Alopecia Areata

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A Mighty Together EASY Game That Needs All Of Us To Work 🤗 👋 🎤🎶🎧 #DistractMe #MightyTogether #MentalHealth #CheckInWithMe

Simply remember or find/Google/ask Alexa or Siri……a line or part of a line from a song or a song title that was written for Empowering all of us.

You are welcome to add in even just one. This is easy because it is not even your words that you are adding in or articulating. The words have been given to us.

For example: I often think of this part of line from a song: “I am going to dance on broken glass.”

And this part song title, part of a line of the lyrics:
“Better Days are coming, if no one told you.”

And this longer one section of another great song:
“DON'T YOU TELL ME WHAT YOU THINK THAT I COULD BE;
I'M THE ONE AT THE SAIL
I'M THE MASTER OF MY SEA.”

And this small section of a song that I hold close to my heart:
“Just remember who you are; how you were never one for folding; how you never liked the corner; how the dark don’t even know you.”

Let’s Go Big on this one.

Let’s make this a holiday gift you can give for free that could be exactly what Many others need Right Now.

This ties in with the image I chose for this because we are going to be taking inspiration from Christopher Reeve aka Superman in the 1978 film who famously said "A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles".

So, I say YOU are a hero.

One of our Mighty family with a boatload of reasons to question this quote and anything, just a couple days ago, found, and in a way, smartly challenged my about 4 months old post with Christopher Reeve’s other famous quote “Once you choose hope, anything is possible.”

So, if you know anything about me, you know I accepted this challenge to help her and to help even more of us.

So I went to work for all of us— researching and drafting an impactful reply (and I can at times put hours into this work for all of us.)
Because YOU are worth fighting for.

So, I researched how he could say these profoundly optimistic and empowering statements when he, Christopher Reeve, a former role model to the world as Superman, was paralyzed from the neck down after a horse riding accident at age 42. His mother wanted doctors to remove his life support, because she thought that he wouldn’t want to live like this, but he fought back.

So the meaning to his quote about HOPE is: Hope, in this sense, is a decision. It is the most important decision we can make.

This choice of Hope also is not just wishful thinking, it has to be rooted in a Believing, it must be in the form of Optimism, and it must be held together by handing it over to a trust in ourselves, a trust in the universe having our back, to any form of spirituality that does not even need to be religion based faith.

Absolutely Right Now, All of Our Mighty Family Needs help with feeling Empowered to be Hopeful and Optimistic And YOU can be a hero and participate in this mission that is greater than all of us, greater than our own social anxieties, greater than our own fears and doubts, greater than our fatigue…

Whenever you see this post, especially through the rest of the entire holidays —All of them coming up for all denominations and through and past New Years…add in a line or part of a line from a song, or a song title, that was written for Empowering all of us. That was written to speak to all of us. To Connect All of Us.

GAME ON.

GAME FACE.

YOUR friend in this hard thing called life,
Dawn

#Depression #Anxiety #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #PersistentDepressiveDisorder #MoodDisorders #Selfharm #Selfcare #Grief #ChildLoss #BipolarDisorder #Suicide #SuicidalThoughts #SuicidalIdeation #SuicideAttemptSurvivors #BorderlinePersonalityDisorder #ComplexPosttraumaticStressDisorder #ChronicPain #ComplexRegionalPainSyndrome #Fibromyalgia #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #PTSD #Trauma #PostTraumaticStressDisorder #AlopeciaAreata #AutoimmuneThyroidDisease #CrohnsDisease #AdrenalInsufficiency #AutonomicDysfunction #Cancers #LymeDisease #Migraine #ParkinsonsDisease #MultipleSclerosis #RareDisease #ADHD #BipolarDepression #AnorexiaNervosa #EatingDisorders #PosturalOrthostaticTachycardiaSyndrome #POTS #AutismSpectrumDisorder #AspergersSyndrome #Addiction #CerebralPalsy #RheumatoidArthritis #Arthritis #Disability #AddisonsDisease #ChronicIllness #CysticFibrosis #DownSyndrome #Epilepsy #MyCondition #musictherapy #Music #Songs #MightyMusic #IfYouFeelHopeless #WarmWishes #Agoraphobia #SocialAnxiety

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Redefining Your Narrative - Motivation, Empowerment, and a Pep Talk from my heart.

Brene Brown, PhD was one of my first and most impactful teachers at the start of my healing journey and wow, did she get me so far because she is an Emotions Researcher —- she spent the past two decades studying Courage, Vulnerability, Shame, and Empathy.

I can’t recommend her enough to also empower you on your healing, growth, and evolving journey to wellbeing and moving you towards your full potential to the best version of your authentic self.

You can watch her videos on YouTube and you can find her transformative best-selling books, videos, and articles, and even resources like workbooks on her website Brené Brown

What I want to emphasize here is that you should never feel alone in your journey because there are so many thought leaders and experts in whatever it is you are struggling with or with what you want to get better at that have already walked the same path and figured out this complex, but not yours alone - human experience. Seek them out - Google them, search for them on YouTube— keep looking out for my posts and my conversations threads and replies to others where I keep giving out these free resources for all of what we need to better understand to thrive. You can always ask me too, and I will be happy to do what I can to help find the expert who can help you with Self-Empowerment. There is a very good chance that expert’s name or advice/wisdoms are already in my copious notes in my phone. I am a constant learner about life, emotions, psychology….and I take detailed notes so I have at my fingertips what I will need to thrive and to fill the gaps in my emotional intelligence and self-development—- all of the critical things to thrive in life empowered that many a therapist never shared with me.

I hope that Self-Empowerment becomes your new favorite term too.

And these critical terms that start with the word “Self”: Self-Regulation (includes emotion regulation and our own regulation of our physiology like our breath, and our heart rate); and Self-Awareness, and Self-Acceptance, and Self-Worth, and Self-Esteem, and Self-Love, Self-Compassion, Self-Efficacy, Self-Discipline, Self-Discovery, Self-Respect.
Am I missing any? Each one is of critical importance for all of us to master ourselves.

I never want you to feel alone, not seen, not validated, powerless, flawed, worthless, or any of that stuff because literally, to be very clear - it is b*llsh*t.

Please Don’t let those thoughts have any say to get the best of you, they are just thoughts - which are just mental events on autopilot, they are not facts -they do not hold any meaning unless we give it power and meaning.

Here is one of the very Motivational and Self-Empowerment talks by Brene Brown that I Especially hope that you will embrace to help you not just survive but thrive more through the difficult holidays right here For us not Against us.

“Part of redefining your narrative is deciding what role you want to play in your own story.

Are you the hero who rises against the odds?
Are you the creator who builds something beautiful from the rubble?

Or are you the person who remains stuck letting the past dictate the future?

The choice is yours.
And, it starts with a single decision that I Will Not Let My Pain Define Me.
I Will Let It Refine Me.

Your life is a story and every experience- both good and bad becomes a chapter in that story.

But here is the truth that many of us overlook— you are the author.

You have the power to decide how the story is told; how the events are interpreted; and what meaning you give to the things that happens to you.

Redefining your narrative is not about erasing the past or pretending it didn’t happen.
It’s about choosing to see it through a lens of growth, resilience, and possibility.

Often we get stuck in narratives that no longer serves us.
Perhaps you told yourself that a failure defines your worth; or maybe you adopted a story of victimhood where everything that went wrong is proof that life is unfair.

These narratives can feel real because they are rooted in genuine pain or disappointment, but just because they feel real doesn’t mean they have to remain the dominant story of your life.

Redefining your narrative starts with awareness. Ask yourself what story have I been telling about myself in my life. Is it a story of defeat, scarcity, or limitation?

Is it a story where someone else’s actions hold all of the power?

Once you identify the narrative that you have been carrying, you can begin to rewrite it.

*One of the most transformative ways to redefine your narrative is to shift your perspective on hardship.*

*Instead of viewing challenges as evidence of your inadequacy, consider them as chapters of growth.*

What did you learn from that relationship that didn’t work out?

What strength did you develop from that setback?

What doors opened after the one you wanted closed?

*When you redefine your narrative, you take ownership of your story.*

*This doesn’t mean ignoring the pain, or pretending everything was okay, it means looking at the past with compassion and choosing to see yourself not as a victim but as a survivor, a learner, and a person who is continually evolving.*

*It’s also important to remember that your narrative isn’t just shaped by what happens to you; it’s shaped by the meaning you assign to those events.*

Two people can go through similar experiences and come out with entirely different stories.

*One may see rejection as proof they’re not enough, while the other sees it as redirection towards something better — which meaning will you choose?*

With warm wishes,

You friend in this hard thing called life,

Dawn 🤗

#MentalHealth #MightyTogether #Mindfulness #CheerMeOn #CheckInWithMe #DistractMe #WarmWishes #IfYouFeelHopeless #Suicide #Selfharm #SuicidalIdeation #SuicidalThoughts #SuicideAttemptSurvivors #ChronicIllness #GeneralizedAnxietyDisorder #Agoraphobia #Anxiety #Depression #MajorDepressiveDisorder #PersistentDepressiveDisorder #MoodDisorders #SocialAnxiety #Addiction #Disability #ComplexPosttraumaticStressDisorder #PTSDSupportAndRecovery #PostTraumaticStressDisorder #BorderlinePersonalityDisorder #BipolarDepression #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #AnorexiaNervosa #ADHD #Relationships #FamilyAndFriends #CerebralPalsy #AutismSpectrumDisorder #AspergersSyndrome #RareDisease #AlopeciaAreata #Cancers #ChronicFatigue #ChronicFatigueSyndrome #MyCondition #MultipleSclerosis #AutonomicDysfunction #PTSD #Cancer #ParkinsonsDisease #Migraine #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #POTS #CrohnsDisease #RheumatoidArthritis #Caregiving

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Making A Statement

Hi everyone, I wanted to share an important press conference I was so grateful to be apart of. It was regarding my personal heath journey, and speaking out about the difficulties with health insurance. I wanted to speak out publicly for everyone who’s enduring this battle and to know you are not alone! Please watch www.facebook.com/share/v/p5zkjhmpFx9ASJi5
#Grief #Depression #BrainInjury #SpinalCordInjury #AlopeciaAreata #Anxiety #MentalHealth #Addiction #ChronicIllness #JointHypermobilitySyndrome #ChronicFatigue #Loneliness #MightyTogether

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#treatments #fibroflareups #Osteoarthritis #PTSD #Anxietyanddepression #Anemia #AlopeciaAreata #CFS #COPD #ChronicPain

Hi Everyone
Has anyone had infusions for the treatment of fibromyalgia? If possible I’d be interested to hear how your treatment went and if it helped at all ? Any info would be much appreciated. I’m getting nowhere with any Drs I see, and trying to see a Dr is becoming a nightmare.
Thank you in advance xx

#Fibromyalgia

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Books With #RareDisease Representation

Many health challenges don’t get enough representation in literature. I think that definitely needs to change. Finding more common conditions in books is hard enough, but when you have a rare disease, it can be even harder to find yourself represented in a book.

That’s why I decided to compile a list of some YA books that contain characters with rare diseases. I hope some people can find a book to relate to on this list!

”Cursed” by Karol Ruth Silverstein Erica “Ricky” Bloom’s life has taken a turn for the worse. As if dealing with high school, her sister’s transition to college, and her parents’ divorce wasn’t enough, Ricky is diagnosed with #JuvenileIdiopathicArthritis . Ricky uses profanity to cope with her #ChronicPain , until her coping mechanisms are foiled by a boy with a diagnosis of#AcuteLymphoblasticLeukemia in his past and a snooty, but well-meaning, teacher. It turns out that not everyone is as they seem.

2.”100 Days” by Nicole McInnes

Agnes is not exactly like every other teenage girl. She likes pretty dresses, sewing, and music. She has a best friend. But Agnes has a disease that makes her appear several times older than her chronological age— #Progeria . With the help of her friend and an unexpected ally, Agnes’s last 100 days are her living her best life. But will the three friends be able to accomplish what counts before time runs out?

3.”How We Roll” by Natasha Friend

Quinn’s life changed when she was diagnosed with #AlopeciaAreata , which is not easy for anyone, let alone a high-schooler. A humiliating experience causes Quinn and her family to move. Quinn attempts to make friends, which proves difficult. Quinn meets Nick, who has #LimbAmputation because of a car accident. Can both Quinn and Nick learn to trust and let each other in before they build their walls too high?

4.”Midnight Sun” by Trish Cook

Seventeen-year-old Katie Price has a rare disease #XerodermaPigmentosu m that makes exposure to even the smallest amount of sunlight deadly. Confined to her house during the day, her company is limited to her widowed father and her best (okay, only) friend. It isn't until after nightfall that Katie's world opens up, when she takes her guitar to the local train station and plays for the people coming and going. Charlie Reed is a former all-star athlete at a crossroads in his life—and the boy Katie has secretly admired from afar for years. When he happens upon her playing guitar one night, fate intervenes and the two embark on a star-crossed romance.

5.”Everything, Everything” by Nicola Yoon

Madeline Whittier has #SevereCombinedImmunodeficiencySCID , which means she can’t leave her house. But one day, she sees a mysterious boy named Olly. And Olly makes her want everything—including things she can’t have. Like love.

Art of Feeling” by Laura Tims

Samantha Herring has been in constant pain ever since the car accident that injured her leg and killed her mother. After pushing her friends away, Sam has receded into a fog of depression until she meets Eliot, a carefree, impulsive loner, who is unable to feel any pain at all. At first, Sam is jealous. She would give anything to not feel the pain she’s felt for the past year. But the more she learns about Eliot’s medical condition #CongenitalInsensitivityToPain the more she begins to realize Elliot’s self-destructive tendencies. In fact, Eliot doesn’t seem to care about anything—except Sam. And as they grow closer, they begin to confront Sam’s painful memories of the accident, memories that hold a startling truth about what really happened that day.

Happy reading! 📚💖

#themightyreaders #RareDisease

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Howdy!

I just wanted to introduce myself as I'm new to the group. My name is Crystal, I'm 43 years old, and I've got multiple autoimmune issues. Pernicious anemia was the first one at 22 years old, rheumatoid arthritis at 27, HS at 38, and alopecia areata at 40. I'm looking forward to being able to share my experiences with you and hopefully offer support for the bad days.

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