Gastroesophageal Reflux Disease

I've been chronically ill most of my life. And I've tried A LOT of different things to help or find answers.

But I'm tired.

Worn out.

Exhausted.

Grieved.

I wonder if it's time to stop working so hard to eke out a possibility of feeling better, and just let things be as they are. Live as I am, and let it be enough.

But I'm scared that that's giving up.

Or...is it giving in? Surrendering my denial that this is how it is?

I'd love to know what my Mighty family thinks of this.

#ChronicPain
#Anxiety
#MentalHealth
#DiabetesType1
#ADHD
#PolycysticOvarySyndrome
#Fibromyalgia
#GastroesophagealRefluxDisease
#MTHFRMutation
#Undiagnosed
#Grief
#MyalgicEncephalomyelitis
#AdrenalInsufficiency

I waddled to the bathroom cuz OMG and my right foot was swollen so bad. It's double it's normal size. I'll be able to show my PCP today and try to figure out what to do instead of lasix. I'm gonna try to make time to go back to the hospital for binsons to get compression socks in the next 2 weeks.

I didn't have therapy yesterday cuz my appointment cut into the time. We rescheduled for today at 4pm. I didn't do any journal prompts this time but I did some last time and we didn't go over them. But I'm sure with the cardiologist appointment and my PCP appointment I'll have plenty to talk about. And I'm so burnt out. We'll be fine as far as topics to discuss.

I'm gonna have a bunch of labs done today. Prolactin levels, testosterone, CBC, and A1c at the very least. Originally this appointment was for checking my urine for cultures cuz I had a UTI but I feel better.

I'm so thirsty. My tongue burns. My mouth is dry. I'm craving coffee. Except it's 530am and I can't have coffee right now. Pauley decided to wash dishes and accidentally chipped my starbarks mug.

I'm burping up stomach acid. I ate a little bowl of GF Velveeta Mac and cheese for dinner. It was delicious but it had quite a bit of salt. It's what made my feet swell up.

Today we're gonna place an order for groceries. I already picked what I want. I'm excited about some of the stuff I ordered, like the pork carnitas and the chocolate chip banana waffles and the cod. We're gonna eat the cod Wednesday night. Ooooo and the Dino nuggies are on sale! I ordered 2 boxes! Rawrrr

I've decided I'm awake for the day. I'm having pauley make me a bottle of IQ Joe. It'll help me feel more alert and less foggy. I'll also make a cup of juice when I finish drinking the coffee.

#Lymphedema #GERD #AcidReflux #HiatalHernia #Dehydration #foodieadventures #coffeeadventures

I waddled to the bathroom cuz OMG and my right foot was swollen so bad. It's double it's normal size. I'll be able to show my PCP today and try to figure out what to do instead of lasix. I'm gonna try to make time to go back to the hospital for binsons to get compression socks in the next 2 weeks.

I didn't have therapy yesterday cuz my appointment cut into the time. We rescheduled for today at 4pm. I didn't do any journal prompts this time but I did some last time and we didn't go over them. But I'm sure with the cardiologist appointment and my PCP appointment I'll have plenty to talk about. And I'm so burnt out. We'll be fine as far as topics to discuss.

I'm gonna have a bunch of labs done today. Prolactin levels, testosterone, CBC, and A1c at the very least. Originally this appointment was for checking my urine for cultures cuz I had a UTI but I feel better.

I'm so thirsty. My tongue burns. My mouth is dry. I'm craving coffee. Except it's 530am and I can't have coffee right now. Pauley decided to wash dishes and accidentally chipped my starbarks mug.

I'm burping up stomach acid. I ate a little bowl of GF Velveeta Mac and cheese for dinner. It was delicious but it had quite a bit of salt. It's what made my feet swell up.

Today we're gonna place an order for groceries. I already picked what I want. I'm excited about some of the stuff I ordered, like the pork carnitas and the chocolate chip banana waffles and the cod. We're gonna eat the cod Wednesday night. Ooooo and the Dino nuggies are on sale! I ordered 2 boxes! Rawrrr

I've decided I'm awake for the day. I'm having pauley make me a bottle of IQ Joe. It'll help me feel more alert and less foggy. I'll also make a cup of juice when I finish drinking the coffee.

#Lymphedema #GERD #AcidReflux #HiatalHernia #Dehydration #foodieadventures #coffeeadventures

I definitely need to work on how often I vent frustration with the body I have been given. Every so often I have to stop and readjust my thoughts for the better, thanking my body for all it does to try to do what I want.
It does the best it can and I need to appreciate what it can offer.

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AmplifiedMusculoskeletalPainSyndrome #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #HypothyroidismUnderactiveThyroidDisease #Eczema #Grief #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyTogether #MajorDepressiveDisorder #MemoryLoss #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

So many new things happening as of late.

Humera helped not a bit. The first month and a half felt great and it reminded me the good of being human. Five months later and my rheumatologist put me on a new medicine called Enbrel(amongst my 55 other meds I take for my many conditions).

I took my first dose on Sunday but I feel as bad as if I wasn't taking any meds whatsoever.

Years ago my EDS meant I had to learn to walk more carefully so I didn't dislocate my joints hundreds of times a day and using my tendons wrong, bruising them left and right. Now I have to relearn and the pain is simply horrific.

And my whole digestive system is a mess of course. Swallowing ten times just to get one bite down really takes any good out of food. Constant nausea and vomiting doesn't improve anything whatsoever.

And a hundred more symptoms of misery makes my huge mountain of existing even heavier.

Yeah I am blessed in many things but health or ease of existing are most definitely not on any of the lists.
Only a very cursed body that does work hard to try to do its best in aiding me, poor thing. Thankful for the small bit of good it tries to do while also wishing I could trade bodies with a healthy person for at least one day.

If only!😕🫤😔

Alas, I wait still for my new meds to start working with fingers crossed and tears streaming down.
Thank heaven that I at least have a few doctors that are trying!
Such a long 29 years of devastating suspense!!!

May the holidays bring the light and hope you deserve this season. And if not, may these Christmas lights on my family's tree lift your soul for even a small bit of time ✨️✨️✨️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Upallnight #IfYouFeelHopeless #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #PTSD #MentalHealth #MightyTogether #MightyPets #Migraine #MemoryLoss #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking #MajorDepressiveDisorder #nightterrors