Sphincter of Oddi Dysfunction

The doctor just came and diagnosed me with sphincter of Oddi Dysfunction. This is a life long and painful. Yes another diagnosis on top of my dysautonomia.

Good Morning Mighty Family n Friends

My Pepper Pup looks very bored already by the dark nights and cold evenings.

I've even put my heating on. Eek.

I just couldn't cope any more so I just had too. 😅😊 it's nice a toasty warm in my home now. Pepper n Pedro are much happier too. Much nicer than just the fire. 🔥

How are you all coping with the autumn cold or in the uk it feels like winter already. Brrrr ⛄☔

Love n hugs Tj ♥️🧡❤💜🦄🦓🤝💪 #winterwarmth #Love #Hope #TrigeminalNeuralgia #ChronicIllness #Migraine #Family #Arthritis #ChronicPain #InflammatoryArthritis #SphincterOfOddiDysfunction #GlossopharyngealNeuralgia #Anxiety #Depression #DistractMe

It's today 12th October

World Arthritis Day

It's just part of you
Not the whole you
Just a bit of your story

But if you'd like to share your story with us today

Please do..

I have PsA(psoriatic arthritis) and early onset osteoarthritis. I was diagnosed 6/7 years ago after suffering with symptoms since I was 32 years old. I am now 51.

I mainly suffer with enthesitis meaning it's in my ligament and tendons and not my actual joints. So hence it took so much longer to get a diagnosis. I have it in every joint including my spine and neck.
Makes for an interesting life.

Love n hugs on World Arthritis Day Mightys Ones Tj 🥰🖐😘😊💜💪🤝❤🧡
#MightyTogether #PsoriaticArthritis #Osteoarthritis #TrigeminalNeuralgia #GlossopharyngealNeuralgia #InflammatoryArthritis #Migraine #ChronicPain #Selfcare #FamilyAndFriends #ChronicFatigue #SphincterOfOddiDysfunction

Good Morning Mighty Family n Friends 💪🖐

It's nearly that time of year again
7th of October is nearly here again and it is international Trigeminal Neuralgia day again
Teal is the colour of the day for raising awareness for us who suffer from this awful disease.

Anyone one can get this. At any age male or female. Although the neurologist will tell you children do not get it.
Yes they do!!!!!!

It is literally a pain in the face electric shocking nerve pain in the face. Like being hit be a train over n over n over n over again in the same place oh but it moves places too.

Love n hugs Tj 🦓🦄🦓🦄🦓 #GlossopharyngealNeuralgia #TrigeminalNeuralgia #OccipitalNeuralgia #ChronicPain #ChronicIllness #RareDisease #Migraine #SphincterOfOddiDysfunction #Arthritis #MightyTogether #Love #Hope #Selfcare

Good Morning Mighty Family n Friends

How are you Today 🖐

It's not that I want to run

Away from anything

I just want to

Run towards

Something different!!!

Who wants to run with Me??

Not that I can Run mind 😅🙃
I can sort of walk. More like hobble with my crutches, as long as you all walk slowly and don't leave me behind.
🚶‍♀️♿
But I feel like going in a different direction, trying something different. Doing something new. I'm stuck in a rut, a hole, a big rabbit hole.

I'm sure we all feel like this from time to time, or all the time.
Depression or mental health. Maybe it's my Age. Ugh. 😳👵

So who is with me ✋
Love light n hugs Tj
❤🤐🤷‍♀️🖐💜🧡😘🙃😌🤗👼🦅🐧🦉🥰🐦😳👵 #ChronicIllness #RareDisease #MightyTogether #PsoriaticArthritis #TrigeminalNeuralgia #GlossopharyngealNeuralgia #Migraine #Cancer #ChronicPain #Chatspace #SphincterOfOddiDysfunction #Hope #Love #Bekindtoyourself #Selfcare #Kindness #

Good Morning Mighty Family n Friends

Guess What

I think my nasty Migraine might have finally gone....
Whoop whoop...
❤❤❤❤❤😎
Only took a week. Been thinking it's been gone these passed few days. But just wanted to make sure it had, and wasn't gonna sneak back up on me. 😅
It's been raining 🌧⚡Thunder and lightening then sunny next day 🌞So wanted to make sure.
Still got nasty headaches, but that's just normal for my meds and facial conditions.

AND guess what number 2

My wonderful doctor after writing to the neurologist for the third time at my other local hospital. I only have an appointment in September.
A face to face one even.
That's another little dance time.
I've seen her before when I lived in that area.
She is really nice 👩‍⚕️saw her when she diagnosed me with trigeminal neuralgia.

So fingers crossed she can start to investigate these migraines and cluster headaches.

So as I can now see out of both eyes again, no double vision or blurry vision. I'm back on the Mighty.
I have missed you all so much. Gets lonely. But my lovely neighbour kept me company, and when she couldn't be there she'd drop off her little dog for a bit, to play with my 2 pups for a while.
Loved watching them all play. 🐕🐶🐾❤😅

Hope you are all ok. Do tell me what you are all up to.
Love n hugs Tj ❤🤗🧡😘🌞💚🐶 #RareDisease #MigrainesWithAura #TrigeminalNeuralgia #GlossopharyngealNeuralgia #SphincterOfOddiDysfunction #Anxiety #Hope #Love #Selfcare #Bekindtoyourself #Family #Friends #Depression #checkonyourneighbours #Arthritis #PsoriaticArthritis

Hello 🖐🖐🖐🖐

I can't say Good Morning
Cos I've still got the dam migraine. Day 5 now

I'm ok just completely fed up with left side numbness pins n needles neck pain and of cause the one sided head pain 😥
I think I know what it is too.
But until I get to the headache clinic I can't formally get diagnosed with it.

With the Pandemic how long will that take. Both my local hospital won't take me on.
Neurologist are working on coronavirus patients aren't they!!

But hey what's new with that.
I've been dealing with chronic illnesses for 20 years now. So it's nothing new . Just so so so dam annoying frustrating and making me angry..... 😠😵

Its no ones fault, I'll just carry on as I always do. With a smile and a laugh . I'll cry when I need too, rant and get it out of my system.

So thanks for listening My Mighty Family n Friends.
You are all the very best.
Love you all . Tj 🤗😘🧡❤💚💛😁🖐

#Undiagnosed #frustrated #RareDisease #Arthritis #Migraine #ClusterHeadaches #Anxiety #MightyTogether #Bekindtoyourself #Selfcare #Love #Hope #rant #Vent #talkingtherapy #CheckInWithMe #NeverAlone #SphincterOfOddiDysfunction #PsoriaticArthritis #GastroesophagealRefluxDisease #HiatalHernia #Pain #Chronicpainwarrior

I'd walk through fire

For my Best friends

Well, not fire.

That would be

Dangerous

But a super humid room

But not too humid

Because

You know

My hair......

👩‍🦰👱‍♀️👩‍🦳🧔👩‍🦱

Now that's a friend for you.

😅🤣😂😁😀😆

How are you all today?!

Hot and humid. Ready to walk through a humid Room for your Mighty friends 😅👊💜

Love n hugs Tj 🌈👋💪🐕🐾🐶

#Anxiety #Hope #RareDisease #PsoriaticArthritis #Depression #SphincterOfOddiDysfunction #TrigeminalNeuralgia #ClusterHeadaches #GlossopharyngealNeuralgia #Arthritis #Bekindtoyourself #checkonyourneighbours #Selfcare