LossOfAParent

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    We are in need of a new co-leader for our group. Please see info below. We need someone to encourage, empower, support & be there for other members!

    We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We have grown quite a bit and just passed 1,500 members. In the past co-leaders have been golden, really helpful for me when I got sick or burnt out and had to step away for a few days. I am looking for someone to welcome new members, comment or respond to most posts or other comments, make new posts to the group every once and a while, and preferably someone who has physical and emotional health challenges so they can best relate to and understand where other members are coming from when they post or comment.

    It is important for the group to have two distinctly different voices to support people because people might relate more to one of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.

    Offering your own posts provides more content for the group…and when posts pose a question they keep things moving forward. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like it, comment on your posts to get the responses going to best support your efforts, help finding memes or images, and support you if we are dealing with someone struggling …. Like sounding suicidal or being manic…and I will check in to make sure you are happy and comfortable!

    I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people. A co-leader works together with me for some new posts and drafting new questions and is concerned about the well being of all members and can empathize with their paths.

    You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!

    #Depression #Anxiety #MentalHealth #ChronicPain #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #Bipolar2Disorder #Bipolar1Disorder
    #Stigma #ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #ChronicFatigueSyndrome #DistractMe #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #Disability #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #alcoholic #PTSD #EmotionalHealth #physicalhealth PainAcceptance #Acceptance #relief #Selflove #MightyMinute #MentalHealthHero #TheMighty #RareDisease #MightyTogether

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    Life can be short, life can be fragile and fleeting, yet life is a blessing, and those whose lives are taken from us leave us memories that cannot die

    I just heard some difficult news. A dear friend who I know has been struggling fighting serious health problems just told me they have a limited time left to live. It has reminded me how precious life is, how beautiful life is, how short lives can be, how fleeting our good health can be and how unfair life can be. As loved ones become ill and their health diminishes those of us close to them can feel helpless and just wish there was something we could do to lessen their pain, to alleviate their suffering, to concoct some sort of magic potion, a panacea to bring them back to good health and lengthen their lives back to that we once thought they had left.

    But there is often nothing we can say that will help as much as we would like, despite our wanting to make a difference there is nothing we can do to change things and turn fate around, nothing we can offer to help alleviate their pain and suffering and nothing we can offer their family and friends to help cushion the blow.

    As I heard the news of my friend’s declining health I was deeply saddened. They are young and can appear so vibrant and healthy, so strong and spirited …but I have known the truth, known their days were numbered…however I thought they had years to live, instead they just told me it is months, even weeks or days.

    I just want to give them a big, deep, comforting, loving hug … but alas, life has them hours away. Life that is so fleeting for them has us separated by space that a hug can’t travel. It's just a virtual hug that I can offer. It’s a lot, but sadly I feel like it’s not enough.

    I can only send my love and support through words. Yet I know this can make a difference. I know from first hand experience that thoughts and prayers can travel through a phone call, cyberspace and through intention and belief…but it doesn’t feel like it’s enough. It just doesn’t seem fair. It seems like there is a void that cannot be filled.

    So I will keep them in my thoughts and prayers. Those words can seem hollow and often insignificant because they are shared so often that they don’t seem to mean enough anymore… but I will think about them a lot, I will pray for them, I will send my blessings that they don’t suffer, that they are not in pain, that they can enjoy every moment left in their life, that their joy and spirit will give them strength to live their remaining life to its fullest as much as they can.

    I will deeply mourn the loss of this friend, I will mourn the loss of a young life cut short, I will mourn someone I will not be able to hug… but I also know that they would want me to celebrate their life, celebrate the joy and exuberance they lived that life with, celebrate all the ways they touched others and made a difference in our lives. I will celebrate them, celebrate life … even if it can be short. I will celebrate their spirit and the memories that cannot be taken away. That part of their life is left with us all …forever!

    #MentalHealth #Depression #Anxiety #Disability #ChronicIllness #ChronicPain #Selflove #Selfcare #PTSD #COVID19 #Migraine #Headache #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #RareDisease #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #Cancer #IfYouFeelHopeless #Hope #relief #Joy #happy #TheMighty #MightyTogether #MightyMinute #mentalhealthwarrior #Grief #LossOfAParent #LossOfAChild #ChildLoss #Death #Mourning #sad #worry #Fear

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    I’m dealing w/ many health challenges currently. Appt w/specialist tomorrow to see if my tremors may be Parkinson’s. Prayers & good vibes appreciated

    I sat at services tonight with my glasses fogging up in my mask (eyes); my hearing aids not helping me enough, making it hard to hear my Mom (ears); my legs shaking as I sat and having such a hard time turning pages in the prayer book as my hands shook (essential tremors); worrying every time that we stood up and during the long walk from the car to the sanctuary that I was going to fall over (balance); not being able to focus in the sermon beyond one paragraph without losing track (brainfog, focus); sitting with my long legs cramped in the seat and with my calves & feet burning from my Neuropathy (legs).

    Thankfully I didn’t have a migraine (head) tonight (they have been less frequent these days but they can still ruin a day or night when they do happen) and my back didn’t hurt (body). Two small victories, less things to deal with, at least for tonight. I have somehow mostly been able to not allow myself to get caught in the down side of my bipolar depression. So no major depression (emotional), another small victory, but I did have severeanxiety (emotional) as I packed and tried to get out the door …bad enough that I took the med I have for anxiety that I have never taken before driving. And I had a day without complications from being HIV+ and aging (immune system) and no times struggling with PTSD (emotional) And today was another sober day (addiction) I have 10 years 9 months

    While I was struggling so much to tie my tie and button my shirt with my hands shaking I looked in the mirror. I saw my balding head with a grey beard and just suddenly felt really OLD. I have to admit to myself that my body isn’t what it once was, I can’t do most of the things I used to do…I compared myself to my dad who didn’t get his tremors until his 70’s and mine are getting worse rapidly and I’m only 57! But it all could be part of something bigger…I will say it for the first time…I may have Parkinson’s Disease! Ok I said it. I’m seeing a tremor specialist at a Parkinson’s Disease and Movement clinic next week and to be honest I wouldn’t mind the diagnosis… at least I’d then know what’s causing all the symptoms I’m having!

    UPDATE: This was written a week ago and since then I have pushed myself and gone on two 45 min walks and an hour hike. I got new trekkers (2 aluminum poles) and they have given me much more confidence I can move safely and provided great support from falling. I will do as much as I possibly can…I’m not going to let my challenges stop me from being active and enjoying life! My appointment is tomorrow…prayers and sending good vibes would be appreciated

    #MentalHealth #Depression #Anxiety #PTSD #Selfcare #Selflove #ChronicPain #ChronicIllness #BipolarDisorder #BipolarDepression #RareDisease #COVID19 #Migraine #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #Grief #LossOfAParent #Disability #IfYouFeelHopeless #Hope #Love #TheMighty #MightyTogether #mighty

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    Moving forward can mean leaving the past behind. We’ve come so far and yet we still have so much to learn. What is something helpful you’ve learned?

    Being gentle with ourselves can be really tough especially when we reflect back and judge ourselves. It is so easy to be mad at ourselves for not knowing things when we were younger. But it has to be that way. If we already knew everything, there would be no room for us to grow in this life. Please share something helpful or useful you have learned along the way. We can learn so much from each other!

    Thanks to you all. Thanks for how you have been working to support each other!

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below in this post and others. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment or new post a simple ❤️or reply I’m sure they would really appreciate your support.

    #MentalHealth #Depression #Anxiety #PTSD #Disability #ChronicIllness #ChronicPain #Selflove #Selfcare #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #RareDisease #COVID19 #Migraine #Headache #HIVAIDS #longtermsurvivor #PeripheralNeuropathy #Neuropathy #BackPain #Addiction #AddictionRecovery #Fibromyalgia #Chronicpainwarrior #MentalHealthHero #Stigma #Grief #LossOfAParent #IfYouFeelHopeless #Hope #thankful #grateful #relief #Happiness #Acceptance #PainAcceptance #strength #CheckInWithMe #TheMighty #MightyTogether #MightyMinute #DistractMe

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    Let life surprise you…what’s an obstacle you have that is holding you back from happiness?

    Ever gotten something you wanted, and it didn't give you the happiness you were expecting? Or you got something you didn't want, and you loved it? We assume we know what is good for us but life has a way of surprising us all the time. Does anyone have a story where this sort of unexpected result happened?

    #MentalHealth #Depression #Anxiety #PTSD #Disability #ChronicIllness #ChronicPain #Selfcare #Selflove #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #RareDisease #COVID19 #Migraine #Headache #HIVAIDS #longtermsurvivor #Neuropathy #PeripheralNeuropathy #BackPain #EssentialTremors #Bronchitis #Pneumonia #CPTSD #Addiction #AddictionRecovery #Fibromyalgia #Cancer #Diabetes #Chronicpainwarrior #MentalHealthHero #Stigma #Grief #LossOfAParent #IfYouFeelHopeless #Hope #thankful #grateful #relief #Happiness #Acceptance #PainAcceptance #strength #CheckInWithMe #TheMighty #MightyTogether #MightyMinute

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    If you are drawn to do so would you send your prayers and blessings to my Mom. She is deeply struggling, weakening and mourns the loss of my dad!

    My Mom is the strongest person I know. My role model, constant support, confidant, my rock, and my best friend who has loved me so unconditionally through everything I’ve been through. I’m definitely a Momma’s Boy! She has always been the caregiver in our family her whole life, but now with my Dad dying she is the woman who needs help. She is a shell of the woman she used to be, frail, fragile, unstable … She isn’t eating well, isn't drinking enough water and says she can’t sleep. When I hugged her when I first got here today, she completely fell into my arms, weak, and drained of so much energy. At 84 she is losing her vision, has a bad back, she is not nearly as strong and physically able as she was, and sometimes has little balance. I find myself caught in the sad and scary role of parenting the parent.

    She has always been an amazing wife, Mom and worked a job as a Music Therapist helping thousands of special needs students at the school she worked at and with her private clients she worked with in a 60 year career. As a child I watched her make such a difference in people’s lives and saw her passion for her work. (Inspired I became a Drum Circle Facilitator and teacher myself working with children with cancer, teens & adults with developmental differences, at risk teens and more.)

    But Covid changed everything…her private practice that was already slowing down after she retired from her school just abruptly ended. And she became lost, didn’t renew her license, got off the music therapy list serve and now her piano is even out of tune!

    ————————————————-

    Dad died 18 months ago while Covid raged…staying alive long enough to celebrate their 60th wedding anniversary together. She said today she has never lived alone. For a year she just kept putting one foot in front of the other and stayed busy…then at the year anniversary of his passing she broke down. I had never seen her like the way she was. Depressed, despondent, sad, and physically and emotionally drained to the point where we all worried she wouldn’t make it. She is still living in the house I grew up in with my two sisters, but now it is empty, she’s all alone, and everywhere she looks there are memories. She has lost a lot of weight and she was already petite. Her face is thinned and there are deep black circles under her eyes.

    I love her so very dearly and would do absolutely anything to help her feel better, get stronger, regain her appetite, and thrive again. Coming to see her and calling her on the phone has become soooo hard. I just want to help her find her way back, and I want to say the right magical thing to make her happy and energized, and be able to make the simplest decisions that trouble her so much now. She has lost her confidence, her motivation, just says she has nothing to wake up for, and gets caught in loops of struggling to decide things. Today she told me “I’ve lost my identity.” She is lost and weakening…

    If you would, please send her prayers for her renewed strength and happiness.

    #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #PTSD #Grief #LossOfAParent #BipolarDisorder #BipolarDepression #Addiction #AddictionRecovery #COVID19 #Migraine #Selflove #Selfcare #MightyTogether #TheMighty #MightyMinute #IfYouFeelHopeless #Hope

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    1,000 members and growing strong…your leaders Moshe, Chris and Neeta thank you for your support and helping build this community!

    We love reading your posts, seeing your smiling faces and hearing your stories. Good or bad, what we share with each other is vital to making a difference as this community was designed to find others who are living with multiple health challenges like we all do. These combined together can make our lives unmanageable, and Moshe started the group to create a community so we can empathize and support each other. It started with a modest goal of finding 20-30 people who walk similar paths of the same or different physical and/or mental problems. But now we are excited to have had all of you join us and feel very blessed that so many of you have found us here!!! We’re honored to now be a part of a group that is growing rapidly, and having new people post and follow our posts.

    Over this time we have made over 100 posts ourselves with memes and images, sharing our stories: what we’ve been through, how we have struggled, what we have learned, and what has helped us along the way. Some of our posts have new writing pieces that are pretty deep and we try to be as open and honest as we can be. Other posts simply have a few sentences reflecting on the meme or the image. And we’ve offered a number of questions which have encouraged great discussions. We would be honored if you were to scroll down and find the posts, which all have an image or meme.

    Many current and new members have also shared their stories, struggles, frustration, worry, fear, and lessons learned & successes. We all try to acknowledge, relate, empathize and support each other. It takes courage to share with strangers but we are non-judging, accepting and supportive of each other. We would love to see more posts from all of you so we can get to know each other, and/or please respond to each other's posts with a ❤️or a comment. When you create a new post sharing your picture or adding an image at the top attracts more attention, and then hashtags at the end reach other groups with members who share similar challenges like you do!

    We look forward to learning more about you all. We commit to respond to as many posts as we can, always ❤️new ones and try to be there for you. And we will keep making new posts to share and also post questions for you all to engage in conversations.

    Sending blessings for great health & healing, peace & serenity and connection & support.

    Moshe @maxtempo
    Chris @chrislynn1
    Neeta @littleredrose

    (This collage of pictures shows only Moshe & Chris - Neeta is shy😉)

    **Before posting this one of us had all memes and images disappear, but the other said they are all there. If you too can’t see the images please comment or DM one of us as soon as you can! Thanx…**

    #MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #Chronicpainwarrior #Stigma #ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #Grief #LossOfAParent #Suicide #ChronicFatigue #HIVAIDS #longtermsurvivor #BackPain #COVID19 #Migraine #Headache #PeripheralNeuropathy #PTSD #Selflove #Selfcare #Diabetes #Stroke #CheckInWithMe #TheMighty #MightyMinute #MightyTogether #IfYouFeelHopeless #Hope #strength #Fibromyalgia #relief #Acceptance #PainAcceptance #SocialAnxiety #Happiness #strength #relief #MentalHealthHero

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    Life’s a roller coaster, but if you hang on the trip is really worth it. The more you go on the ride, the closer you get to letting go w/ both hands!

    Cheer each other on, lift each other up, and push each other to keep giving our bests! When you reach out to support others the strength you gain can help with depression and/or anxiety you yourself feel. Lend a hand when you think you need one the most. We all have something to offer, we all have been on different journeys, but may have more things in common than you think. What you have gained from holding on in your journey may help someone else when they need it the most and potentially put your situation in different perspective!

    —-

    We lost my Dad 18 months ago and my Mom is very down, depressed, feeling weak and looking frail and very lonely in the big house they shared together for over 45 years. I want to help and feel a need to make her feel better … sometimes I know what to say and can be there for her, even when I am struggling…but it is important for me to also realize what I’m going through myself is valid and real, and it is ok to focus on my self care, step back and trust that others will be there for her.

    In working with my life coach she reminded me how so much of the emotional energy I am spending on supporting her (and a best friend who is also deeply struggling with his addiction) could be spent on taking care of myself…then I can reach out and be that loving supportive person I want to be again. She reminded me of the old story that you are on a plane, it’s about to crash and the masks fall down. For me I then would immediately want to put the mask on my loved one next to be but in reality I can only truly be helpful if I put the mask on myself first! So I have a lot to offer my mom and others but right now I have to make my own self care the priority. There’s a balance between reaching out to support others or knowing when self care has to come first.

    Yes, my Mom is really hurting and my first instinct is to rush to her aid, to be there 100% no matter how much time and energy it takes. But I am really struggling myself right now and the most important thing for me is to focus on my own self care! Today was my fifth day in a row with a migraine. They can be brutal, debilitating, not just the pounding headaches, but the incredible sensitivity to light and sound and the vertigo/dizzyness…and I feel weak & fatigued and can even feel worse the day AFTER a migraine; and I have been up at night with other health problems; have tweaked my back; and my Neuropathy has my feet and legs burning as always. These layers of physical health problems have created a window for my depression and emotional weakness to come in. I have to admit that it’s hard to not feel sorry for myself. Yet I have been calling and texting my Mom and my friend and expending time and energy I really don’t have to offer. This is my nature, as usual I have put others needs in front of my own☹️

    I ask that if you feel comfortable can you please send me prayers or good energy while I negotiate this time. Today I’m the one needing the support…it is a time I am humbly trying to step back and ask for help…

    #Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Disability #BackPain #DiabeticNeuropathy #COVID19 #Migraine #Headache #BipolarDisorder #BipolarDepression #PTSD #Addiction #AddictionRecovery #RareDisease #TheMighty #MightyMinute #MightyTogether #MentalHealthHero #Grief #LossOfAParent

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    Dad's 23rd Anniversary 🎄✝️⭐ #Grief #Isolation #LossOfAParent

    23 years ago I was 11 years old and had no idea my father had passed away. I knew something was wrong because I couldn't get a hold of him. He was a devout Christian and very Jesus is the reason. It was not like him to not be around during Christmas. My abusive birth person waited to tell us because she didn't want to ruin our Christmas... My Dad was the only stable balanced person in my life that wasn't a narcissist. He was an amazing jazz music and his favorite instrument was the flute. He wrote amazing songs. He was a Sci-Fi nerd and we were so excited to see the Matrix. He didn't make it though I saw every movie in honor of him. Unfortunately I can't go see the latest one which is right at his anniversary. I love my Dad and I'm happy he's not longer battling cancer and I know he's with me. It's been an emotional day. I lost my grandmother who was like my mother a year ago next month before my birthday. She made my Christmas' as a kid amazing her and my Grandfather gave me the best holidays. Simple things in the 90s like going to look at Christmas lights, cooking, decorating, baking, doing charity work and Midnight Mass was a whole production I was Mary with a real baby! I've been listening to all their favorite music. I'm extremely broke with barely any food in NY house so no grand cooking but I'm grateful bc I know there is someone who is praying to have things like I have. Like a roof over my head. It's just me and my pup. I wanted to honor all those that are no longer with us during these very stressful and lonely holidays. I'm sending you all so much love!! We can get through this and into the new year. HAPPY HOLIDAYS MIGHTY FAMILY ❤💚❤💚❤💚❤💚❤💚❤💚❤💚❤

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    I find that it is a continual part of my journey to try to hold on & stay afloat…w/ my chronic pain it is a true challenge but I try hard every day

    We are fighting invisible battles others can’t see and sometimes TRYING can just be DOING THE NEXT RIGHT THING, not worry about what others can say who don’t understand chronic pain and who sometimes judge and demean us. But we can ignore them and be gentle with ourselves, to love and believe in ourselves. This is a lifelong journey and I often have to try to do so one day at a time. I know pain, I know struggles and I hear you, I believe in you, and can relate. I’ve been there and I have hope and believe we all can survive and thrive, overcome challenges, and become stronger!

    I am a fighter, I am a warrior, and so are you. Just being here and trying to find others walking the same path means you care about yourself and want to feel better! … and many times if we try hard enough we will succeed! If we try hard enough the sky's the limit, it starts with self love then continues into good self care, and learning and believing how to love ourselves. Some days I have to try very hard to love myself and be gentle with myself, but it’s so worth the effort!

    Most days I try to stay positive, try to hold on, try to stay afloat, try to find my flow and balance, try to not let my pain take over and be the only thing I think about. I try to welcome each day with hope, optimism, promise and know that I am capable of doing more than my body tells me I can do. I feel it more those nights, the pain can catch up with me…but I must give myself credit, to acknowledge what I've accomplished. The hardest thing is to be motivated and fight through the pain when my body just wants to stay stuck here sitting.

    But being active doesn’t just lift my spirits … It also provides periods, even just moments, when I don’t think about my pain. And my doctor says that walking and exercising actually helps my body even though my mind tells me it is going to feel much worse, that I will be bringing on more pain.

    It’s a daily battle to get out and go for that walk. Yet that is the very thing that partially helps… even though I fear that it will hurt. My mind tells me that exercising will just make me hurt more at the end of the day…but I have ways I can practice self care, ways to treat the pain…so I try to believe I can do so, that l have been through worse. I try to just get through the days knowing I have just Done The Next Right Thing. I went for that walk, I got to the gym, or just simply got out of bed and took a shower. I've practiced self care that shows I love myself. Yes, I TRIED but I succeeded beyond my wildest imagination!

    #ChronicIllness #ChronicPain #ChronicDepression #ChronicMigraines #MentalHealth #Depression #Anxiety #BipolarDisorder #Bipolar1Disorder #Bipolar2Disorder #BipolarDepression #Addiction #AddictionRecovery #Sobriety #HIVAIDS #longtermsurvivor #PTSD #Disability #Pain #PainAcceptance #BackPain #neckpain #COVID19 #Migraine #Headache #Grief #LossOfAParent #Acceptance #Selfcare #Selflove

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