chronichealth

Thankfully I don’t struggle with a chronic illness or disability but my mom has some and it’s really sad to see her constantly in pain I wish I could help more. How do you cope if you struggle this way as well? 💕💕💕 #chronichealth #healthissues #coping #thriving #illness #question #Disability #Abilities

Good afternoon! We are on our 25th wedding anniversary trip!! We were commenting on the nite of our anniversary “we actually made it!” Hopin g you all have been coping with all of our life issues!! I know having chronic illnesses is hard as hell but it’s even tougher trying to manage a family too!! Stay strong my friends !

Hey, everyone. How was your Christmas? Mine was pretty awful, honestly. I'll try and explain it as best as I can.

Around 4 years ago, my mum was talking to my big sister (her name is Dawn), and she told her about my health conditions/problems. Dawn then proceeded to accuse me of faking my health issues. Despite the many scans and test results clearly showing they are real. And then, shortly afterwards, she said that any gifts or presents I buy for people for birthdays/christmas (and everything else) are worthless because the money comes from a 'government handout' (disability benefits). After learning this, I refused to talk to her unless she apologises. So, we didn't talk for several years.

My little sister (Jess) gave birth to my nephew in 2021, and I love him very much. Since Dawn doesn't live near us, she was only able to visit this passed Christmas, and she stayed at Jess's house for two weeks.

Originally, before Dawn announced she would be coming, the whole family was going to go to Jess's house for Christmas dinner and whatnot... But once she booked her tickets and everything, Jess said that I wasn't allowed to go to the event. I wasn't allowed to spend time with the whole family. Which REALLY upset me. So much so, that I seriously comfort-ate for a couple of weeks. I was binge-eating whatever I could get my hands on. And I spent the entire of Christmas day curled up in bed watching stuff on my laptop. It was my first Christmas alone and I hated it.

Anyway, that leads up to the good news. I was really expecting my diabetes to be so much worse, and I was expecting to have put on a lot of weight. So, I reluctantly went for my weight and diabetes check last week. After they recorded my weight, they told me that since last July, I've lost 20lbs! And my HBA1C blood test came back yesterday - it's not worse! In July it was 63, and as of yesterday, it was 62. Admittedly, it's not much progress, but considering I was expecting it to be a disaster, I feel pretty good.

Anyway - I'm sorry for this rant, I guess. I just needed to get it out. Thank you for getting this far, though. Have a great day!

#chronicillnesswarrior #chronichealth #ChronicPain #POTS #POTSUK #EhlersDanlosSyndrome #EDS #NAFLD #InterstitialCystitis #BladderPain #BPD #BorderlinePersonalityDisorder #Familydrama #Depression #PTSD #Migraines #Diabetes #diabetic #WeightLoss

Why do chronic illness patients not go to emerge when they are pretty much on their death bed?

Because we would rather die in the comfort of our own beds home alone than to deal with dr's that continually treat you like it's all in your head.

With this covid crap and not being able to have anyone go in with you to advocate for you when it literally hurts to breathe let alone speak and you are too weak to walk let alone try to stand up for yourself, not that they wouldn't just brush you off like they always do because it's not an easy answer...

Fuck the system. Like fuck it so fucking hard.

What I've been experiencing is far from 'normal' and no one should have to live a life where they wonder if this is going to be the day they die or not. The day that they fall asleep and never wake up again...
Not being able to drink without severe pain, let alone eat for days and far too weak to even walk with a walker because your severe chest pain that has been going on for weeks has begun to also start sending shooting pains into your back, arms, shoulders, neck, jaw, legs... not to mention how often your limbs go numb for no reason... upon many many other symptoms... including the fact that at the beginning of June I weighed at least 135lbs and now weigh a whole 105lbs and seem to keep losing more every day... even when I am able to eat. They told me to follow up with my family dr even though i told them multiple times that I don't even have one. The dr's here won't even give you the time of day when it comes to actually listening to all of your symptoms.
They wouldn't even do a covid test either... and if i want to get tested I'm expected to go to the testing center. Hahaha... that's a joke right? So much about that useless hospital is a joke though to say the least. I haven't even been well enough to go get my essential medication at my pharmacy... and it's not something that I can just simply ask them to deliver... but the place prescribing it to me expects me to go to the pharmacy every damn day to pick it up and doesn't seem to be trying to figure out another option for me.

This is shit. How do people expect you to not just want to die when this is literally your life... when really, it isn't life at all. It's a long slow painful death... but remember to smile and stay positive right?...

#chronichealth
#chronicpain
#chronicillness
#fybromyalgia
#spoonie
#Depression
#mentalhealth
#borderline
#borderlinepersonalitydisorder
#anxiety
#trauma
#ptsd