Hashimoto's Thyroiditis

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Hashimoto's Thyroiditis
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    Community Voices

    Intercostal strain / Fibro

    This past week I have managed to strain both sides of my intercostal ( ribs ) muscles and let me tell you how painful it is. I can’t move certain ways, sometimes breathing brings on a sharp pain, and if I sit or lay in a certain position it is excruciating and it also makes the muscle spasm. Has anyone else evoerienced this? I also have Lupus and MS among other things, but this apparently is due to Fibro? #Fibromyalgia #Lupus #MultipleSclerosis #MyalgicEncephalomyelitis #PeripheralNeuropathy #HeartConditions #HashimotosThyroiditis #ChronicIllness

    12 people are talking about this
    Community Voices

    advice on healthily loosing weight with an ED, HEDS, PCOS, Depression etc. ??

    I am currently quite overweight and I want to get into better shape and loose weight for myself and was told to by my doctors. but that seems almost impossible with all of my illnesses. First of all I have an Eating disorder (not specified, more binge eating) which makes food and body image very complicated and then I have PCOS, hashimoto’s and hypothyroidism which is already hard to loose weight with on top of hypermobile EDS which makes getting active and moving physically very hard and painful and to top it off low energy and motivation with depression. I’m trying to do this to just slightly feel better but I don’t exactly how. How do you stay in shape with these kinds of setbacks? i’m open to any advice! Thank you <3 #BingeEatingDisorder #PolycysticOvarySyndrome #HypothyroidismUnderactiveThyroidDisease #HashimotosThyroiditis #HEDS #hypermobileehlers-DanlosSyndrome(hEDS) #EhlersDanlosSociety #EhlersDanlosSyndrome #Depression

    35 people are talking about this
    Community Voices

    Four White Walls and Spoonie Things

    I’ve been bedridden for 1 year 8 months and 9 days.
    I’m on an indefinite pause while the world whirls past me.
    It sucks not being a part of any of it. Being separated from everyone in the stale, dark, and yellowing rectangle room that I’ve memorized. While my friends, who have all moved on with their lives, eat, drink, and get married. (Pun intended).
    I love them all so much. And still; I deleted all my social media accounts so I wouldn’t have to scroll through and be reminded of what I can’t have. At least for a time. It’s just too painful right now. (Plus I just downright do not have the energy whatsoever.) I wish I could confide in them about this but even they have told me that they don’t fully get it. (You know, my health stuff since I’ve gotten so sick). While watching a chronic illness tv show, it had a very apt quote which was about having a group of ppl who are sick go through the same thing, and other ppl, no matter how much they care will not fully get it unless it’s the same thing. So that’s why im here now. So Hi! Nice to meet you👋🏼 I’m Kay, a Spoonie like you. Sometimes I sleep 18-20 hrs a day because I’m up literally alll night long from severe pain, and simply because my body literally is dealing with 14+ diseases. And the elderly care home I’m at (despite the fact that I’m 25 yrs old) is not able to give me the care I really need to battle it. But im doing PT and trying to learn to walk again so I can be among the living again. I’m not sure what, how etc that will mean since this is my only place to live and I have no family to live with in the state, so it’s in Gods hands from here. Before I was bedridden I was a lab assistant and worked myself almost to the grave. I kept telling myself I wasn’t sick because I didn’t want to be. At the time I didn’t have any confirmed diagnosis’s other than Lyme and multiple forms of co infections so I felt like that wasn’t enough to stop working long and hard hours. I’ve always had 1-3 jobs and ALWAYS felt super terrible physically, I just told myself I was fine and pushed it down. I didn’t want to be sick, I wanted to live life.
    Lol. Look how that turned out for me. 😂😆 YET, at the same time, I’ve learned a ton and although right now is an extra hard season, each season Jesus has taught me something, and always kept His promises to me. ♥️🤗
    In closing, here’s the thing.
    I don’t want to be on pause anymore. I’m doing my best to hit the reset button, but just as all you spoonies know, holy crap, does chronic illness kick butt. But keep going just like I am. (Not that I’m anything special). Don’t give up fellow spoonies. If I haven’t thrown in the spoons yet, after drs trying to literally kill me by illegal treatment, shaming me for losing my voice and saying I am faking it, refusing to read my text when it’s my only form of communication, and so SOOOOO much more that could fill a full series, and if other ppl, ppl I’ve read about and have endured much hardship can handle a lot, then so can you.
    WE can. Together.
    (You probably saw this the other day but I accidentally deleted it..technical difficulties😅.So here it is, again.😆💫✨)
    #EhlersDanlos #EhlersDanlosSyndrome
    #BorreliaTBRF
    #Babesiaduncani
    #Borreliosisburgdorferi
    #PosturalOrthostaticTachycardiaSyndrome
    #PainfulBladderSyndome
    #IrritableBowelSyndromeIBS
    #MastCellActivationDisorder #Viceralhyperalgeia #HypothyroidismUnderactiveThyroidDisease
    #HashimotosThyroiditis
    #AddisonsDisease
    #EBV
    #Fibromyalgia #raynaudssyndrome #TheBendyBunch
    #ChronicIllnessEDS
    #HEDS
    #hypermobileehlers-DanlosSyndrome(hEDS) #PainfulBladderSyndrome #ChronicPain
    #ChronicFatigue
    #RareDisease
    #Community

    16 people are talking about this
    Community Voices

    The sun is shining…

    <p>The sun is shining…</p>
    2 people are talking about this
    Community Voices

    In health purgatory

    I am 42 yrs old. I was 17 since I had weird symptoms periods and no periods. Extreme cramping, mood swings and No answers. Heavily fluctuating weight and no pregnancy even though I tried I was married then. I went to doctors and many years til I was in my mid twenties. Then moved to Florida had no health care. Then after Obama care passed finally able to get in 2016 health care. Well started doing the exams and test I needed. Found I had a goiter, cold nodules and starting to put pressure on trachea. So then six months find I have hashimoto's thyroiditis. Can't sleep or breathe well. Then in another six months goiter tripled three times size had to have surgery well my original surgeon retires so after him see second surgeon. Then surgery finally got scheduled I was 38 yrs old at this point. Had surgery and been having complications treating thyroid levels right because first endocrinologist didn't treat it right. Developed Chronic fatigue syndrome plus burning sensation in different parts of body due to TSH. Then after that was following up with my female health come to find out my complaints since 17 came to a head at 38. I found out I had Poly Cystic ovarian syndrome plus Adenomyosis. I wasn't crazy or exaggerating. When doctors for years said they couldn't find what was wrong. Well my insulin resistance and type 2 diabetes diagnosis and high cholesterol were all explained due to my Pcos. So my uterus was at a whopping 11.2cm big. Three times a normal uterus size. I wasn't menstruating and was 40 could barely do day to day duties. Walking, moving my hip and insides felt like they were gonna fall out incredible pain. Being a massage therapist I had to cut back hours and a day because my body couldn't. Went to a reproductive endocrinologist instead of a gynecologist because my gynecologist said they would have to slice me in half and tale uterus out. And I didn't want three months off. So I saw reproductive end and he heard my sordid story of how many years I been suffering and felt bad. He then referred me to next doctor a surgeon and I had my partial hysterectomy. Now after surgery got checked out and sent on my way all normal. Then started exhibiting high estrogen dominance and high testosterone both free and total. And here we are. Now I am in perimenopause and a third endocrinologist and still getting answers slowly. Not very happy but trying to lose weight and live life. #Hypothyroidism #PCOS #Perimenopause #CFS #Insomnia #BrainFog

    2 people are talking about this
    Lori Soucie

    Chronic Illness Remission Without COVID-19 Antibodies

    The words on the page looked like they were written in some foreign language. I stared at my laptop for what seemed like hours, trying to make sense of what my doctor was telling me. “… zero presence of COVID-19 antibodies… new medicine may be available… FDA emergency approval…” Zero antibodies? Zero?! Did I read that correctly? Let me look again… You can imagine my surprise. I had just received a third shot – a full third dose of a two-shot COVID-19 vaccine just a few weeks prior. I had been so careful to choose vaccine dates that corresponded to the timing of my infusions — attempting to find a “just-right” date on the calendar when my body would recognize the spike of protein in the vaccine and create antibodies. I felt certain that my body would be able to create some antibodies. Just a few was all I needed. To make it safe to buy groceries. To hug my family. To see friends. To live a full life. I have two autoimmune diseases: Hashimoto’s thyroiditis and rheumatoid arthritis (RA). To keep my body functioning properly, every week, I draw bright yellow liquid into a syringe and find a soft place on my belly to inject my medication. Every six months, I open a vein at a clinic in Portland so that a powerful B-cell depleter can be drawn into my body. I take pills for my thyroid condition and supplements to support my nutritional health. I’ve had injections in numerous joints (including my fingers — ouch!). I have regular blood tests, which are required to monitor liver and kidney functioning. Controlling chronic health conditions requires a serious commitment. It is what I must do to control my body’s impulse to dysregulate my immune system and mistakenly attack my body. When I was first diagnosed with RA, the pain and inflammation in my joints made it impossible to dress myself. I limped when I walked. I lost strength and struggled with fatigue. And look at me now — I am in remission! Sweet remission. But there is a dark side to remission no one told me about. Although my medications have helped my body stay inflammation-free, they have also left me defenseless against viruses, COVID-19 variants, germs, and diseases. Both “new” threats and “old” threats are still threats to my health. Until I read my doctor’s email with my antibody results, I was unaware of how devastating my medication had been to my immune system. Sure, I knew that the meds I took lowered my immunity, but I did not fully realize that I may not be able to create antibodies. I remember the moment when it slowly began to sink in that I am truly immunocompromised. My immunocompromised state could be even more dangerous to my health than my RA and hypothyroidism. Processing this new information has taken a long time and has been fraught with questions. How do I live in a world of germs without any defenses? Will I be able to live through another pandemic? Will I ever be able to travel abroad? Can I hug my grandson without the fear of catching an illness he picked up at daycare? What invisible danger is lurking around the next corner? And the big question: Is remission worth it? This new diagnosis has come with the grief, anger, bargaining, and acceptance stages of a major life change. As I did when I was diagnosed with RA, I am learning to make new adjustments to my life. Masking, handwashing, and being careful about close contacts will be an ongoing part of my life. Despite these health obstacles, I still feel gratitude. Although I don’t know what my health will look like in the future, all that I can do now is focus on this moment. At this moment, my body feels good. At this moment, the sun is warming our home. At this moment, my dog is curled tightly in a circle of sleepiness. At this moment, I feel loved. All is well. I wish you well in your journey towards remission and good health. Feel free to tell me about your journey too.

    Community Voices

    I'm new here!

    Hi, my name is LadyTiriki. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #Fibromyalgia

    #Depression

    #ADHD . I have been diagnosed with fibromialgia costochondritis , peripheral neuropathy ,thyroid nodules (checking now for cancer ) Hashimoto's Thyroiditis,, ADHD,. I have pain everywhere, The pain from the neuropathy is constant and at times excruciating. Because of this and loss of balance it is hard to walk ,even with my cane .I'm the wife of a disabled veteran, also his official (according to the Veterans Administration) caretaker and fiduciary The constant fatigue,brain fog and pain are making it very difficult to care for my husband and do my cooking and household chores . . Both my husband and my adult children ( two of whom live with us ) cannot understand how sick feel and are always upset at me because don't do what need to do.They think I'm lazy and refuse to help me . I am not shy or unable to speak for myself but 'm at a loss of how to make my family understand and how to change this dynamics.

    1 person is talking about this
    Community Voices

    What do I do now….?

    Had a thorough few appointments with a neuropsychologist. FINALLY. After many, many years of turmoil and suffering searching for one; searching for someone to listen and take me seriously. I thought this was finally it.

    WHAT do you do, though, when the doctor basically says to you that your SYMPTOMS are causing your symptoms???
    Without even realizing it on their own that they’re saying something almost criminally absurd? And then leaves you with nothing. No answers.

    I’m just sitting here crying and feeling like I can’t keep going on today… #Depression #Anxiety #ChronicPain #HEDS #EhlersDanlosSyndrome #Fibromyalgia #HashimotosThyroiditis #ThyroidCancer #ChronicMigraineSyndrome #chronicmigraine #BrainFog #SocialAnxiety #MigraineWithAura #DoctorVisit #DoctorShopping ?! #ADHD #AdultADHD #UndiagnosedADHD #ADHDInGirls #Adhdinwomen #Dyscalculia

    17 people are talking about this
    Community Voices

    Weekend trip

    <p>Weekend trip</p>
    16 people are talking about this
    Community Voices

    Hashimoto's Disease#

    I have gained over 80 lbs over gaining an already high amount of weight. I cannot get it off. I need help if anyone has Hashimoto's that can help please respond. I am desperate. I am thinking of gastric bypass but that has complications since i am studying it. Not sure it is a good thing to get. Please respond. thank you

    #HashimotosThyroiditis

    4 people are talking about this