DDD

Today I witnessed some kindnes9s I felt was worth sharing because if our leaders can't get along in this world it's up to us as human beings to take care of our neighbor who may be having a tough life. There is a couple in my small town that have to get recycling from public areas and the lady is in a wheelchair so he pushes her and they go to to the store or the gas station. So I have seen them around town and always wanted to stop and give them some cash but didn't know how the man would take it or it was too dangerous to stop when I see them on the highway. Today when I got gas they were there and he was rooting through to get recyclables so I walked over and gave him some cash, mind you they were not asking, and then I started to pump gas and I noticed two people go up to the same couple and also give them some cash. I felt that it was so great to see people caring and doing for each other.

After all we are all human I don't know there story but I obviously could see his struggle and hers I'm not in a wheelchair but I wear bilateral orthotic leg braces so she kinda smiled at me when I approached. I didn't give them much but that obviously wasn't the point it was just nice to see humanity taking care of humans, our society can be so brutal to leave people to need necessities they were both over 60 and there struggle is one of many in the rising cost of just to survive.#Anxiety #OCD #ChronicPain #MuscularDystrophy #DDD #MDD #RareDisease #Disabled #PeripheralNeuropathy #

I felt so stupid what happened to me on Instagram at the beginning of this year. I only went on the site to follow my favorite country music artist Wille Nelson I am avid music fan all kinds Reggae Rock and country so finding out about Willie on a social media platform seemed normal . I abandoned Facebook in 2020 after a year I found it to be artificial not like the Mighty where people lift you up instead of tearing you down. So I went on Instagram against my gut feeling because I bought tickets to go see him last year and because of my progressive condition I can't attend any concerts anymorre it's been 15 yrs since I saw him in concert. I made a profile for myself and started scrolling or searching for Willie's Instagram post and sure enough I found one but what this dumb farm animal didn't know it was a fake.

I texted back and forth with someone pretending to be Wille and fell for the whole rouse until they started asking me more personal questions and I became suspicious. The whole thing broke my heart you know with chronic illness we only have very few things we can engage in and someone was impersonating w one of my idols that I first met when I was 16 face to face. You can tell by the story I'm over 55 maybe it was my fault for not knowing that fake Instagram Accounts existed. If you read this story thank you for taking the time it's way too long I know #OCD #DDD #ChronicPain #Anxiety #RareDisease #MDD #BP d#PeripheralNeuropathy #bilateralfootdrop

Every day is just another continuation of the pain from the day before. It comes like clockwork about twenty steps into my day the excruciating muscle and nerve pain from a genetic muscle disease. It wasn't enough all those surgeries on my spine the painful recovery and eventually wearing two full leg braces and a cane thought that after a decade I had paid my dues. I'm posting this because mental defeat is one of the main charestics of suicide in chronic pain patients cause let me be clear there are days you want to end it knowing that getting through this nightmare means death anyways because you'll be in pain for the rest of your life.

If anyone ever feels this way get help as soon as you can nothing unmanly about needing help with a game that has no rules. I use many healthy distractions like spending time with mom in the garden or listen to music or look at educational shows on Space Nova love it

Color is our best defense against fate and color comes in many forms Art, Music, and crafts. #OCD #MDD #DDD #ChronicPain #RareDisease #BPD #Anxiety #MuscularDystrophy

I've been at this debilitated state for about 15 yrs several spinal fusions and now I have late onset muscular dystrophy. It's a complicated rare genetic mutation that slowly but surely is taking my muscles and keeping me in chronic pain. My Dr and I searched for a diagnosis for the past three years as to why I was loosing muscle mass and at the beginning of this year a diagnosis was partially reached.

The purpose of this boring prelude is to show how lucky I am to have such a caring Dr one who thoroughly takes the time during each visit. He actually spent time after work to study my case and is frustrated there is no cure or treatment just showing how much he cares.#DDD #MDD #OCD #MuscularDystrophy #Rare disease#Bilateral footdrop#Anxiety #IntrusiveThoughts #

Alot o disabled f people in chronic pain seek acceptance and understanding . I did in the beginning the explanation of why I am compromised physically people who were close to me deserved a type of explanation or so I thought. I'm not one of those guys who thinks misery loves company I deal with my sickness on my own I did have to see a physicatrist for the Agoraphobia and suicidal ideation.

So you want everyone to know and understand what your going through you want to feel validated But you don't have to. One more person understanding your sickness isn't going to make your sickness any better. That's why we have this forum and we can let it all out with people who are in the same predicament and here we can feel validated without over explaining but again we shouldn't spend time trying to get friends and family to fully understand that way it makes it easier to stand strong alone. Just my take on having a chronic lifetime illness the idea self reliance is huge I lost all my friends and even my friend of 40yrs doesn't feel I deserve to be on disability even after I told him I have late onset Muscular Dystrophy.#OCD #MDD #Anxiety #DDD #Cronic pain#MuscularDystrophy #ChronicIllness