that puts you under surveillance because you have a disability and require a personal care attendant. This is now the [...]
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The Spoonie Druidess
 • 
@thespooniedruidess
truefriends 5y

Three things I'm grateful for...

1) My #truefriends ; who do everything they can to #understand what I'm faced with and continue to be #Accepting and #supportive .

2) Having my own #home , where I #feelsafe ; it's warm, calm and #comfortable , I can receive my daily #HomeCare with confidence, and live in the catchment area for an awesome #carecompany . All the standard services are reliable, there's decent internet here and my abusers have nooo idea where I am!

3) That I'm still able to be #creative from time to time; even with #multiplechronicillnesses that leave me mostly #housebound #Disabled , it gives me something to look forward to, knowing that as long as I continue to listen to my body, I can do what I enjoy most when I'm able to.

#52SmallThings #3thingsimgratefulfor #myalgicencephalopathy #ME #pwme #HEDS #restlesslimbsyndrome #Migraines #Fibromyalgia #FibroFog #BrainFog #Tinnitus #ehlersdanlossyndromev3 #POTS #eds3 #CPTSD #PTSD #MillionsMissing #Potsie #Zebra #Spoonie #theunchargables #InvisibleIllness #invisibledisabilities #thedruidessofmidian #thespooniedruidess #disabledmodel #creativemodel #altmodel #spooniemodel #DomesticAbuseSurvivor #rapesurvivor #domesticviolencesurvivor #escapedtoxicfamily

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Home care worker assisting elderly woman.
Home care worker assisting elderly woman.
Alicia Hopkins
 • 
Disability
6y

Home Care Provider Shortage in Ohio Leaves Disabled People At Risk

People with disabilities often need the help of others to stay in the community. Many states have adopted programs known as home and community based waivers. These waivers help with services to keep people independent in their communities. Personal case and homemaker services are just a few of the major needs people can have met [...]
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Karen Sheaffer
 • 
@karensheaffer
HomeCare 6y

Now working

When I posted my profile here I was not working. I am happy to say I have been working since April of last year. I am working two part time jobs, equaling full time hours. One position is as a delivery driver for pharmaceutical meds throughout Philly. This gives me autonomy I like and social opportunities to meet persons from all walks of life. My other position is for a home health company. The work suits me very much as I enjoy serving others. #HomeCare

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