So we got a diagnosis for Fibromyalgia from the Rheumatologist. And just recently I did get an official diagnosis for POTS. We have upcoming appointments with a dietician and a geneticist to discuss suspected type 3 EDS(I have the criteria and we were told this from a professional). Fibromyalgia is genetic and turns out my aunt had it. It lies dormant in your system until something traumatic happens and it triggers it. Hers was a car accident and we suspect mine might have been the HPV vaccine, we aren’t sure. Funny enough all this is rare to happen someone of my age, I’m not even an adult yet and here we are.
I don’t think of this as good or bad news but we are making progress and I view that in a positive light.
I am on a strict elimination diet because meds are our last resort especially with my track record of all of the rare side effects. I had to cut my hair because it was falling out because of Metoprolol, but on the positive side my hair is healthier shorter (it’s curly and was in need of a trim).
I have been eating rice, chicken, broccoli, cauliflower, gee(butter alternative), olive oil, 2 teaspoons of salt daily, and just water (80-100 oz daily). We also slowly reintroduced avocado and turkey which my body was fine with.
It is a slow and very annoying process because all I want right now is chocolate, bread, and ice cream (my kryptonite). The diet is working and I have done nothing but improve as of late. Although we tried a bunch of new things in one day and we regretted it shortly after because I wasn’t able to walk because of how dizzy I was, and I had a on and off migraine for 3 days. I had 1 chunk of pineapple, 2 strawberries, Liquid IV drink mix, and some supplements and my body did not like that. So we are taking it even slower now.
We know I can’t have gluten right now, and maybe sugar but I’m in denial about that right now. I have always been sensitive to sugar and caffeine, but I had a strawberry and I was okay so maybe there’s a limit on how much I can have? Although my blood work did say I have low blood sugar so we don’t know.
My metabolism has skyrocketed though! I eat that meal above 4-5 times a day now (and I’m still hungry), and I’m still losing weight (which isn’t necessarily good at 5’4 and 113 lbs). I have actually lost over 10 lbs of muscle since October so we are working on getting me active again.
Overall this is definitely a process and also an unintentional David’s fast lol. Life is looking up a bit finally!🩵
#Fibromyalgia #MightyTogether #ChronicFatigue #POTS #ChronicFatigueSyndrome #ChronicDailyHeadache #ChronicPain #Migraine #EhlersDanlosSyndrome #MentalHealth #Depression