longtermsurvivor

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    The article below is full of great ideas on how to find a good new doctor…please add your own experiences, tips and suggestions

    Great article that talks about the importance of good bedside manner, doctors that listen, checking your insurance at the start of your search, asking good questions and do your homework of course! It has lots of good ideas especially at the end under “Finding a good fit”…like…

    “…During that first visit, think about how the doctor and office staff make you feel, HHS advises. If the doctor doesn’t make you feel comfortable, show respect for what you have to say, know your medical history, and spend enough time with you, then they might not be the one for you.”

    www.everydayhealth.com/healthy-living/new-survey-asks-what-d...

    #MentalHealth #Depression #Anxiety #Disability #PTSD #Selflove #Selfcare #ChronicIlless #ChronicPain #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #COVID19 #Migraine #Headache #PeripheralNeuropathy #Concussion #BrainFog #ParkinsonsDisease #balance #EssentialTremors #Memory #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #ADHD #RareDisease #ChronicFatigue #IfYouFeelHopeless #Hope #Faith #FuriouslyHappy #Belief #Love #help #GettingHelp #InsideTheMighty #TheMighty #MightyTogether #DistractMe

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    Concussion, Migraines, major Balance issues, Parkinson’s, tremors, Neuropathy, shoulder/neck pain, back pain, brain fog, poor memory, and no appetite.

    (PART ONE) Please send me prayers, good vibes, healing energy and keep me in your thoughts. It would really be appreciated. It is very hard for me to ask for help…but bedrudgundly I have been parking in handicap parking spaces and recently began using a walker. To be honest I’ve had to! I had four falls at the end of December and I am constantly catching myself from falling over and having to regain my balance and re-direct myself. It is very challenging in my apartment where I have no support and very often find myself leaning against walls and always being very conscious to make slow turns part by part like a clock, and get up from a sitting position very carefully the special way I was taught.

    Just this past February I was diagnosed with Parkinson’s with Essential Tremors and balance problems, and had to stop a med I took before bed for over 10 years that may have been causing it and then without it I didn’t get a good night’s sleep for over a month and woke up 3-4 times every night.

    Two and a half months ago I had a bad fall at my mom’s, scared her half to death and injured my neck and shoulder. I had just started PT for that when I had another big fall … hard, and my head snapped back as I hit the ground. Later that week I was diagnosed with a concussion and I have seen 5 doctors and had about 10 appointments so far since then and been to a concussion clinic. Then I saw another Neurologist and he confirmed what another said…that my symptoms from my concussion likely will last up to 6 months!!! Thankfully it’s already been 6 weeks but there is 4.5 months ahead. But he was optimistic about the progression I’ve had and said I am on the Path to Recovery! But it sure is a rocky path!

    Other symptoms I have had are really bad brain fog and memory issues which have left me having to stop and take a long break to find the right words or even remember where I am in a conversation, and having to look up the spelling or meaning of simple words. These two things are very scary and embarrassing…(please continue to Part Two below)

    #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #Selflove #Selfcare #Concussion #balance #ParkinsonsDisease #EssentialTremor #PTSD #COVID19 #Migraine #MigraineBrainFog #Memory #HIVAIDS #longtermsurvivor #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #TheMighty #MightyMinute #MightyMoment #MightyTogether #DistractMe #IfYouFeelHopeless #Hope #relief #Love #PeripheralNeuropathy

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    Would you rather have magic powers or super speed & strength? Or something else? See the new article I just posted above w/ a great survey to answer

    This question was posed someplace else on The Mighty and got great answers with insight, reflection and many coming from a place of wanting or needing. I started saying I would want a great healthy and durable body and stable mental health ….but read somebody else’s response and realized if I had magic powers I could make myself cured of my mental health challenges and grant myself a great new body and then do even more… I got to thinking of what else I could do with magic powers…and thought big like I could eradicate all suffering and diseases and create empty hospitals and bored doctors and of course …World Peace and no war and all people would get along and respect each other… but then thought small like I myself would have no financial worries and with my stable health have a great job I can flourish in with my healthy body and mind…and be able to make more of a difference in the world.

    What would you do with magic powers? Or what else would you like to have (think big!)

    #MentalHealth #Depression #Anxiety #Disability #PTSD #Selflove #Selfcare #ChronicPain #ChronicIllness #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #RareDisease #COVID19 #Migraine #HIVAIDS #longtermsurvivor #Fibromyalgia #IfYouFeelHopeless #Hope #DistractMe #TheMighty #MightyMinute #MightyTogether #mentalhealthwarrior #Addiction #AddictionRecovery #Cancer #ParkinsonsDisease #EssentialTremors

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    THANK YOU SO MUCH... WE HAVE REACHED 1,500 members … and counting! If you haven’t joined us yet we welcome you to join our community!

    Thank you for joining us as we support each other with our multiple health challenges! We appreciate you being a part of our community. This group was started with the intention of being a place where members can empathize with each other, find support and offer support to others. We love watching as this has been happening, but we think we can get even stronger! Please consider commenting or responding to other’s posts and responses even more. Even if it’s just a ❤️ or a 👍... or respond with a comment. This really helps us to feel supported and encourages people to post more.

    Thank you for joining us on our journey so far and we look forward to getting to know you all better in the future.

    Your Multiple Health Challenges Leaders! 💜❤️👍

    #MentalHealth #Depression #Anxiety #Disability #ChronicIllness #ChronicPain #Selflove #Selfcare #PTSD #COVID19 #Migraine #ChronicDailyHeadache #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #RareDisease #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #Cancer #IfYouFeelHopeless #Hope #TheMighty #MightyTogether #MightyMinute #mentalhealthwarrior #Grief #Headache
    #RareDisease #Asthma #Suicide #Trauma #DistractMe #CeliacDisease #FunctionalNeurologicalDisorder #EhlersDanlosSyndrome #ParkinsonsDisease #Autism #AlzheimersDisease #Dementia #BrainInjury

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    Things that could have broken you, things you’ve overcome, storms that you survived and pushed through …all made you stronger and a better person!

    So, you’ve been through hell and back… and are still here, stronger than ever! You’ve proved to yourself how capable and strong you are and how powerful and strong you can be. You don’t need to prove yourself to anyone else! Just find a way to dig deep and give yourself credit for being a survivor, and find a way to be proud of yourself and know you did more than enough with the cards you were dealt!

    You are a survivor, a warrior, you have kept putting one foot ahead of the other and doing the next right thing…that is not easy, not easy at all, and what others think based on what they can see is irrelevant. You should know yourself that you have nothing to prove to them. I hope you can step back and see what you’ve overcome and how strong you are. Please know you have done enough and you don’t owe anyone else an explanation or worry what they may think or say.

    #MentalHealth #Depression #Anxiety #Disability #ChronicIllness #ChronicPain #Selflove #Selfcare #PTSD #COVID19 #Migraine #Headache #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #RareDisease #ObsessiveCompulsiveDisorder #IfYouFeelHopeless #Hope #relief #Joy #happy #TheMighty #MightyTogether #MightyMinute #mentalhealthwarrior

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    Life can be short, life can be fragile and fleeting, yet life is a blessing, and those whose lives are taken from us leave us memories that cannot die

    I just heard some difficult news. A dear friend who I know has been struggling fighting serious health problems just told me they have a limited time left to live. It has reminded me how precious life is, how beautiful life is, how short lives can be, how fleeting our good health can be and how unfair life can be. As loved ones become ill and their health diminishes those of us close to them can feel helpless and just wish there was something we could do to lessen their pain, to alleviate their suffering, to concoct some sort of magic potion, a panacea to bring them back to good health and lengthen their lives back to that we once thought they had left.

    But there is often nothing we can say that will help as much as we would like, despite our wanting to make a difference there is nothing we can do to change things and turn fate around, nothing we can offer to help alleviate their pain and suffering and nothing we can offer their family and friends to help cushion the blow.

    As I heard the news of my friend’s declining health I was deeply saddened. They are young and can appear so vibrant and healthy, so strong and spirited …but I have known the truth, known their days were numbered…however I thought they had years to live, instead they just told me it is months, even weeks or days.

    I just want to give them a big, deep, comforting, loving hug … but alas, life has them hours away. Life that is so fleeting for them has us separated by space that a hug can’t travel. It's just a virtual hug that I can offer. It’s a lot, but sadly I feel like it’s not enough.

    I can only send my love and support through words. Yet I know this can make a difference. I know from first hand experience that thoughts and prayers can travel through a phone call, cyberspace and through intention and belief…but it doesn’t feel like it’s enough. It just doesn’t seem fair. It seems like there is a void that cannot be filled.

    So I will keep them in my thoughts and prayers. Those words can seem hollow and often insignificant because they are shared so often that they don’t seem to mean enough anymore… but I will think about them a lot, I will pray for them, I will send my blessings that they don’t suffer, that they are not in pain, that they can enjoy every moment left in their life, that their joy and spirit will give them strength to live their remaining life to its fullest as much as they can.

    I will deeply mourn the loss of this friend, I will mourn the loss of a young life cut short, I will mourn someone I will not be able to hug… but I also know that they would want me to celebrate their life, celebrate the joy and exuberance they lived that life with, celebrate all the ways they touched others and made a difference in our lives. I will celebrate them, celebrate life … even if it can be short. I will celebrate their spirit and the memories that cannot be taken away. That part of their life is left with us all …forever!

    #MentalHealth #Depression #Anxiety #Disability #ChronicIllness #ChronicPain #Selflove #Selfcare #PTSD #COVID19 #Migraine #Headache #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #RareDisease #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #Cancer #IfYouFeelHopeless #Hope #relief #Joy #happy #TheMighty #MightyTogether #MightyMinute #mentalhealthwarrior #Grief #LossOfAParent #LossOfAChild #ChildLoss #Death #Mourning #sad #worry #Fear

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    I’m dealing w/ many health challenges currently. Appt w/specialist tomorrow to see if my tremors may be Parkinson’s. Prayers & good vibes appreciated

    I sat at services tonight with my glasses fogging up in my mask (eyes); my hearing aids not helping me enough, making it hard to hear my Mom (ears); my legs shaking as I sat and having such a hard time turning pages in the prayer book as my hands shook (essential tremors); worrying every time that we stood up and during the long walk from the car to the sanctuary that I was going to fall over (balance); not being able to focus in the sermon beyond one paragraph without losing track (brainfog, focus); sitting with my long legs cramped in the seat and with my calves & feet burning from my Neuropathy (legs).

    Thankfully I didn’t have a migraine (head) tonight (they have been less frequent these days but they can still ruin a day or night when they do happen) and my back didn’t hurt (body). Two small victories, less things to deal with, at least for tonight. I have somehow mostly been able to not allow myself to get caught in the down side of my bipolar depression. So no major depression (emotional), another small victory, but I did have severeanxiety (emotional) as I packed and tried to get out the door …bad enough that I took the med I have for anxiety that I have never taken before driving. And I had a day without complications from being HIV+ and aging (immune system) and no times struggling with PTSD (emotional) And today was another sober day (addiction) I have 10 years 9 months

    While I was struggling so much to tie my tie and button my shirt with my hands shaking I looked in the mirror. I saw my balding head with a grey beard and just suddenly felt really OLD. I have to admit to myself that my body isn’t what it once was, I can’t do most of the things I used to do…I compared myself to my dad who didn’t get his tremors until his 70’s and mine are getting worse rapidly and I’m only 57! But it all could be part of something bigger…I will say it for the first time…I may have Parkinson’s Disease! Ok I said it. I’m seeing a tremor specialist at a Parkinson’s Disease and Movement clinic next week and to be honest I wouldn’t mind the diagnosis… at least I’d then know what’s causing all the symptoms I’m having!

    UPDATE: This was written a week ago and since then I have pushed myself and gone on two 45 min walks and an hour hike. I got new trekkers (2 aluminum poles) and they have given me much more confidence I can move safely and provided great support from falling. I will do as much as I possibly can…I’m not going to let my challenges stop me from being active and enjoying life! My appointment is tomorrow…prayers and sending good vibes would be appreciated

    #MentalHealth #Depression #Anxiety #PTSD #Selfcare #Selflove #ChronicPain #ChronicIllness #BipolarDisorder #BipolarDepression #RareDisease #COVID19 #Migraine #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #Grief #LossOfAParent #Disability #IfYouFeelHopeless #Hope #Love #TheMighty #MightyTogether #mighty

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    Moving forward can mean leaving the past behind. We’ve come so far and yet we still have so much to learn. What is something helpful you’ve learned?

    Being gentle with ourselves can be really tough especially when we reflect back and judge ourselves. It is so easy to be mad at ourselves for not knowing things when we were younger. But it has to be that way. If we already knew everything, there would be no room for us to grow in this life. Please share something helpful or useful you have learned along the way. We can learn so much from each other!

    Thanks to you all. Thanks for how you have been working to support each other!

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below in this post and others. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment or new post a simple ❤️or reply I’m sure they would really appreciate your support.

    #MentalHealth #Depression #Anxiety #PTSD #Disability #ChronicIllness #ChronicPain #Selflove #Selfcare #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #RareDisease #COVID19 #Migraine #Headache #HIVAIDS #longtermsurvivor #PeripheralNeuropathy #Neuropathy #BackPain #Addiction #AddictionRecovery #Fibromyalgia #Chronicpainwarrior #MentalHealthHero #Stigma #Grief #LossOfAParent #IfYouFeelHopeless #Hope #thankful #grateful #relief #Happiness #Acceptance #PainAcceptance #strength #CheckInWithMe #TheMighty #MightyTogether #MightyMinute #DistractMe

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    Let life surprise you…what’s an obstacle you have that is holding you back from happiness?

    Ever gotten something you wanted, and it didn't give you the happiness you were expecting? Or you got something you didn't want, and you loved it? We assume we know what is good for us but life has a way of surprising us all the time. Does anyone have a story where this sort of unexpected result happened?

    #MentalHealth #Depression #Anxiety #PTSD #Disability #ChronicIllness #ChronicPain #Selfcare #Selflove #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #RareDisease #COVID19 #Migraine #Headache #HIVAIDS #longtermsurvivor #Neuropathy #PeripheralNeuropathy #BackPain #EssentialTremors #Bronchitis #Pneumonia #CPTSD #Addiction #AddictionRecovery #Fibromyalgia #Cancer #Diabetes #Chronicpainwarrior #MentalHealthHero #Stigma #Grief #LossOfAParent #IfYouFeelHopeless #Hope #thankful #grateful #relief #Happiness #Acceptance #PainAcceptance #strength #CheckInWithMe #TheMighty #MightyTogether #MightyMinute

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    This gem shares so much wisdom. I grew up w/ the rhythmic, lyrical words in Dr Seuss books & enjoyed the beautiful pictures but there was so much more

    If put into action these quotes from his children’s books have power and take on whole new meanings! They are accessible, relatable, wise and can be truly helpful…I’m not talking about “Green Eggs and Ham” I’m talking about the masterpiece “Oh, The Places You Will Go” which has most of these words. The book can launch you on the next adventure in your life. I’ve given it as a great graduation gift and there is much to gather if you read it more than once.

    < I read this book by the light of a flashlight next to the ashes of the fire that had burned down at the campfire that night. A campfire full of skits and songs. I read it to the scouts there who were attending the High Adventure camp I staffed at…the night before they launched on a weeklong adventure as they hiked from one challenging outpost to another* Many were paying attention to the words themselves, not just the rhymes… and processed the wisdom in the words he wrote. He wrote with humor, funny pictures, and rhymes but there was no mistaking that there was a powerful message inside!

    I recommend the book wholeheartedly but in the meantime the words above capture much of the wisdom in it. “The Lorax” taught me about respecting nature and the plight of trees harvested for other uses; “Did I Ever Tell You How Lucky You Are” taught me appreciation and “You’re Only Old Once” made my Grandmother laugh!

    —————————————————-

    *At that camp I ran a rope course, friends ran horseback riding, mountain biking and kayaking outposts and there were themed outposts like a Native American one and one called Mountain Man. We challenged the scouts to step outside their comfort zones, challenge themselves to grow and evolve. Best summer of my life!

    What did you get from Dr Seuss books? Did you catch the layers?

    #MentalHealth #Depression #Anxiety #Disability #PTSD #ChronicPain #ChronicIllness #COVID19 #Migraine #Headache #Selflove #Selfcare #IfYouFeelHopeless #Hope #Joy #Love #peace #ObsessiveCompulsiveDisorder #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #HIVAIDS #longtermsurvivor #RareDisease #Addiction #AddictionRecovery #BackPain #Neuropathy #CheckInWithMe #TheMighty #MightyTogether #MightyMinute

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