HiatalHernia

It’s hard knowing that the chronic pain will get worse and you don’t know when it’ll be. It reminds me of a quote from The Fault in Our Stars- “There's no way of knowing that your last good day is Your Last Good Day. At the time, it is just another good day.” However, it’s even harder when a flare makes you face that reality even more.

I believe my pain is getting worse. Flares are more often, longer lasting, more exhausting, more problematic. It’s a lot harder when I can’t really take painkillers for it.

I got diagnosed with GORD/ gastritis/ hiatal hernia. The symptoms were getting worse, and long story short I had a gastroscopy where I received those dx’s. At the time, my reaction was one of relief. Relief that my symptoms have a physical recognised cause. Because I had just gone through ENT and cardiology where they couldn’t (they could prove the symptoms but not find a cause). Now it’s still relief, but also frustration. It could have been avoided if they had arranged a follow-up appointment when I first went to the doctors about it almost 10 years ago.

Speaking of frustration, I found out that my cholesteatoma actually still appears to be of existence. I was told it was gone, but going over my medical notes it appears this wasn’t the case (besides, it has to be surgically removed to be permanently gone & it wasn’t). Where I keep losing my hearing, I tried mentioning it to the doctor but it got dismissed. Even though there’s things at stake, I’m too tired to fight and get another opinion. Not that I’d be able to anyway- the migraines have caused me to just want to shut down from everything & I only leave the house for appointments.

I’m quite tired of all of it to be honest. It’s exhausting, and being in pain I have the physical exhaustion on top of it. Not sure what else to say or where I was going with this post, but yeah. I’m back?

#ChronicPain #Pain #BackPain #Cholesteatoma #GastroesophagealRefluxDisease #HiatalHernia #Gastritis #ChronicMigraines #Migraine #exhaustion #MentalHealth

I did a dumb thing today. I ate an entire bag of sea salt and vinegar pork rinds. Now I don't usually have problems with them but I got a new brand to try and they were sooooo acidic. They burned my mouth and brought me to tears. Within an hour I had the worst acid reflux / #GERD symptoms ever! I'm burping up stomach acid and having chest pain.
I get acid reflux because I have a hiatal hernia. I scheduled my appointment for the barium swallow esophagram for March 3rd. We need to see if I need surgery. Meds have never helped make me feel better.
My hips are stiff and hurting but I've got some Percocet so I should feel better soon. I also took an olanzapine to help me sleep tonight. I want to be clear headed for tomorrow cuz I have to do some major cleaning of my apartment. I've got plans for Sunday and will be hosting a guest.
We're going to get my haircut and then we will go to the grocery store. I'm gonna get food for the month. But we're also going to get the ingredients for naan pizza. After we make pizza we are going to watch a movie (or we'll end up watching Bluey, cuz I've never grown up). It's going to be a good day. I'm very excited. I don't see friends very often, maybe once per month if I'm lucky, so this will be nice.
#CheckInWithMe #GERD #AcidReflux #HiatalHernia

Hello 🖐🖐🖐🖐

I can't say Good Morning
Cos I've still got the dam migraine. Day 5 now

I'm ok just completely fed up with left side numbness pins n needles neck pain and of cause the one sided head pain 😥
I think I know what it is too.
But until I get to the headache clinic I can't formally get diagnosed with it.

With the Pandemic how long will that take. Both my local hospital won't take me on.
Neurologist are working on coronavirus patients aren't they!!

But hey what's new with that.
I've been dealing with chronic illnesses for 20 years now. So it's nothing new . Just so so so dam annoying frustrating and making me angry..... 😠😵

Its no ones fault, I'll just carry on as I always do. With a smile and a laugh . I'll cry when I need too, rant and get it out of my system.

So thanks for listening My Mighty Family n Friends.
You are all the very best.
Love you all . Tj 🤗😘🧡❤💚💛😁🖐

#Undiagnosed #frustrated #RareDisease #Arthritis #Migraine #ClusterHeadaches #Anxiety #MightyTogether #Bekindtoyourself #Selfcare #Love #Hope #rant #Vent #talkingtherapy #CheckInWithMe #NeverAlone #SphincterOfOddiDysfunction #PsoriaticArthritis #GastroesophagealRefluxDisease #HiatalHernia #Pain #Chronicpainwarrior

So I’m currently sick now and have all the #COVID19 symptoms except for 1 important thing. I feel some congestion in my chest but only feels like a kitten sitting on my chest, not an Elephant. I can still breathe easily. My fever is about 102. I think it’s the flu and monitoring it. If my breathing changes I will call Dr. My bestie is telling me to get my ass to the hospital now. I’m immune compromised. #AutoimmuneDisease #sjogrens #CoronaVirus #Flu #Fibromyalgia #ChronicPain #Spoonies #HiatalHernia #Depression # Anxiety #PTSD