chronichealth

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

Pop culture has been my trusty sidekick since childhood, starting when I was a kid and getting to pick the music for my heart catheterization. That small, seemingly insignificant moment was the beginning of my lifelong love of music. Although my parents instilled in me a passion for music, it's grown exponentially over the years. In fact, I spent nearly 20 years as a Virtual DJ!

Chronic health issues can be a rollercoaster ride when you feel like you have no control over all the twists and turns life and our health can take. But through it all, pop culture has been a beacon of light for me, a portal to worlds of wonder and excitement, bringing joy and comfort even in the darkest of times.

Video games, movies, books, and music have been my ultimate escape, providing comfort and joy in the face of adversity. Today, various genres of music, along with other forms of entertainment, continue to help me manage my mood and anxiety, from calming ocean sounds for relaxation to classical music for battling insomnia.

P.S. You might be curious about my name. I'll admit, that I wasn't always a fan of the 'princess' title, but I've come to embrace it because, to me, princesses represent hope, dreams, and all things positive.

#pace #chronichealth  #musictherapy #copingmechanisms #chronicwarrior #hopeanddreams

As it’s the end of what has been a very difficult year for so many of us, for one reason or another. So, rather than face the fast approaching New Year with sadness, disappointment, and dread, I would like to try to end the year on a positive note by thinking of the GOOD things that have happened to me in 2022. Three GOOD things that happened to me this year are:
1) Discovered a new hobby,
2) Attended events that had been rescheduled from 2020,
3) Becoming part of an amazing FND support network!

Can you name 3 GOOD things that have happened to you this year?

#MentalHealth #mentalhealthmatters #ChronicDepression #Depression #Anxiety #Disability #FunctionalNeurologicalDisorder #JointHypermobilitySyndrome #ChronicIllness #chronichealth #ChronicPain #ChronicMigraines #Grief #MightyMinute #MightyTogether #ChronicFatigue #SpoonTheory #Spoonie #PositiveThinking

When you live with a chronic illness, especially when it’s something like FND, then your medical experiences are never like the ones you see on TV! On TV there’s always a magical cure for everything, regardless of what it is, whereas in reality, if the doctors can’t see it, or understand it, then they basically just don’t believe it. If they don’t have a “quick fix”, or even just a “fix” at all, then they simply don’t want to know, they treat you as if “it’s all in your head”, and they dismiss your concerns as if they’re nothing. All of which ends up causing us even more problems in the forms of Depression and Anxiety, as well as reduced self-confidence and self-belief. 🤷🏻‍♀️🙄🥺💔
#InvisibleIllness #InvisibleDisablity #FunctionalNeurologicalDisorder #ChronicIllness #ChronicPain #chronichealth #ChronicDepression #Depression #Anxiety #MentalHealth #NotOnTV #Disability #MightyTogether #Asthma #JointHypermobilitySyndrome #JHS #ChronicMigraines #Migraines #Headache #ChronicHeadaches #ChronicFatigue #Insomnia

I’m pretty sure that anyone living with chronic pain/health issues will have heard the phrase “You need to listen to your body.” I know that I’ve heard it more times than I can count, and I suspect that I’m not the only one who has lost count of how many times they’ve heard it over the years. In theory, it sounds simple enough - do what your body tells you to do, when your body tells you to do it - but, in reality, it’s no where near as easy as it seems because trying to get your brain to agree with your body can be quite the challenge. It’s like your brain says “Let’s do this…” or “Let’s do that”, while your body says “There’s no way I’m doing that! I’m way too sore/exhausted to be doing anything.” It’s like trying to referee a debate that only you can hear. Wouldn’t it be great if the two could just get along with each other every once in a while? 🤷🏻‍♀️🤔🤗😂
#ChronicPain #chronichealth #FunctionalNeurologicalDisorder #FND #JointHypermobilitySyndrome #JHS #Disability #MightyMinute #52SmallThings #MightyTogether #MakeMeLaugh #SpoonieProblems #SpoonTheory #LetsLaughTogether #ShareTheLaughter

I am on a road trip to find happiness and better health, the roads I will be traveling connect all the things inside and around me. Some days I will travel backwards, but only for moments so I can allow myself to heal from those things in the right way so I can finally move on to the route of a better future for myself.  The road to self acceptance and self love are anything but a smooth ride for many of us, but I think it's the right direction to take... so I'm starting my engine. ♡

#chronichealth

#chronicpain

#chronicillness

#fybromyalgia

#spoonie

#Depression

#mentalhealth

#borderline

#borderlinepersonalitydisorder

#anxiety

#trauma

#ptsd

It might not change anything for you... but with the off chance it might change everything like it has for me since watching it about a month ago... I think it's worth checking out for so many people, epically those with so many physical issues that have never been properly diagnosed and also possibly have a life long history of trauma that you've never properly healed from... upon other things.

Maybe it will help, maybe it won't... but if this post somehow helps someone... I think that's more than worth it.

♡♡♡

#chronichealth

#chronicpain

#chronicillness

#fybromyalgia

#spoonie

#depression

#mentalhealth

#borderline

#borderlinepersonalitydisorder

#anxiety

#trauma

#ptsd