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Why Homeschooling Works for Our Medically Complex Family

I wanted to share in case other families are considering other educational options for their child living with a chronic condition. A big THANK YOU to The Mighty for publishing this.

You can read the article here: Why Homeschooling Works for Our Medically Complex Family

#HomeSchooling #EhlersDanlosSyndrome #ChronicIllness

Why Homeschooling Works for Our Medically Complex Family

"This newfound fluid approach has made learning this year much more enjoyable. Here is what worked for us."
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Make The Homeschooling Activities Fun With Some Great Tips & Ideas #HomeschoolActivities #HomeSchooling

Learning at home is quite different from our traditional way of learning that we do in schools but this is a new way of learning, homeschooling activities have taken place now. We need to do a lot of reorientation on how we can approach this process to our kids and how we in general think about learning in this way.

www.lovingparents.in/kids/homeschooling-activities-tips-for-fun

#BestHomeschoolingActivitiesTipsForFun #HomeschoolActivities #HomeschoolingActivitiesTipsForFun #HomeschoolingFunActivitiesIdeas #HomeschoolingFunActivitiesTips #HomeschoolingFunActivitiesTips&Ideas #HomeschoolingTips #IdeasForHomeschoolingTipsToMakeHome #SchoolingActivitiesFun

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#HomeSchooling and #homeeducation - there’s a big difference

These hashtags are some key words that associate with this musing:

#mentalhealthawareness #mentalhealth #mentalhealthmatters #anxietyrelief #anxietyattack #anxiety #anxious #children #school #attendance #parents #neurodiverse #neurodiversity #neurodivergent #send #autism #autismawareness #autismacceptance #autistic #adhd #adhdawareness #inclusion #developmentaldisabilities #flipthenarrative
#ehcp #fixsend #education

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What is your greatest concern about homeschooling? #HomeSchooling #ParentingSpecialNeeds #Kids

I've been home schooling for over 10 years and it's been an interesting journey of laughs, cries, and everything in between. But I have enjoyed every step of the way.

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How can I help my teenage siblings?

My younger brother and sister are having a very tough time these days and my parents are not very supportive or encouraging. My parents are very negative and fearful and the pandemic just gives them more fuel to scare and control my siblings.

I would even argue that my parents' behavior towards them is emotionally and physically abusive and medically, emotionally and educationally neglectful. My parents have always been devoid of empathy and abusive to animals and children.

My parents are not doing anything to help my siblings get an education, in fact they're making it harder. They don't help them at all and punish them if they can't do it all on their own.

And my parents refuse to provide my brother and sister medical treatment. I know my siblings suffer from depression, learning disorders and extreme social isolation, so I worry a lot about their health and safety. My sister gets paralyzing body spasms and can't control them and she has never been to a doctor or specialist to figure out anything about them. She's learning to drive now, what if she has one behind the wheel?

She stepped on a needle once and my parents still tell her how expensive that ER trip was (and my parents have money, they were easily able to pay for it ). It was an accident. Needless to say, no one steps on needles for fun.

My brother asked to go to a therapist and my parents took him once and when they got the bill they wouldn't ever shut up about it and told everyone so he quit out of shame and because they held it over his head and made him feel bad for asking to go.

What can I do to help my siblings?

I am worried about their health and safety.

#Abuse #DomesticViolence #FamilyCounseling #HomeSchooling #Depression #teendepression #SocialDistancing #Anxiety #ChildAbuse #EmotionalNeglect #educationalneglect #medicalneglect #Therapy #Shame #Stigma #kidsgetdepressiontoo #Selfharm #Trauma #HomeSchooling #Parenting #narcissistabuse #Isolation #pandemic #LearningDisorder #ADHD #spasms #toxicparents #Shame #childneglect #EatingDisorders #ToxicRelationships #toxicreligion #religious Trauma #religiousabuse #NarcissisticPersonalityDisorder #narcissiticmother #narcissistparent #animalabuse

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I wake up. I usually don’t shower because, really, who cares? I drink some coffee and eat some little bites or something. I homeschool my son. He cries along the way, he basically tells me off at some point. I cry. We end up cuddling and watching tv after we figure out what we want some poor soul to deliver on our doorstep. Every. Single. Night. Unless his dad comes to get him, then I don’t eat dinner and I may shower, or not. And I go to bed. Or try too. I lay there for hours after my cocktail of meds. Staring at the ceiling. Wondering what my son will remember about me when he gets older. All the great trips we have been on. Or when mommy was so worried about being jobless during a pandemic that she would cry for no reason or raise my voice a little. He’s very sensitive and not used to that at all. I don’t know when this will end or how it will end. But I feel like a lazy depressed version of my old self with circles under her eyes and piles of laundry and dishes piled high in the sink. Some days I wondering if I am lazy or depressed I second guess myself everyday. I want it to end. I don’t know what I want it to go back too. I’ve taken so many steps backwards. I’ve had too much time to think. Too many lists in my heads of people I’ve checked in with, with no response and then they are on social media. The lack of people checking on me. There is so much more I could write but that’s it for tonight. #Depression #HomeSchooling #quarantine #Anxiety #Insomnia

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How do you overcome #Depression lack of desire and motivation

I’m so frustrated. I just had a really long post and lost it so I will be more brief. I’m #exhausted in #Pain ALL THE TIME. Knees, back, feet, hands. I’m obsessed with crafting and get to be my granddaughter Ayla’s art teacher during the #COVID19 school closing and #HomeSchooling The above photo is her with the leprechaun trap. I haven’t felt like doing anything today and not much yesterday. I’m trying to use the self quarantine to finally purge Declutter clean organize and rearrange my home. right now my living room and dining room are basically piles of random things that need to be relocated since I made some changes and created a home management/family control center/planning area between my kitchen and dining room so I have stuff everywhere. I so much want a clean fresh open home and I have Monique (my son’s fiancée and Ayla’s mom) here helping me and I just need the motivation because I know we could accomplish A LOT. she’s tall and strong so she is truly helpful. in fact she’s gone to Walgreens to pick up my medication because I’m not allowed to go anywhere. I’d love to hear what motivates you and how you overcome perfectionist, if I can’t do it right I don’t do anything
I’ve also passed 3 kidney stones in two weeks with no doc or medication because I don’t have the money
#Lupus #Fibromyalgia #rhumatiodarthritis #ChronicIllness #ChronicPain #Fatigue #BackPain #MedullarySpongeKidney #KidneyStones #SeizureDisorder #sjogrens #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #Osteoporosis #duodenalulcer #DegenerativeDiscDisease #PinchedNerve #CarpalTunnelSyndrome #InterstitialCystitis #Pleurisy #Anxiety #ADHD #ObsessiveCompulsiveandRelatedDisorders #PTSD

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Being a Mommy never stops

I homeschool my son due to the progression of #EhlersDanlosSyndrome and yesterday was the first of two homeschool events of the week and end of the year. We got a private tour of the SunTrust Park Stadium the home of the Atlanta Braves! It was so much fun and amazing tour that the kids and parents/learning coaches got to experience. I can admit I was nervous because of how long the tour was and being wheelchair accessible, yet I was greeted with helping and loving students and parents willing to help me. There are some really caring people in the world and I am grateful for that. My son and I was able to enjoy the tour and get a lot of baseball history. We decided that just because I'm in a wheelchair now doesn't mean life have to stop. I want my son to experience the life I never had and he gives me so much strength because he reminds me that I can do anything despite my disabilities. I know there are a lot of Moms out there that may feel like life is over when our bodies are against. We can some times feel like we are not great mothers because we can't do what we used to, yet don't see it that way. Your children will still see you as a hero and a fighter! I truly see that when I am with my son. He pushed me to keep going not just for him and his sibling but also for myself. He makes sure I don't allow myself to get down and out. I truly have a little angel on this Earth! Keep fighting!!

Ana 🦓💖💪🏾 #EhlersDanlosSyndrome #MightyMoms #LifeofanEDSerwomanofcolor #WheelchairUsers #HomeSchooling #Wheelchairlife #keepfighting

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its fall here and for some reason my pain is extreme

is this normal? I've had pain since april of this year so it's my first winter any advice I've been missing school alot. is anyone here homeschooled or have any advice? or ideas that doctors have suggested? #HomeSchooling #Fibromyalgia #ChronicPain #MultipleSclerosis #ChronicIllness #InvisibleIllness #Teen

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Ramblings of an Exhausted Mom

I’m so tired and lonely. I have #ADHD , #Anxiety , #Depression , and symptoms of #Fibromyalgia (no time or money to get formally diagnosed). My medications have been keeping it all under control, until recently. Now, the pain is coming back, and the depression, anxiety, and fatigue are getting worse. I suspect it’s the #SeasonalAffectiveDisorder that’s kicking in and overpowering my meds. I’m around people at least 4 days a week, in a determined attempt to avoid the crippling tendency to isolate. As a #HomeSchooling #mom to 3 young children (1 w/ ADHD, 1 w/ ADHD & anxiety, 1 toddler), I have a lot of expectations for myself, and I feel like I’m letting everyone down, when I’m struggling to function. My 6yr old daughter sometimes fixes breakfast or lunch, because I can hardly get my eyes open. Granted, she loves making cereal and sandwiches, as it makes her feel very grown-up and accomplished, but *I* feel like I’m not being a good mom. The kids spend far more time on electronics than I’d like, but too often I simply don’t have the energy to fight it. That being said, both my 4 and 6 yr olds are reading above their grade level, and are working through Kindergarten math. I know that they would be further along if I was doing better, but I also know that once I can get to a better place, they will be speeding through the curriculum as quickly as I can throw it at them, so I’m trying not to be overly critical of myself. It’s so frustrating, though, because no one has any idea how hard it is for me to drag myself out of bed, much less get 3 kids out the door to go to church, the store, the library, or anywhere. No one asks how I’m doing and really means it. No one stops to give me a hug or encourage me, even though I try to do that for others. I just feel like an island in the middle of a sea of people.

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