fibrowarriors

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I'm new here!

Hi, my name is MoopyMyBuddy. I'm here because 12yrs ago I collapsed at work and have never been the same. I was fired after 14yrs, lost my children, and after many tests, my diagnosis and disability is Fibromyalgia along with depression, anxiety, neuropathy, a few other things, and daily I think Im going crazy. I have no friends. I am in a relationship for 14yrs and he has stayed by my side, which amazes me, since most days I would like to leave myself. I know this is horrible to say, I would rather have cancer and battle knowing I will get better or die. Not knowing what your day will be like, may start out good and then turn to crap within a blink of an eye. Trying to explain to people, but they can't understand because of the way you look. They think you are lazy, lying, even though you received your disability within 5mos which has been the best positive for me after hearing so many horror stories of people applying for disability. I know everyone has their own pains, cognitive issues, ways they deal, it is like fitting a circle peg into a square hole. We don't fit into anything. Sorry I have done nothing, but complaining. I am angry, tired, just want a normal life. I want to be happy, have energy. I want a miracle pill. Then, I look at those who have lost limbs, or came back with injuries they didn't have and I feel I have no right to complain. I do feel, I am dealing with this for a reason. I just don't know what they reason is. What is my purpose. I think that is what I hate the most. I no longer or I feel like I no longer have a purpose. I haven't given up yet, obviously since I am here, but I want, I need a purpose. I am hoping that by reaching out, maybe I will learn more techniques on how to cope, make a friend or two, just hear how others have learned to live with this invisible disease. Thank you #fibrowarriors

#MightyTogether #Anxiety #Depression #Fibromyalgia

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Advice/experiences needed!

Throwing a question out there to my fellow #fibrowarriors since I am still relatively new to this diagnosis. I know there is a huge amount of variation in symptoms, but does anyone experience the feeling of very heavy legs, especially when going up stairs or after walking for a couple of hours? It's not really pain, which would be more expected - mostly a general sense of weakness/heaviness. Trying to figure out if it's just due to my low activity level these past few months or something more to be concerned about... It may just be the anxiety talking lol. #Anxiety #Depression #Fibromyalgia

9 comments
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Hopeful

Doing alot better after being in bed for nearly 2 weeks. But now my anxiety is out of control. Doubting myself and in pain like always. However my spirits have been feeling lifted lately. #fibrowarriors

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Fighting a #fibroflare

So it’s almost 2 am on the second day of the new year and I’m “leaning in” to this flare.

Please tell me your favorite product, thing to do, thing to use, or what ever to help you to get on the other side of a #Fibromyalgia flare.

#fibrowarriors

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In bed for the 4th day.

I'm in so much pain it is redicuios! Im the kind of mom who is alaways up with the sun cleaning, cooking and just staying busy. But when I push myself too hard this is my consequence. I was rearended in 2008. Broke 3 vertebrates in my neck and have been battling fibromyalgia ever since. People tend to think that after 12+ years I should be able to handle it better. They don't know because they don't feel the pain I do every single day and night of my life. About 2 yrs ago I was diagnosed with hypothyroidism and white brain matter. I also am awaiting a spinal tap to see if I have MS( Multiple sclerosis). I was put on antidepressants as well. #fibrowarriors #Depression #CarAccident

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#Fibromyalgia #Christmas

This will be my first christmas being diagnosed and I have been feeling loads of pain. If not then im very fatigued. Im wondering if other #fibrowarriors could give me tips on not overdoing it and how to pace myself. Xo

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Coffee, pills and a heating pad.

I have been in bed all day. Having a fibromyalgia flare and severe back pain from having my bones rub together due to thinning disks. I have to take a few weeks off work to rest. I sometimes feel guilty if I lay in bed all day in pain. Like I have to do something productive. But I forget that while I am laying down I am healing and THAT is very productive!! #fibrowarriors #ChronicPain

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Any other #fibrowarriors struggle with their libido?

I have been really struggling with my lack of desire for physical intimacy. Thankfully I have a very understanding husband. I don’t know if it’s from all my meds or just another difficulty created by my several chronic illnesses. Does anyone else struggle with this issue? Any one have any advice to help improve things? #Fibromyalgia #Migraine #IBS #InterstitialCystitis #ChronicFatigue #KidneyStones #FoodAllergies

9 comments